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I always get impatient with how long it seems to take to recover from a bout of illness AFTER the antibiotics finish as I expect to be back at feeling my normal soon after the treatment, but between the side effects of the meds and the actual illness haven taken a toll on your body, it can take...

Hi Julie, I do think the sliding scale is for more severe CFRD meaning they need long acting insulin to cover their baseline and then the short acting insulin on top of it with meals. I have anecdotally heard that when healthy people cut carbs, their bodies also react more sensitively to carbs...

Hi Julie, I do mix it into all sorts of food, about a tablespoon at a time. I use in my coffee especially in the mornings, because I'm very groggy in the mornings and MCT Oil has (supposedly) good benefits for brain function right away...some call it "fuel for your brain" so teamed with the...

Hi Julie, my CFRD manifests very similar to yours (my peaks are maybe a little higher but they come down just as quick, and my hba1c is always normal). I have learnt that CFRD is not the same in all patients with CF. In the beginning stages it can be this frustrating yo-yo effect of quick...

Hi Julie78, welcome to the forums! Just wanted to recommend that you perhaps start a new thread with your diabetes question and perhaps repeat your story, I'm sure it would attract a better response. All the best and I hope you find some answers :)

I was sitting at my desk at work today next to a row of colleagues. At first it was just a trickle in the throat...then cough-cough...cough-cough-cough! You know the one. The more you suppress it, the more it comes. Years ago I had a building project happening at my house - one of the...

I think it depends on your health (subjectively how you are doing, not just the numbers) and the type of job (stress, hours, flexibility). I stopped working for a few years when I was 28years old and my FEV1 was gradually declining to about 60%. I was a school teacher and while I was not that...

Hi, I was reminded of this thread which includes various people's account of suffering joint pain and swelling and thought it may be an interesting link in this context. http://forums.cysticfibrosis.com/showthread.php/181637-Painful-rash-joint-pain-swelling?highlight=joint+pain I also have...

Wow thank you so much for all the responses. I had no idea about the vogmask/CFF statement so thanks for that input. I am not so concerned about the appearance, more the discomfort of an ill-fitting disposable mask that is scratchy and makes breathing feel very "stuffy". I have been doing...

Hi all, Do any of you use fabric masks instead of the disposable paper surgical masks that are uncomfortable and difficult to breathe through. I am talking about any situation when you'd normally wear one, e.g. going to clinic, flying on plane etc. Which brands have you found to be comfortable...

Seems like so many people with Cystic Fibrosis like pickles! Found this cool article on Pickles and sodium content - it has a column on the right showing exactly how much sodium is in different types of pickles. https://mobile.fatsecret.com/calories-nutrition/food/pickles/sodium

Thanks for the input - I'll keep this in mind. I'm in South Africa so yes the climate is generally sunny and warm, so the salt in summer especially is worth looking into (and not just for sauna).

Thanks for the input. I was wondering about a more exact guideline for salt replacement in CF? What do your clinics commonly tell you? I've generally just been told to eat a lot of salty snacks, but I found a guideline online which recommends 6000mg/d of sodium for CF Adults (that is 3 teaspoons...

Hi all, anyone with Sauna-ing experience? I recently started looking into Saunas for overall health benefits, such as improved circulation, reduced inflammatory muscle/joint pain, increased white cells (immune system) etc. I'm referring to the dry saunas with the hot rocks as used in Finland...

Dear Heather, we are so very sorry for your loss. Our thoughts are with you and your family. I'm not familiar with the disposal/donation regulations in the United States as I live elsewhere, but I'm hoping someone else from the community can provide input. One idea perhaps is to reach out to...

No responses yet so I'm guessing not too many CFers have experience with this? I don't know much about the topic either. Just curious: what were your son's symptoms and how is it being treated? Good luck and hope the treatment is successful.

Hi everyone, we published a blog about Honey on this site a few months ago, it touches on some of the potential benefits of Manuka honey in CF specifically (many of which LittleLab4CF pointed out above).The blog has some links to further reading, if anyone is interested check it out...

Love this!

"Beatments" lol. Good luck, hope it arrives soon!

Hi Rebjane, yes it is expensive! My insurance paid 80% and I have to pay for my replacement aerosol heads out of pocket, however I STILL feel it is the best nebulizer I've ever had and due to all the time saved and ability to take it with me anywhere (it runs on rechargeable batteries too), I...