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Hello....a few days later. What do you mean by "dirty nappies". Pooping all the time? Julie

Hello....a few days later. What do you mean by "dirty nappies". Pooping all the time? Julie

Hello....a few days later. What do you mean by "dirty nappies". Pooping all the time? Julie

Is your 3 y.o. symptomatic?

Is your 3 y.o. symptomatic?

Is your 3 y.o. symptomatic?

Our hospital screens for it where most hospitals don't, so those kids wouldn't get tested unless they were symptomatic. My nieces' screen was pos. though to this day she has had no symptoms, and I mean none at all (except right now her growth might be slacking off, but we'll see). Anyway...

Our hospital screens for it where most hospitals don't, so those kids wouldn't get tested unless they were symptomatic. My nieces' screen was pos. though to this day she has had no symptoms, and I mean none at all (except right now her growth might be slacking off, but we'll see). Anyway...

Our hospital screens for it where most hospitals don't, so those kids wouldn't get tested unless they were symptomatic. My nieces' screen was pos. though to this day she has had no symptoms, and I mean none at all (except right now her growth might be slacking off, but we'll see). Anyway...

Thanks Rebecca! No, she hasn't been on any enzymes and she is learning to crawl and cruise so there is a very good chance she is just doing normal baby stuff. As scary as it may be for my brother to actually have this dx become real with symptoms, at least it's (possibly) something manageable...

Thanks Rebecca! No, she hasn't been on any enzymes and she is learning to crawl and cruise so there is a very good chance she is just doing normal baby stuff. As scary as it may be for my brother to actually have this dx become real with symptoms, at least it's (possibly) something manageable...

Thanks Rebecca! No, she hasn't been on any enzymes and she is learning to crawl and cruise so there is a very good chance she is just doing normal baby stuff. As scary as it may be for my brother to actually have this dx become real with symptoms, at least it's (possibly) something manageable...

Oh, and she's almost 1 yr old.

Oh, and she's almost 1 yr old.

Oh, and she's almost 1 yr old.

My niece was dx after her newborn screen came back with a marker, then she passed her sweat test, then they did the comprehensive panel and they found a 2nd marker....BUT it supposedly is a rare one that they don't have much info on. SO....she has been asymptomatic and was only caught by...

My niece was dx after her newborn screen came back with a marker, then she passed her sweat test, then they did the comprehensive panel and they found a 2nd marker....BUT it supposedly is a rare one that they don't have much info on. SO....she has been asymptomatic and was only caught by...

My niece was dx after her newborn screen came back with a marker, then she passed her sweat test, then they did the comprehensive panel and they found a 2nd marker....BUT it supposedly is a rare one that they don't have much info on. SO....she has been asymptomatic and was only caught by...