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  1. S

    Tobi

    Risa, How long ago did you have a lung transplant? How old were you?
  2. S

    Tobi

    Risa, How long ago did you have a lung transplant? How old were you?
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    discrimination in the work place

    I don't think a company can ask if you have a disability. I believe they can ask if there is anything that would prevent you from successfully completing the duties of the position you are applying for. My first interview after college I told the guy whom was interviewing me that I had CF, he...
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    discrimination in the work place

    I don't think a company can ask if you have a disability. I believe they can ask if there is anything that would prevent you from successfully completing the duties of the position you are applying for. My first interview after college I told the guy whom was interviewing me that I had CF, he...
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    Tobi

    I have tried everything from taking albuterol first to drinking something during the treatment to gargaling right after. I just hate Tobi. My Doctor normally does not put me on it unless he sees my FEV1 go down. But this time I volunteered to take it. The Pseudomonas grew in my culture my...
  6. S

    Tobi

    I have tried everything from taking albuterol first to drinking something during the treatment to gargaling right after. I just hate Tobi. My Doctor normally does not put me on it unless he sees my FEV1 go down. But this time I volunteered to take it. The Pseudomonas grew in my culture my...
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    Hospitalizations

    The first time I ever went into the hospital I was 25. I was in for a day for them to start a pic and then I did 2 weeks of IV treatments at home. In the past 3 years I have been in twice. Both times for a week and then I did a week of IVs at home. My FEV1 are normally between 50% and 65%...
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    Hospitalizations

    The first time I ever went into the hospital I was 25. I was in for a day for them to start a pic and then I did 2 weeks of IV treatments at home. In the past 3 years I have been in twice. Both times for a week and then I did a week of IVs at home. My FEV1 are normally between 50% and 65%...
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    Tobi

    I just started a series of Tobi. I haven't been on it since May of last year. I find it makes me more congested, I cough more and my voice becomes very hoarse. Does anyone else have horrible side effects from it?
  10. S

    Tobi

    I just started a series of Tobi. I haven't been on it since May of last year. I find it makes me more congested, I cough more and my voice becomes very hoarse. Does anyone else have horrible side effects from it?
  11. S

    Hospitalizations

    Hi Everyone, I feel like I have pretty mild CF but when I hear of others FEV1s, I start wondering if mine is worse than I think. I am curious how often other adult CFers go in the hospital. Thanks for the input.
  12. S

    Hospitalizations

    Hi Everyone, I feel like I have pretty mild CF but when I hear of others FEV1s, I start wondering if mine is worse than I think. I am curious how often other adult CFers go in the hospital. Thanks for the input.
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    Sad and Totally Confused

    I hate when that happens. There are times when I have be so regular with my exercise and I go in and my FEV1 are down. I think sometimes we try so hard to clear out our lungs that we over do it. I think there is a very fine line of doing what we are suppose to and over doing it. Does anyone...
  14. S

    Sad and Totally Confused

    I hate when that happens. There are times when I have be so regular with my exercise and I go in and my FEV1 are down. I think sometimes we try so hard to clear out our lungs that we over do it. I think there is a very fine line of doing what we are suppose to and over doing it. Does anyone...
  15. S

    Aztreonam Lysinate for Inhalation Study

    Hi Everyone, Has anyone done this study? I start it next week and I am looking of others feedback.
  16. S

    Aztreonam Lysinate for Inhalation Study

    Hi Everyone, Has anyone done this study? I start it next week and I am looking of others feedback.
  17. S

    Adults living with CF

    Do you ever go in the hospital? 90 % sounds great.
  18. S

    Zithromax

    Does anyone else take Zithromax 3 times a week?
  19. S

    Zithromax

    Does anyone else take Zithromax 3 times a week?
  20. S

    hypertonic saline

    When I was in th hospital, the pharmacy mixed up the right dose for me. I think I am going to revisit this with my doctor. I think he thinks I am on the higher % but my pharmacy does not always have a clue.
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