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Hi there, My son also has this mutation. My son has 1898+1G>A & 2585delT. Sarah Mommy to Johnny almost 5 w/cf and Bailey almost 3 no cf

Thank you! go to your profile on this site. There You will see an image box<img src="i/expressions/face-icon-small-wink.gif" border="0"> I copy an image code off Photobucket and put it in that box<img src="i/expressions/face-icon-small-smile.gif" border="0">

I just joined a group of parents on Facebook, and read about it too;( I had no idea it was Toms son;( Ohhhh, I'll keep the family in my prayers. Hugs CF families;( Sarah

I just joined a group of parents on Facebook, and read about it too;( I had no idea it was Toms son;( Ohhhh, I'll keep the family in my prayers. Hugs CF families;( Sarah

Hi there, My lil man is almost #5<img src="i/expressions/face-icon-small-smile.gif" border="0"> Time sure is flying by. I Finally broke down and joined Facebook. I'd love to add some CF parents & Adults for some inspiration. Sarah.lynch.509@facebook.com

Thanks Everyone!! Clinic went awesome, and he did gain weight after all<img src="i/expressions/face-icon-small-wink.gif" border="0"> Johnny has been on Prevacid & Bio Gia (Probiotic). They gave us a sample of Creon, and it seemed to do the job yesterday. Going to use the Creon samples gain...

A close family friend found out that she has COPD. She also recently started using oxygen when needed. My mommy radar is going off! I'm not sure how to handle visits from now on. Any advise or suggestions would be greatly much appreciated. Thanks, Sarah Mommy to Johnny almost 5 w/cf & bailey...

A close family friend found out that she has COPD. She also recently started using oxygen when needed. My mommy radar is going off! I'm not sure how to handle visits from now on. Any advise or suggestions would be greatly much appreciated. Thanks, Sarah Mommy to Johnny almost 5 w/cf & bailey...

Hi there, my sons blood work came back with low levels of iron. I have been reading lots of information on the Internet. Have any of you experienced issues of low iron? I know he doesn't like red meat, and fish. Wondering if this could be a reason why he looks so pale. Also, he drinks so many...

Hi there, my sons blood work came back with low levels of iron. I have been reading lots of information on the Internet. Have any of you experienced issues of low iron? I know he doesn't like red meat, and fish. Wondering if this could be a reason why he looks so pale. Also, he drinks so many...

I also struggled with this after the birth of our son. He was our first born, and it was devastating. I envied others who had other children before their cf diagnosis. They didn't have to make this decision. My husband and I visited a local PGD office, but did not feel that it was the right...

I also struggled with this after the birth of our son. He was our first born, and it was devastating. I envied others who had other children before their cf diagnosis. They didn't have to make this decision. My husband and I visited a local PGD office, but did not feel that it was the right...

Liza great point!!! Have your husband go to bat for you. They will always love him, because he is their son. Great point Liza!

Liza great point!!! Have your husband go to bat for you. They will always love him, because he is their son. Great point Liza!

Hi there, I'm very thankful that most our family & friends have homes I feel comfortable visiting. When my son was born my mothers home had issues. That I was already had concerns with before the CF diagnoses. It was a very delicate issue. However, I worked the angle of trying to help and...

Hi there, I'm very thankful that most our family & friends have homes I feel comfortable visiting. When my son was born my mothers home had issues. That I was already had concerns with before the CF diagnoses. It was a very delicate issue. However, I worked the angle of trying to help and...

TLC Is going to have I typed that wrong...Breathless Bride: Dying to Live....sorry!!

TLC Is going to have I typed that wrong...Breathless Bride: Dying to Live....sorry!!

Thought I share just incase any other people are interested in checking it out. I'm not sure the times. Check your TLC channel. Sarah

Thought I share just incase any other people are interested in checking it out. I'm not sure the times. Check your TLC channel. Sarah