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Oh My Goodness - I'm so glad someone else spoke up about this. I know it sounds trivial but it is a little ridiculous! I cut myself constantly or break off the little tabs trying not to and then have to pull out the darn plyers to open the vial. I really hope they do something about this!

Try Cayston!

I just left a message as well - I hope everyone does this! AS a CF Mom I cannot imagine knowing the technology and advancements are out there you just don't have access to them due to an age restriction. God, help this family!

Our son is on Vyvanse and while it does affect appetite we have added Cyproheptadine - an appetite stimulant to counter act the side affects and it works!

I just replied to you but the forum is acting odd - please let me know if you did not get it :)

In complete agreement with just1more. We too adopted a little one with CF - even at the age of 2 there are so many more emotional issues. He's now 8 and the emotional side is just as much, if not more than the health piece. If you want any specifics or to ask any questions please feel free...

My work and family sent him Christmas Cards - breathe easy sweet boy!

Our son has always carried enzymes with his lunch or snack (since Kindergarten) and a teacher or aide makes sure to observe him taking them at meal and snack times since he's not responsible enough to do so on his own. We were adamant that he was not going to the nurse's office to get them...

Was not expecting this! I thought Lez was getting stronger :( So sad for her family. Breathe easy beautiful angel.

Rebjane, what does the Sodium Bicarb do?

This is something we've been considering for our 7 year old with CF too and have been discouraged because he has an enlarged liver. But the biggest fear/question I have is what about the bare feet and germ issue?

This is something we've been considering for our 7 year old with CF too and have been discouraged because he has an enlarged liver. But the biggest fear/question I have is what about the bare feet and germ issue?

<P>Fellow CFer Parents~</P> <P> </P> <P>Our son takes ADHD medication and we are trying to find what is the best time to give him the med to gain the most of it's use:</P> <P> </P> <P>1.  Should it be given with enzymes at the time of a meal to enhance absorption?</P> <P>2.  If given at the time...

<P>Fellow CFer Parents~</P> <P></P> <P>Our son takes ADHD medication and we are trying to find what is the best time to give him the med to gain the most of it's use:</P> <P></P> <P>1. Should it be given with enzymes at the time of a meal to enhance absorption?</P> <P>2. If given at the time of...

<BR> <P><BR>Fellow CFer Parents~</P> <P></P> <P>Our son takes ADHD medication and we are trying to find what is the best time to give him the med to gain the most of it's use:</P> <P></P> <P>1. Should it be given with enzymes at the time of a meal to enhance absorption?</P> <P>2. If given at the...

Thanks for the replies. Weather permitting we will be going & with sanitizer and an extra pair of socks!

Thanks for the replies. Weather permitting we will be going & with sanitizer and an extra pair of socks!

Thanks for the replies. Weather permitting we will be going & with sanitizer and an extra pair of socks!

Thanks for the replies. Weather permitting we will be going & with sanitizer and an extra pair of socks!

Thanks for the replies. Weather permitting we will be going & with sanitizer and an extra pair of socks!