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  1. T

    My PFT's are down... any advice?

    it is a vicious cycle. The pleurisy is really hard to manage, it takes forever to go away. It had gone away after a long time, but now (two months after my iv course ended) my chest is hurting really badly today. That makes cpt, impossible, and right now it even makes the vest impossible...
  2. T

    My PFT's are down... any advice?

    it is a vicious cycle. The pleurisy is really hard to manage, it takes forever to go away. It had gone away after a long time, but now (two months after my iv course ended) my chest is hurting really badly today. That makes cpt, impossible, and right now it even makes the vest impossible...
  3. T

    My PFT's are down... any advice?

    it is a vicious cycle. The pleurisy is really hard to manage, it takes forever to go away. It had gone away after a long time, but now (two months after my iv course ended) my chest is hurting really badly today. That makes cpt, impossible, and right now it even makes the vest impossible...
  4. T

    I am sure this question has been asked before

    I find it's helpful when you're dry and trying to bring stuff up. But if you are already having a productive cough, sometimes it can make you cough too much and prevent sleeping.
  5. T

    I am sure this question has been asked before

    I find it's helpful when you're dry and trying to bring stuff up. But if you are already having a productive cough, sometimes it can make you cough too much and prevent sleeping.
  6. T

    I am sure this question has been asked before

    I find it's helpful when you're dry and trying to bring stuff up. But if you are already having a productive cough, sometimes it can make you cough too much and prevent sleeping.
  7. T

    got my vest

    oh yeah and a doc told me i should use advair last so it can work better, after I've opened up my airways and cleared them out some. Not sure how true this is. It was a resident who told me that.
  8. T

    got my vest

    oh yeah and a doc told me i should use advair last so it can work better, after I've opened up my airways and cleared them out some. Not sure how true this is. It was a resident who told me that.
  9. T

    got my vest

    oh yeah and a doc told me i should use advair last so it can work better, after I've opened up my airways and cleared them out some. Not sure how true this is. It was a resident who told me that.
  10. T

    My PFT's are down... any advice?

    Ok. I started using Vit C and I started myself on some prednisone I had laying around. At least until I know I can talk to my doctor. I wish I could be on Tobi, but I have some kind of bad reaction to it, it irritates my throat and I get these coughing exacerbations, til my chest starts...
  11. T

    My PFT's are down... any advice?

    Ok. I started using Vit C and I started myself on some prednisone I had laying around. At least until I know I can talk to my doctor. I wish I could be on Tobi, but I have some kind of bad reaction to it, it irritates my throat and I get these coughing exacerbations, til my chest starts...
  12. T

    My PFT's are down... any advice?

    Ok. I started using Vit C and I started myself on some prednisone I had laying around. At least until I know I can talk to my doctor. I wish I could be on Tobi, but I have some kind of bad reaction to it, it irritates my throat and I get these coughing exacerbations, til my chest starts...
  13. T

    got my vest

    I strap on my vest, and then I do my breathing treatments in this order: DuoNeb (albuterol and atrovent), pulmozyme, then my hypertonic saline, all while doing the vest. If I didn't do it this way, I'd be doing treatments 99.9% of my entire day. This way it saves time, and I don't find that it...
  14. T

    got my vest

    I strap on my vest, and then I do my breathing treatments in this order: DuoNeb (albuterol and atrovent), pulmozyme, then my hypertonic saline, all while doing the vest. If I didn't do it this way, I'd be doing treatments 99.9% of my entire day. This way it saves time, and I don't find that it...
  15. T

    got my vest

    I strap on my vest, and then I do my breathing treatments in this order: DuoNeb (albuterol and atrovent), pulmozyme, then my hypertonic saline, all while doing the vest. If I didn't do it this way, I'd be doing treatments 99.9% of my entire day. This way it saves time, and I don't find that it...
  16. T

    PFT's and Hospitalization

    That's pretty much the exact same thing that happened to me, only they didn't go down that fast. I can feel the mucus moving in a certain part of my lung, and i hate that feeling... I'm not used to that. But If you try too hard to get it out, you will irritate your lungs and your throat, so...
  17. T

    PFT's and Hospitalization

    That's pretty much the exact same thing that happened to me, only they didn't go down that fast. I can feel the mucus moving in a certain part of my lung, and i hate that feeling... I'm not used to that. But If you try too hard to get it out, you will irritate your lungs and your throat, so...
  18. T

    PFT's and Hospitalization

    That's pretty much the exact same thing that happened to me, only they didn't go down that fast. I can feel the mucus moving in a certain part of my lung, and i hate that feeling... I'm not used to that. But If you try too hard to get it out, you will irritate your lungs and your throat, so...
  19. T

    Girl with CF on The View

    I am glad to know that some of you still believe in optimism. I have been hearing that my whole life, that a cure would come soon, just because it hasn't come yet, I'm not going to stop hoping that it will. People say these things based on the rate of progress with gene therapy and such, and...
  20. T

    Girl with CF on The View

    I am glad to know that some of you still believe in optimism. I have been hearing that my whole life, that a cure would come soon, just because it hasn't come yet, I'm not going to stop hoping that it will. People say these things based on the rate of progress with gene therapy and such, and...
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