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  1. M

    help

    No family history here. It was the one thing we were all hanging onto in those horrible days between test and result. Abby has it, but we are dealing with it. Knowing is better than wondering. Insist they test her for it. The earlier the diagnosis, the better her chances of fighting the...
  2. M

    help

    No family history here. It was the one thing we were all hanging onto in those horrible days between test and result. Abby has it, but we are dealing with it. Knowing is better than wondering. Insist they test her for it. The earlier the diagnosis, the better her chances of fighting the...
  3. M

    help

    No family history here. It was the one thing we were all hanging onto in those horrible days between test and result. Abby has it, but we are dealing with it. Knowing is better than wondering. Insist they test her for it. The earlier the diagnosis, the better her chances of fighting the...
  4. M

    muscle tone in 3-month old

    Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there...
  5. M

    muscle tone in 3-month old

    Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there...
  6. M

    muscle tone in 3-month old

    Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there...
  7. M

    muscle tone in 3-month old

    My grandaughter, Abigail, was born in December and diagnosed with CF quickly because of ilius meconium. She was in the NICU for about 4 weeks. Her mom & dad have struggled with her weight but she is at least gaining, so I think we just have to accept that nutrition is the main problem for now...
  8. M

    muscle tone in 3-month old

    My grandaughter, Abigail, was born in December and diagnosed with CF quickly because of ilius meconium. She was in the NICU for about 4 weeks. Her mom & dad have struggled with her weight but she is at least gaining, so I think we just have to accept that nutrition is the main problem for now...
  9. M

    muscle tone in 3-month old

    My grandaughter, Abigail, was born in December and diagnosed with CF quickly because of ilius meconium. She was in the NICU for about 4 weeks. Her mom & dad have struggled with her weight but she is at least gaining, so I think we just have to accept that nutrition is the main problem for now...
  10. M

    newbie here, first post

    I realize I could cut and paste anybody's first post because I am going through the same awful emotions... how could this happen? We have 7 healthy grandchildren and took for granted this time would be like the others. My daughter, Meghann, gave birth by c-section to my grandaughter, Abby, on...
  11. M

    newbie here, first post

    I realize I could cut and paste anybody's first post because I am going through the same awful emotions... how could this happen? We have 7 healthy grandchildren and took for granted this time would be like the others. My daughter, Meghann, gave birth by c-section to my grandaughter, Abby, on...
  12. M

    newbie here, first post

    I realize I could cut and paste anybody's first post because I am going through the same awful emotions... how could this happen? We have 7 healthy grandchildren and took for granted this time would be like the others. My daughter, Meghann, gave birth by c-section to my grandaughter, Abby, on...
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