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I have suffered from very bad depression since about the age of 12. Unfortunately for me I have a family doctor who because of this put all of health issues down to my depression. Now over 25 years later and not just accepting that depression was the cause of all my issues, I have now been re...

I have found access to doctors here in Canada great, I have multiple specialists and can usually get in for an emergency appointment quickly. As for any meds here, one medication I need ( nothing to do with cf ) is called berinert and is supplied through Canada blood services. I believe the cost...

Ok, thanks both so much. They are hesitant to go the prednisone route with me as my blood sugars can go unstable so easily.

Ok, thanks. You haven't found you've been more susceptible to infections on the immunosuppressants?

Does anyone know how being on an immunosuppressant could effect cf? I have an auto-immune condition and my neurologist is contacting my cf clinic to find out if it would be ok to start me on one. I just wondered if anyone had any experience with this? thanks

Thanks, that puts my mind at ease.

I was a little worried about that because it is a problem I have sometimes but I do already have a prescription for lactulose that I can take daily as needed. I do plan on starting with the minimum recommend dose of enzymes. Thanks

Thank you all. I only sometimes experience the fatty stools, but the last year after having my gallbladder removed I have had constant pain after eating. I guess that was helping with my digestion too. They did a Mri and found my pancreas has significant fat replacement which is apparanttly...

I was just wondering if there was any side effects I should be on the look out for or be aware of? I was told the dose would probably need to be adjusted and it may affect my diabetes control. Thanks.

I seem to not be to bad with rye bread for some reason, I can't have any white pasta at all. Even with the insulin, sends me high still every time, maybe if my ratio is adjusted. We have something here called cateli smart pasta, it's white pasta (and tastes like it) but got the high fibre like...

I've been told a carb is a carb that 30 gram of carbs from ice cream will affect my blood sugar the same as 30 grams of carbs from whole wheat bread. I haven't found that the case with myself. I had a big bowl of banana and cantaloupe the other day and my 2 hour bs was 110, one of the best it's...

I'm new to insulin too. I'm on novorapid which I believe is just Canada's name for novolog. How much insulin I take depends on how much I eat in a day, they have given me no target carb intake. Just cover my carbs with insulin. My current ration is 1 unit for 18 grams. They started at a...

When I first came to this board last summer desperately looking for answers I found some great people here. They helped push me in the right direction to finding those answers. I still come here for knowledge. I personally don't respond too often because I still feel I am so new to this cf...

Thanks. I'm not sure how trials work but I'm not sure if with my other health issues if they would accept me. I was just at my immunologist yesterday and there is talk of looking into me getting a port for my C1 inhibitor infusions because I may need them biweekly to prevent my angioedema. I've...

No access to kalydeco for r117h in Canada yet. According to the cf Canada website there are 72 of us on the registry over the age of 6 with this mutation and it says they will notify the Canadian cf community when submissions have been made with health Canada for it.

Just a little update after all the help I've received here. I'm now being seen regularly at my local cf clinic. They have me seeing a G.I. Doc as they believe my current stomach issues could possibly be chronic pancreatitis related to the cf and I am waiting for further tests. I have also been...

I can't help too much here except with the conversion, we use the same blood sugar readings in Canada as in Ireland. The easiest way to covert to the what it equals in the USA is to multiply it by 18. So when it when up to "23" x 18 = "414" in the USA. Hope someone can help with the other stuff.

I am 40, just diagnosed and my mutations were found on the common 32 (I think) mutation panel in Canada. It took about 6-7 weeks for the results here. Hope you get some answers.

I had my clinic appointment. It went well, if not a little overwhelming. So far just been put on puffers and lactulose and upped my gerd meds, but I had 14 vials of blood taken, need to do a morning sputum sample. I also need a bone density scan more complete breathing tests and am being sent to...

I love the taping my appointment idea, thank you, I'll also be taking someone with me for an extra set of ears. I have my appointment for the end of November. Unfortunately with not driving it is too difficult to go to Toronto regularly, unless it was absolutely necessary.