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    Vertex Update: New data for other gating mutations and new trial for G551D

    Im sorry GenH i totally misunderstood. Im deleting my comment!
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    Please Teach Me about home IV's

    Sareh please dont waste any energy worrying upon that. Just enjoy every moment with your kid. Take my word for that. And if it comes to IVs a day or two in the hospital will fully educate you on how to use the meds. Its easy. Me and my mom learned quite quickly. Dont worry. We have many weapons...
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    Glucose Tolerance Tests (GTT)

    Ι was a little above the boundary a few years ago in 2004. I dont have CFRD. It doesnt mean that your kid has either. Try getting retested. You mentioned a great fear of needles. You should know stress affects the results A LOT.
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    What's your experience with Cayston?

    Allergic to Tobi as well. started Cayston two months ago and my fev1 has gone up 7% while my cough disappears when im on it!
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    What Do You Do For Work?

    Im an English teacher and a translator. I translate English into Greek if anyone needs me!:p
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    Hormone testing-Ladies

    I deeply believed all these years that acne and CF are related. I still do.... We have problematic mucus lets face it.
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    Hormone testing-Ladies

    Hello girls. I was just wondering if anyone of you had a hormonal testing through menstrual cycle. Im dealing with irregular periods for over 12 years (god so long) and im also dealing with persistent acne. Im intending to ask my doctor to prescribe me blood testing for hormonal levels. Has any...
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    CF tattoos

    I know a guy with CF who has a tatoo saying THE END IS NEAR. I didnt like it at all when i first saw it. I thought it was too pessimistic and sad. Over time i realized it was not about death. It was about life.It was about living your life your every day to the fullest. it was about living your...
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    Tobi podhaler

    Had the same problems! I had terrible reactions to that med but my doctor insisted on keep taking it. I guess she thought it wasnt so bad because my PFTs werent too lousy but not very good either. Anyway it made my life miserable. A month ago i started Cayston. Hallelujah! Thats how normal...
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    how long do you give oral antibiotics before you give up?

    I think you should wait for the course to be completed. Sometimes it takes longer to fight an infection with or without the drugs. Show some patience. My doctor says that sometimes it takes months for pfts to bounce back.
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    excessive underarm perspiration

    Story of my life.... I sweat like a pig. Even when its cold. Actually even more... I dont use antiperspirants because they dont really solve the problem and i hate the smell. I prefer to use plain alcohol to fight the odors and i try to keep the area clean. Wearing loose clothes seem to help a...
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    Adult CF?

    A simple blood test will answer your question in the best possible way!
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    Natural deodorant

    I tend to perspire a loooot. I use alcohol to clean my armpits every day, once or twice. It works for me just fine! No more chemicals near our breasts!
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    Bloating

    So what can we do about it? Hit the gym? Take more creon? Pray to Buddha?
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    Cayston- new Altera handset every cycle?

    Im starting Cayston tomorrow! I've read the leaflet and it says Altera can last up to 3 Cayston cycles. Im having the same question. It seems such a waste to throw away Altera device once a month!
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    Bloating

    Story of my life! Its like im pregnant! Im in a normal weight for my height (57kg and 164cm) In the morning its kinda normal but at night it gets twice its size. It looks so abnormal i dont know what to do!
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    What to do with life and CF, Please Help!!

    Part time teaching? If you like this job try to do it in a program that works for you! Good luck!
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    Anyone use symbicort inhaler

    I use it for as long as i can remember. never had that problem. I always gargle with water after using it! try this!
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    Hair/Skin/Nails?

    Hmm I dont know if everything is CF related. I have to say im dealing with acne since early puberty (im 23 now). And my skin seems to be oily all the time. I also have very greasy hair as well. I HAVE to wash my hair every two days and im really trying not to do it more often because it makes...
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    Having trouble sleeping

    This seems like a "panic attack". Do you experience stress or anxiety? Are you having nightmares? Im having trouble sleeping lately too. Im going to bed and thoughts keep running through my head. I think of a zillion of things and i cant sleep. I think we should both relax. Dont ask me how. But...
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