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Hi there, My lil man is almost #5<img src="i/expressions/face-icon-small-smile.gif" border="0"> Time sure is flying by. I Finally broke down and joined Facebook. I'd love to add some CF parents & Adults for some inspiration. Sarah.lynch.509@facebook.com

A close family friend found out that she has COPD. She also recently started using oxygen when needed. My mommy radar is going off! I'm not sure how to handle visits from now on. Any advise or suggestions would be greatly much appreciated. Thanks, Sarah Mommy to Johnny almost 5 w/cf & bailey...

Hi there, my sons blood work came back with low levels of iron. I have been reading lots of information on the Internet. Have any of you experienced issues of low iron? I know he doesn't like red meat, and fish. Wondering if this could be a reason why he looks so pale. Also, he drinks so many...

Thought I share just incase any other people are interested in checking it out. I'm not sure the times. Check your TLC channel. Sarah

Hi there, Well a year ago our insurance company started refusing to pay for our sons dietician, and social worker. We decided back then we would see the social worker once a year, and continue to pay fordietician every time we came to clinic. At our last CF appointment my husband took our son...

Johnny had a runny nose all last week. Then Thursday the runny nose stopped, and the junky cough started. CF docs stared us with antibiotics yesterday. Normally we do the vest 4 times a day with colds. But this is the worst cough he has ever had<img src="i/expressions/face-icon-small-sad.gif"...

<P>Doc told us a WHOLE CAP full 2x's a day...Sounds like soo much for a little guy. Does this sound right??</P>

<P>Our son has complained about a tummy ache the last few days. I first blew it off as him tring to get out of bedtime or nap. However, he now isn't being himself at all. There is no puking like the last Bowel obstruction in May. My head feels like it's going to explode, until the XRAY's...

Sorry...Question on letting my son get a hermit crab. I have never had one, and this is really not my thing. But today we were at the pet store and the subject came up. Johnnys older cousins wanted to get him one, and shot the idea down. Later this evening my nephew said "I wish Johnny didn't...

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<P>Hi there,</P> <P> </P> <P>My son started Hypertonic Saline 7% last month. So, far he HATES...HATES it. The only thing I like about it is that we our having the "fight" while he is four and not fourteen. So, hopefully sooooon he will get use to it. That said after some of his morning nebulizer...

<DIV>Grandpa and his girlfriend are coming to town this weekend. The visit is for Grandpa's Birthday Dinner & Celebrating. One catch Grandpas Girlfriends brother is coming and he has a son w/cf. The plan was for all of us to have dinner together. Until I heard of it this morning.Yikes...

A Spray Park opened a few blocks from our home, and I'm thinking about taking the kids. I have ready plenty on water parks w/ pools. Though I haven't read anything on "Spray Parks". I'm only dragging my heals on taking them because i have read Sooooo much negative on nasty shower heads and...

<DIV> <P>Hi there, </P> <P> </P> <P>My little boy turned 4 on Wednesday...Yeah!!! We also had clinic on Tuesday. He did awesome looks great! We are now going to start him on hypertonic saline. I have read plenty on that. I just have a question about what Pari cup. Which one do you like better...

<DIV>Hi there,</DIV> <DIV> </DIV> <DIV>Okay here are my new "Crazy Mother" Questions for this summer. My lil Man is about to turn 4 and the baby pool is not cutting it anymore.</DIV> <DIV> </DIV> <DIV>1. Do any of you allow your children to play in plastic inflatable backyard pools. I have been...

<P>Hi there,</P> <P> </P> <P>Well, we got the boot out of baby clinc last week. Johnny is turning 4 made them move us. So, next clinic will be different. Not because he cultured anything. Kind of freaked out!! I know this sounds like a stupid question. But, do your older kids wear masks the...

<DIV>Hi there,</DIV> <DIV> </DIV> <DIV>Johnny is doing awesome. Well, better than awesome. We don't have clinic for awhile. We went to his 2 week post surgery appointment and he has gained two pounds in 2 weeks. He won't stop eating. He wakes up saying I'm hungry, and feed me. My son has NEVER...

Hi there, We are home!! Thank goodness!!! On the road to recovery! Love, Sarah *We were in the hospital because Johnny had scar tissue from his meconium illieus surgery he had as a baby that had came loose and wrapped around his intestines and caused a blockage..Acted like a rubber band and...

Hi there, Well, yesterday Johnny started complaining of a tummy ache. He pooped yesterday at 3:00 p.m. it was a normal solid poop. Through the nightlast nighthe cried and fussed we were up every hour with him. This afternoon I tried getting him into all his different doctors. With no luck of any...

On the phone for the last 2 hrs trying to fill a prescpition for my sons pulmozyme. They are telling me that can't fill it, because they can only fill the generic form of pulmozyme. WTH!!! There is no generic!!! RIGHT????   So frustrated tears in my eyes