Search results

I'll be flying in a few weeks and the whole TSA safety stuff that's going on has really been crazy. I'll go through the x-ray machine, fine. But I wonder if my mic-key button will make them become concerned? Do you think I'll be patted down, will I have to explain to them why I have it? I'm...

Especially when I'm sick, I start to get really depressed about CF. The same question goes on in my head, "Why me?!". I'm usually really positive, but when I really start to think about it, CF really sucks. I know how many advances there have been in the last 10-20 years, I know there are people...

At my clinic appointment Tuesday they are supposed to change my Mic Key to a new one. Does it hurt? They've never changed it before because I haven't had it too long. I'm freaking out! The GI doctor I'll see is kind of...rough and not very gentle with this kind of stuff. Also, the area around...

Hi! I was wondering, can you attend a Great Strides walk as a CF patient? I think somebody told me that if you cultured B. cepacia, that you can't, but otherwise you can, but I'm not sure. There is one May 15th...a few days after I'm getting out of the hospital. If I am feeling well enough I'd...

Hi! The nurse just told me that I am NPO (no food by mouth)...already. I am getting my PICC line placed tomorrow morning at 9 am and I'm getting some, err, sedative type drugs (Versed is the only one i know of)...but I thought you needed 6 hours of not eating...not a whole freaking day! I want...

*sigh* well, I'm back in the hospital because I didn't do my treatments. I forgot how UNCOMFORTABLE hospitals are. And I remember I didn't like CHOC at all..but thats where I am! So many annoyances! First, Dr. Nickerson told us Tuesday that they didn't want to keep me out of highschool..that...

I really knew nothing about ports until I came to this forum and even then I still don't know that much about them. What exactly are they and when do doctors tend to suggest them?

I know this is a really silly question when there are so many more important things to *worry* about. clubbed fingers and toes. I am sure that somebody here has them also, since I hear its more common with CF (and other lung things) How can you attempt to hide it? I am embarrassed of my...

Well, I finally had my appointment today. Oh boy! I gained a nice amount of weight... Went from 97 to 101! Been trying to reach 100 for a while... I'm celebrating tomorrow, haha! My lungs got better, a little bit.. After only one week of actually doing treatments. 69% to 74%! I really skimmed...

Honestly, I've been doing my treatments pretty well (Vest 2x, saline2x, pulmo1x) The month has gone by pretty fast and the doctors told me last month that if I didn't get my lung function better that I'd be in the hospital next appointment. It's my summer, I've worked so hard to get here, and I...

Super nervous!!! They aren't just pulling it out, they are actually taking it out the same way they put it in ( through the mouth.. Like inside to out). What do I expect when I get there in the morning? How long does it take? Does it hurt as bad after as it did when they put the PEG in? Anymore...

Hi! Well, I'm not exactly sure when, but soon, I'm getting my PEG out and getting a button. The doctors are all talking about the Mic-Key button...which seems great (any button is better than the PEG!), but it looks bulky. I've been reading about it online, and Ive seeing that people are saying...

I had the surgery done around jan 20th or something.. So it's been a while. It still hurts around the area... We went back to docs two weeks after it wasdone, it hurt then, but they said it was normal and it looked fine. They wanted us back in two months, we've been meanin to make an appointment...

Mods, feel free to move this, as I am a teenager, but I'm seeking advice that adults can help with. I have a feeling I've posted things like this before. In Jan, I was in the hospital, got a gtube..lungs went from 50% to 100%. Now, I am not sure..but I believe they are back at 50%. My weight...

Hi everyone! Last Friday, I got my Gtube! We decided that it really would be the best thing. My lungs went from 50% to 95%...we need to keep that, and everything is connected, so I need the weight! I was sore a bit..but not its better. I am having problems with my back tho. Anytime (when it was...

Hey everyone! I know this isn't the right spot, but we need opinions. I've posted before about my weight. I'm underweight and came into the hospital because my lung function decreased. Right now, we are extremely upset. My nutritionist and doctor came to my hospital room and proceeded to tell...

Hi everyone! First, I want to say thank you to those who replied in my other thread. I'm stuck in the hospital. The thing was, I focused so much on the weight, that I let my lung funtion go. It went down 20% in about 2 months... I did gain two pounds, and my nutritionist was really happy, but...

when I think I am doing okay, but then I see pictures of myself from Christmas and I don't look healthy. I'm worried. I was supposed to gain 5 pounds in a month. I haven't. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hope everyone is staying safe! Such bad fires + bad air quality.

I am hearing a lot about it lately.. What is it? Does it hurt when you get it? Do many CFers have them? Just general questions.. thanks