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I have been coughing up more than usual and dark in colour for three weeks. culture results Candida. My stupid Dr won't give me IVs and my PfTs are down from 71% to 64%. he got his secretary to ring me and she informed me "Professor won't give IVs for candida and to do another culture", which...

Has yourDoctor told you that you can become resistant to Itaconzole... He will only give them to me for six weeks in one year and said that it is wrong to be on them consistantly.. I feel I need to be on them permantely. Can you ask your Dr..opinion. Please advise.... sunflower 41 yrs old...

Just courious if anyone knows how the trail is going. I heard there will be information on it in June. Just love to know. Sunflower --------- Abpa/Asthma Bronchi Psuedomonas DF508/P67L

Looking for an update on the trial above. I am aware that there is an update in June. Is anyone on the trial and how is it going for them. Sunflower ----------------- 41yrs old Mutations DF508/P67L ABPA/Asthma Psuedomona (resistant) bronchitises.

This is my second month on Cayston and on a few ocassions I wake with a cough in the morning and coughing up phlegem. The majority of the time it's clear but can e a considerable amount. Is Cayston suppose to bring up stuff or is it that I have something culturing. I thought antibioctis reduce...

Hi I am extremely at a low and disappoointed with my treatment. I have been asking my Consultant for Xolair for approx two half years. My treatment is Steroid IVS for three days Sponax - anti fungal tablets for six. Anyway this is his third attempt to get my IGE level down but, not happening and...

<P> </P> <P>I culture Ralstonia Picketti and it's found:</P> <P>Bacterial wilts of tomato, pepper, banana, eggplant and Irish potato caused by <I>Ralstonia solanacearum. </I></P> <P><EM></EM> </P> <P>I am not lliving in an area where Tomatos, bananas, potato crops are grown nearby. </P> <P>If...

<P>Three years ago I was 80% but the last two years my PFTs are falling around the 76% mark and never went back up. When I get sick they fall to 64-67%  but the last month just when I have finished my IVs I was 74% but now I have dropped to 59% and very shocked and thats what I was told at...

I just got out of hospital after doing seventeen days of Ivs for Psuedomonas and I am starting home IV's tomorrow morning for my ABPA flair up. Can anyone tell me if I am doing Cortisone IV's for high IGE level is there anypoint taking six weeks supply of Itraconazole at the same time?. I am...

I need to know if you do Tobi twice a day or once a day. I was taking it for four months on and off and unfortunately I had an allergic reaction to it and had to stop it and it was working for me. I am off it now six months. Until I get Cayston I am thinking of resuming Tobi again and maybe...

I am in a delimma and don't know what to do. I just would love some advise to get my head around having a port. I am having IV's the last eight years and was getting them five times a year but, with hard work and so complaint with lung therapies I am having them twice a year and over the years...

I am taking Tobi approximately five months (on one month n off the next). I know there is a pattern after two weeks approx of Tobi I get hoarse voice-laryngitis to be fact, weakness, upset stomach and ringing in the ear and nausea feeling. I did discuss with my Consultant and he said "we might...

I am taking Tobi approximately five months (on one month n off the next). I know there is a pattern after two weeks approx of Tobi I get hoarse voice-laryngitis to be fact, weakness, upset stomach and ringing in the ear and nausea feeling. I did discuss with my Consultant and he said "we might...

I have been using the Eflow the last four years and I had to send it back to England two weeks ago to be told they can not fix it but can replace the machine which will cost £405euros or I can buy the entire machine with parts for 550£ approx. I just think it's alot of money and for parts every...

I have been using Eflow for the past four years and I love it. The silence is great and medication is fast. However, the down side to the EFLOW is the cost of parts and I had to send off my machine recently it wasn't working. I got an email telling me the machine is faulty and it will cost...

Hi I am not feeling very well and neeed some advise. I did have my IV's in Feb and my Doctor also put me on three days of Iv Steroids. When I was dicharged from hospital I want home with Intaconzole. I was on this for six weeks and it really hard on the stomach, chest and couldn't walk. After...

Hi, if anyone can help by given my uplifiting advise. I ws in hopsital eight weeks ago and did have my IV'S for two weeks and my doctor also put me on a high dosage of IV steroids for three days. I started feeling great and coughing disappeared and phlegme reduce. Anyway six weeks on the fungal...

Hi Just recently out of hospital after two weeks. I was given 400mg of Intraconazole and three days of Intravenous high dosage of Steroids. I felt great in hospital and my FEV1'S went back up to 76% from 61% and all going until the last three days before I got out from hospital and I have...

I have been diganosed with Pseudomonas over the last year and was told I am resistant to every antibioctics going. I am not on Coloymsin or Tobi and my doctor said u are resistanted to them and we will wait until you are not and probably start u on Tobi. I haven't had IV'S in a year and had two...

Hi Guys, If you could help me out with some questions regarding your E-flow. (I follow the pari E-flow cleaning regulations 100% and I am interested infinding out from others how they are doing with the E-Flow) I have got a few comments from other CF users and they are the finding the same...