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Thought you might be interested that there will be a float in the Rose Bowl parade tomorrow that honors organ donation.They've done it since 2004, but this is the first year I've seen press coverage of it because <b>The Ohio State Buckeyes</b> are in the Rose Bowl this year (Yeah!!!) and...

Now I thought the regular Snuggie was a little weird. I mean, just use a blanket, why do you need to buy a blanket with sleeves? But now they have them for Dogs. <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=5-q4kZDIfk0">Snuggie for Dogs</a>

My Son with cf, my husband and I all have H1N1. It's been a really rough couple of days.My son came home from school on Thursday with a slight cough. It was still just a cough on Friday so I sent him to school, but when he came home Friday afternoon it had turned into a pretty ferocious cough...

I work for a small company doing accounting. Over the years my hours have always varied depending on how busy we were at the time. Some times I would work 40 hours or more per week, sometimes 20 hours. A lot of the time I was telecommuting from home and it was really the perfect job for...

Our local news had a story on this yesterday and I thought it was an ingenious idea.The doctors and nurses will wear a special electronic badge. Then when a doctor or nurse washes their hands a sensor by the handwashing station will track what time they washed and how many times a day they...

I'm sure you've all heard about the peanut butter recall, but wanted to make sure you knew about the FDA website that lists all the products recalled. I was surprised at the number and variety of items recalled. It's broken down by type of item (cookies, candy, etc) and then futher broken down...

When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both...

A post in the Family section reminded me of a question I've been meaning to ask. Do I need to be concerned about the Lifeimte Max Coverage that our insurance policy has? I always assumed that since my husband's employer switches insurance companies or plans each year that the Lifetime Max...

My 9 year old son had 3 kidney stones in October and he spent a agonizing week in the hospital while they tried to find some pain meds that would even begin to reduce his pain. Truly the worst pain I have ever seen him in and my son has an abnormally high threshold for pain.After that...

How many of you do nasal irrigation for your kids and when did you start? Do they have to have an understanding of what they are doing? I would think you don't want to inhale while you do it. My son is 9, but has some mental disabilities so I'm not sure he can do it without sucking it down...

My husband was watching this really nerdy program on the Discovery Channel called How Stuff Works and they had a whole program on corn. The last segment was about the genetics of corn (yawn), but they mentioned that they are researching corn genetics to make a cure for CF. Did anyone else see...

At my son's clinic appointment this week his pulse ox never got above 95. My son has never had a pulse ox reading below 99. Should I be concerned? What is considered in the normal pulse ox range? What can cause a lower pulse ox reading? The pulse ox was one of the first things they did when...

I know that adults with CF are more prone to Osteoporosis, but is it true for kids also? Has anyone's kids been tested for it or treated for it? And does it have anything to do with being PI or PS?The reason I'm asking is that we found out this week that my son has a stress fracture above his...

My son had been very very irritable for the last week and after many visits to the Pediatrician trying to rule out everything from seizures to broken bones we found out late on Friday that he has a poop impaction in his butt (my son is non-verbal and has CP in addition to CF so that is why I...

My son is PS or at least we thought he was. His GI wants him to do another Fecal Fat Elastase Test this week and I can't remember how long we can keep the "sample" before taking it in to the lab. Has anyone had this test done lately? I can call the clinic tomorrow, but I actually want to use...

Does anyone know why you can't see how many views a topic has had anymore? I just noticed that it was missing - it used to be right beside the # of Replies to a topic. I thought it was useful to have that there. Anybody else notice it was missing or am I just having a very boring Sunday...

Why do some people use a nebulizer for their inhaled drugs and some use the inhalers? Is it more effective to use the nebulizer? My son uses Albuterol before CPT and Flovent after CPT, both in the inhaler form, but I see many people talking about using the nebs. Any reason we would want to...

Are any of your kids pancreatic sufficient, but taking enzymes? My son has always been failure to thrive and we are always fighting to put every single ounce on him, but he has had both the fecal fat and fecal elastase tests and both show he is PS. Would it hurt anything for us to try enzymes...

We just started my son on Albuterol and Flovent about a week ago. The last three nights he has been peeing the bed like crazy. He's almost 9, but since he's hooked up to his Pediasure/pump all night he wears pull-ups, but this is far more than the pull-ups can handle - even soaked through the...

I was reading Leah's blog about Reece not being able to go to school this year and it got me thinking. If my son is sick for an extended period of time or not able to go to school due to not being able to tolerate the school germiness, is my only option homeschooling him myself? For some...