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Everyday I get gas and a ton of mucus in my under pants. it thick and yellow/green. somedays it looks like almost 1/2 cup full. Somedays I con't go anywhere becasue I get so much of it in my pants. Somdays I put on a diaper just so I can get out of the bathroom! I am on Mucomist down my G-tube...

Hey guys, Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks! 1.the way my body looks different from others with out CF 2.People...

I have a Mic-key feeding tube. Right now it is very sore and has big red bump of skin under it by the tube that enters the tummy. sometimes it will bleed. what should i do about it. should I put some A and D on it? I know sometimes that helps. thanks! 19/w CF DF508/ MRSA / B. Capia/

Over the lest few weeks I have been having issues keeping my weight from going down. My doctors like me at 145 and I do to. I feel best at 145 not to fat and not to thin. But I keep going down. Yesterday I was at 130 and going down. I have been having issues with eatting things with oil in it or...

I was doing my treatments/vest tonight and as I was doing my vest I got chest pain. What would cause this? a mucus plug is what I was thinking. also is it normal to get green junk comming out by G-tube? -------------------------------- 19/w CF DF508

Over the last two weeks I had a severe MRSA skin infection on my face. My whole face on the left side was all swelled up. Even under my eye. I started to not be able to see well. They tested to see what kind of meds would work for this so they put me on Levquin and Bectrum. So my swelling has...

My mom had to call 911 for me on Thursday because I was feeling wird and numb all over my body. I got to the ER and the did a CBC and a B-12 count. it was all normal so I was sent home. I still feel wird and numb. I am having issues walking. I am on Bactrim and Levaquin for MRSA of my skin. I...

went to the oncolgy cancer doctor at the childrens hospital today with my blood work. They did a new CBC and I was so happy to here that it was normal! I cryed! They told me to go down to mayo CF center. and my lungs did't sound that great today. Because I have been doing this teen thing where...

The doctor called on Friday and said my WBC white blood cell count was low. Then said that my RBC red blood cell count was also low and so was my platelets. Also I have a lump growing in and on my overens. Still spilling ketones and have gone down 15 pounds in less then a week. I asked him why...

Went to ER last night becuase I have not been able to keep food in my system. The doctors there had no clue what a tune-up was or even why I needed one. I been having more shortness of breath and chest pain. I had a CT of my belly taken and I knew it was going to be (normal). CBC was normal...

I have been getting sick feeling everytime I eat any kind of food. The only thing I don't get sick on is my tube-feeding food. My tummy is always upset. And I get the worst stools with lots of mucus. what should I do or does anyone know what this may be is it just part of CF?

Hey everyone I am back.. The doctors did a test to see what was growing in my lungs and I do have Cystic fibrosis. I was shocked by what was growing in there. I talked to the immune doctor and the only thing thats not good about my immune system is that my IgG's are a little low. I was sent...

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The...

I am so not in the loop with my cystic fibrosis. I don't go to a great big nice CF center and I don't stay in a hospital where I have known the nurses. and they know me. I go to just a (normal clinic) where there are inturnests that treat anything and everyone. (MY DX)....... My dx was not...

Ok everyone, so I put on a shower gard to keep the site from getting wet. But It still doe's not help! Today it got socking wet! I was sooo mad! The IV people at aripa tell me no one showers when they are using there port? and I have my port in 24/7 for an IV med I take.. I have such bad tummy...

Today I had just had it with my CF.. This is how I think and this is how I act about my CF. I like to think in my mind that I have a different illness and that I don't have CF because if I did have a different illness like ALL cancer it has a 89% cure rate. and then I would be sick for like a...

I found this on a web page about digestive illness.. lets see if I can get the pic to come up.

I had a sputum cultrure stain and this is what it reads. 3+ Gram positive cocci 1+ Gram positive bacilli Few PMNs I had a doc tell me once that this says that I have bugs in my chest that are hard to treat?

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or...

anyone ever used this and did it work well? My doc wants to put me on it becuase he does not think oral Levaquin will work as well as IV.