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Sad to hear this news.  I have been following Tara's battle for months....Breath Easy Tara and Hugs and Prayers to Cloyce and Chris <div><br></div>

Sad to hear this news. I have been following Tara's battle for months....Breath Easy Tara and Hugs and Prayers to Cloyce and Chris<br>

Sad to hear this news. I have been following Tara's battle for months....Breath Easy Tara and Hugs and Prayers to Cloyce and Chris<br>

My son passed away a little over two years ago. You can read his story in the blogs as I believed that I blogled about his end life story. Cory also had made the decision to not further try transplant (denied by California due to Cepacia) and also chose to not be vented. Cory had spend a long...

My son passed away a little over two years ago. You can read his story in the blogs as I believed that I blogled about his end life story. Cory also had made the decision to not further try transplant (denied by California due to Cepacia) and also chose to not be vented. Cory had spend a long...

My son passed away a little over two years ago. You can read his story in the blogs as I believed that I blogled about his end life story. <br />Cory also had made the decision to not further try transplant (denied by California due to Cepacia) and also chose to not be vented. Cory had spend a...

PEFR stands for peak expiratory flow rate. It is an assessment of large airway

PEFR stands for peak expiratory flow rate. It is an assessment of large airway

PEFR stands for peak expiratory flow rate. It is an assessment of large airway <br />

LouLou- We were fortunate to have a fantastic ICU team. About 3 months before Cory passed away he was in ICU for 45 days. His CO2 levels were climbing and we talked about venting. We weren't ready to say yes and we weren't ready to say no. The doctor talked to us in length about it and gave...

LouLou- We were fortunate to have a fantastic ICU team. About 3 months before Cory passed away he was in ICU for 45 days. His CO2 levels were climbing and we talked about venting. We weren't ready to say yes and we weren't ready to say no. The doctor talked to us in length about it and gave...

LouLou- <br />We were fortunate to have a fantastic ICU team. About 3 months before Cory passed away he was in ICU for 45 days. His CO2 levels were climbing and we talked about venting. We weren't ready to say yes and we weren't ready to say no. The doctor talked to us in length about it and...

With Cory, we used the 5 wishes form. We never got to officially file it since I am unsure about that part. We chose 5 wishes because it didn't seemed aimed at "the elderly" and given that Cory was only 23 years old, it was the best suit. One of the best things we did was have a copy of our...

With Cory, we used the 5 wishes form. We never got to officially file it since I am unsure about that part. We chose 5 wishes because it didn't seemed aimed at "the elderly" and given that Cory was only 23 years old, it was the best suit. One of the best things we did was have a copy of our...

With Cory, we used the 5 wishes form. We never got to officially file it since I am unsure about that part. We chose 5 wishes because it didn't seemed aimed at "the elderly" and given that Cory was only 23 years old, it was the best suit. <br /> <br />One of the best things we did was have a...

My son would constantly get Kidney stones. He has 3 or 4 lithotripsy's. When he had passed away, he was scheduled to see a specialist that was going to try to figure out why he his body would make kidney stones as fast as he could get rid of them. One thing that will help (tricks from the...

My son would constantly get Kidney stones. He has 3 or 4 lithotripsy's. When he had passed away, he was scheduled to see a specialist that was going to try to figure out why he his body would make kidney stones as fast as he could get rid of them. One thing that will help (tricks from the...

My son would constantly get Kidney stones. He has 3 or 4 lithotripsy's. When he had passed away, he was scheduled to see a specialist that was going to try to figure out why he his body would make kidney stones as fast as he could get rid of them. <br /> <br />One thing that will help (tricks...

My son was on bi-pap at night for about 7 months, more often when he was having a rough time. He never did get to the point where he "liked" it but he kept at it because he knew it worked. He knew he was able to do something because of what the bi-pap did for him. He always used the full face...

My son was on bi-pap at night for about 7 months, more often when he was having a rough time. He never did get to the point where he "liked" it but he kept at it because he knew it worked. He knew he was able to do something because of what the bi-pap did for him. He always used the full face...