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  1. H

    Ataluren Phase 3 Trial Results

    Is anyone from this forum currently participating in this trial? I would really appreciate any news about it... it seems like we are waiting an eternity for this pill to be approved by the FDA... I think I have been following this treatment for over 10 years now... I keep telling my daughter...
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    Anybody leaving in El Paso Tx.

    I'm being transfered to El Paso Tx, I have a daughter with Cystic Fibrosis, And I need to know if this will be a right move for her, Any good hospitalin the area?, Climate wise will this be a good move, She is 9 years old and we currently live in Louisville KY.
  3. H

    Anybody leaving in El Paso Tx.

    I'm being transfered to El Paso Tx, I have a daughter with Cystic Fibrosis, And I need to know if this will be a right move for her, Any good hospitalin the area?, Climate wise will this be a good move, She is 9 years old and we currently live in Louisville KY.
  4. H

    Anybody leaving in El Paso Tx.

    I'm being transfered to El Paso Tx, I have a daughter with Cystic Fibrosis, And I need to know if this will be a right move for her, Any good hospitalin the area?, Climate wise will this be a good move, She is 9 years old and we currently live in Louisville KY.
  5. H

    Ataluren

    This is just depressing. I don't even know if my insurance will be able to cover this drug. Check out this paragraph from an article I just read at <a target=_blank class=ftalternatingbarlinklarge...
  6. H

    Ataluren

    This is just depressing. I don't even know if my insurance will be able to cover this drug. Check out this paragraph from an article I just read at <a target=_blank class=ftalternatingbarlinklarge...
  7. H

    Ataluren

    This is just depressing. I don't even know if my insurance will be able to cover this drug. Check out this paragraph from an article I just read at <a target=_blank class=ftalternatingbarlinklarge...
  8. H

    Ataluren

    This is just depressing. I don't even know if my insurance will be able to cover this drug. Check out this paragraph from an article I just read at <a target=_blank class=ftalternatingbarlinklarge...
  9. H

    Ataluren

    This is just depressing. I don't even know if my insurance will be able to cover this drug. Check out this paragraph from an article I just read at <a target=_blank class=ftalternatingbarlinklarge...
  10. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  11. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  12. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  13. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  14. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  15. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  16. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  17. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  18. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  19. H

    Stem Cell Research

    To Lex, I'm a father of a 7 year old with CF and.... No I'm not too exited about it. I think kitomd21 explained very well why so many of us are not in agreement with allowing the use of unborn babies for SCR. but I'm not the one who is phisically suffering from the desease and also I,m not in...
  20. H

    R.I.P., Dean Barnett

    Great man. I Listened to him many times while filling in for Hugh Hewitt in his daily conservative radio talk show. I never knew he had cystic fibrosis. I had tears in my eyes when I heard this sad news
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