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Doc FINALLY agreeed to the Ambry testing-- I have the box and instructions in my HANDS! BUT AAGRH-- on my way out the door to get the blood drawn on my 5 year old, the doc's office calls and says that Insurance wants me to to go Quest, and IF quest can't do it, Then I can use Ambry. Well, I...

Doc FINALLY agreeed to the Ambry testing-- I have the box and instructions in my HANDS! BUT AAGRH-- on my way out the door to get the blood drawn on my 5 year old, the doc's office calls and says that Insurance wants me to to go Quest, and IF quest can't do it, Then I can use Ambry. Well, I...

Doc FINALLY agreeed to the Ambry testing-- I have the box and instructions in my HANDS! BUT AAGRH-- on my way out the door to get the blood drawn on my 5 year old, the doc's office calls and says that Insurance wants me to to go Quest, and IF quest can't do it, Then I can use Ambry. Well, I...

Waiting for Answers-- What to ask doc tomorrow? Doc called me and we discussed son's medical history. He agreed CF is a possibility, but he didn't "think so". He did agree, for my peace, to get the FULL AMBRY CF testing done. I go today and get the paperwork.!!! WOOHOO!!! I feel like I just...

Waiting for Answers-- What to ask doc tomorrow? Doc called me and we discussed son's medical history. He agreed CF is a possibility, but he didn't "think so". He did agree, for my peace, to get the FULL AMBRY CF testing done. I go today and get the paperwork.!!! WOOHOO!!! I feel like I just...

Waiting for Answers-- What to ask doc tomorrow? Doc called me and we discussed son's medical history. He agreed CF is a possibility, but he didn't "think so". He did agree, for my peace, to get the FULL AMBRY CF testing done. I go today and get the paperwork.!!! WOOHOO!!! I feel like I just...

Waiting for Answers-- What to ask doc tomorrow? We've gotten the immune testing. He's got a good memory to vaccinations, but everything else his body just doesn't fight. Thanks for the lead on primary ciliary dyskinesia, I'm off to google it now! Oh, the doc JUST called and said he's having...

Waiting for Answers-- What to ask doc tomorrow? We've gotten the immune testing. He's got a good memory to vaccinations, but everything else his body just doesn't fight. Thanks for the lead on primary ciliary dyskinesia, I'm off to google it now! Oh, the doc JUST called and said he's having...

Waiting for Answers-- What to ask doc tomorrow? We've gotten the immune testing. He's got a good memory to vaccinations, but everything else his body just doesn't fight. Thanks for the lead on primary ciliary dyskinesia, I'm off to google it now! Oh, the doc JUST called and said he's having...

Waiting for Answers-- What to ask doc tomorrow? Thanks for the advice. I'm more frustrated now. Today we left the hospital after a bronchoscopy. Scar tissue was expected, given all his asthma/pneumonia issues. No sign of cancer or reflux (I told the doc that, so nanner nanner nanner...

Waiting for Answers-- What to ask doc tomorrow? Thanks for the advice. I'm more frustrated now. Today we left the hospital after a bronchoscopy. Scar tissue was expected, given all his asthma/pneumonia issues. No sign of cancer or reflux (I told the doc that, so nanner nanner nanner...

Waiting for Answers-- What to ask doc tomorrow? Thanks for the advice. I'm more frustrated now. Today we left the hospital after a bronchoscopy. Scar tissue was expected, given all his asthma/pneumonia issues. No sign of cancer or reflux (I told the doc that, so nanner nanner nanner...

Waiting for Answers-- What to ask doc tomorrow? <b>I'm VERY VERY VERY FRUSTRATED!!! AAARRRGGGHHHHHHHH</b>Doc said he agreed with suspicion of CF, BUT....... Doc said he'll only agree to the sweat test, and a small genetics test that only tests the 32 most common CF strains. He wants to...

Waiting for Answers-- What to ask doc tomorrow? <b>I'm VERY VERY VERY FRUSTRATED!!! AAARRRGGGHHHHHHHH</b>Doc said he agreed with suspicion of CF, BUT....... Doc said he'll only agree to the sweat test, and a small genetics test that only tests the 32 most common CF strains. He wants to...

Waiting for Answers-- What to ask doc tomorrow? <b>I'm VERY VERY VERY FRUSTRATED!!! AAARRRGGGHHHHHHHH</b>Doc said he agreed with suspicion of CF, BUT....... Doc said he'll only agree to the sweat test, and a small genetics test that only tests the 32 most common CF strains. He wants to...

Nutrition Juice helping my child with cystic fibrosis There are juices like that, can't remember the names, that are at the Vitamin shop. They have done studies where it has improved immune systems greatly, plus a bunch of other stuff. We purchased one and plan on start tomorrow. It's $12...

Nutrition Juice helping my child with cystic fibrosis There are juices like that, can't remember the names, that are at the Vitamin shop. They have done studies where it has improved immune systems greatly, plus a bunch of other stuff. We purchased one and plan on start tomorrow. It's $12...

Nutrition Juice helping my child with cystic fibrosis There are juices like that, can't remember the names, that are at the Vitamin shop. They have done studies where it has improved immune systems greatly, plus a bunch of other stuff. We purchased one and plan on start tomorrow. It's $12...

Does this sound like CF in a 5 year old boy? 1st 2 years of life, had 24 episodes of croup/asthma 11 hospitalizations of pneumonia. Almost died. Lung collapse. ICU. "uncontrollable" asthma (docs just keep medicating aargh!) Constipation on and off his whole life Low LOW immune system Sinus...

Does this sound like CF in a 5 year old boy? 1st 2 years of life, had 24 episodes of croup/asthma 11 hospitalizations of pneumonia. Almost died. Lung collapse. ICU. "uncontrollable" asthma (docs just keep medicating aargh!) Constipation on and off his whole life Low LOW immune system Sinus...