So now what?

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charl72

New member
My 5 year old eldest daughter (she was 2 at the time) did a sweat test just to confirm if she had CF or not. She was also screened at 6 weeks and came back negative, but because her younger sister was diagnosed CF they asked if we wanted to repeat it and we did. Don't know yet whether she is a carrier of the CF gene or not, don't feel the need to know at the moment.<img src="i/expressions/face-icon-small-cool.gif" border="0">
 
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charl72

New member
She has digestive issues. Looking back, before she was diagnosed she took a month to regain her birth weight. None of the midwives thought anything was wrong though during the first 6 weeks after she was born. Thought she was gaining weight, slow and steady. I breastfed her, like my eldest daughter. My eldest daughter followed the same pattern and took a month to regain her birth weight too. That's why it came as a shock when she was diagnosed. Looking back though, she did do a lot of dirty nappies, but everyone thought that was normal. As she got a little bit older, her stools had fat in it before she started taking enzymes.
 
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charl72

New member
She has digestive issues. Looking back, before she was diagnosed she took a month to regain her birth weight. None of the midwives thought anything was wrong though during the first 6 weeks after she was born. Thought she was gaining weight, slow and steady. I breastfed her, like my eldest daughter. My eldest daughter followed the same pattern and took a month to regain her birth weight too. That's why it came as a shock when she was diagnosed. Looking back though, she did do a lot of dirty nappies, but everyone thought that was normal. As she got a little bit older, her stools had fat in it before she started taking enzymes.
 
C

charl72

New member
She has digestive issues. Looking back, before she was diagnosed she took a month to regain her birth weight. None of the midwives thought anything was wrong though during the first 6 weeks after she was born. Thought she was gaining weight, slow and steady. I breastfed her, like my eldest daughter. My eldest daughter followed the same pattern and took a month to regain her birth weight too. That's why it came as a shock when she was diagnosed. Looking back though, she did do a lot of dirty nappies, but everyone thought that was normal. As she got a little bit older, her stools had fat in it before she started taking enzymes.
 
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Alyssa

New member
For what it's worth, my son is 20 years old with virtually no symtoms (yet?). See our story on my blog page.
 
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Alyssa

New member
For what it's worth, my son is 20 years old with virtually no symtoms (yet?). See our story on my blog page.
 
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Alyssa

New member
For what it's worth, my son is 20 years old with virtually no symtoms (yet?). See our story on my blog page.
 
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ddawes27

Guest
Face2....My son was recently diagnosed at 4 yrs old.......Nappies are diapers!! The diaper needs to be emptied in the toilet to see if the contents float! My son's stools floated......and they were pale yellow.........that was a sign that he had the typical absorption problems that CF children have.
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ddawes27

Guest
Face2....My son was recently diagnosed at 4 yrs old.......Nappies are diapers!! The diaper needs to be emptied in the toilet to see if the contents float! My son's stools floated......and they were pale yellow.........that was a sign that he had the typical absorption problems that CF children have.
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ddawes27

Guest
Face2....My son was recently diagnosed at 4 yrs old.......Nappies are diapers!! The diaper needs to be emptied in the toilet to see if the contents float! My son's stools floated......and they were pale yellow.........that was a sign that he had the typical absorption problems that CF children have.
D
 
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