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Hey there! I'm wondering if any of you go to RB&C in cleveland for CF care. More specifically, does anyone here see Dr. Robert Stern? I'm having some problems that I hate to admit. I've always LOVED this center but am having a really hard time with communication. To make a long story short, I'm...

Hello all!<br><br>I was just wondering what effect a diagnosis of, or even just a history of, depression has on being able to get a transplant? I know that when undergoing the tx assessment there's a mental/emotional aspect to it, but to what degree? I thought I remembered reading somewhere that...

Hey there!<br><br>I was just wondering what got you all started with taking/trying fizzy NAC? I've seen and read so much about it - the good stuff, the potential bad stuff, etc. I've been really curious to try it to see if it would benefit me at all. I've spoken to others that swear by it! Was...

Hey guys!<br><br>I have TERRIBLE asthma symptoms that seem to get worse with age. This year I've already been on two, at least month-long, high courses of prednisone (I start at 60mg). It works wonders for my breathing but after only a week of it, everything else goes in the crapper. I'm...

My mother noticed an odd looking mole on my back a few days ago. I've had a few before that came back pre-cancerous. There was nothing that needed to be done about them since the dermatologist removed the mole entirely during the biopsies. I haven't been to the dermatologist in YEARS (it's been...

Hey all.<br><br>I have recently become single with a house all by myself and on my own (my fiance left me...I don't want to get into it). I'm scared to death. I'm currently on SSDI, food stamps, working part time and going through school (though it's summer break right now). I now have yards I...

Hey all!<br><br>I've seen so many symbicort commercials on tv lately and have been considering asking my doc about it. I know some of you are on it instead of advair. I searched for a previous topic about it and found a few where just about everyone said they liked it and thought it worked...

Hey all! So I noticed there was condensation in my nebulizer tube last week. I realized that it was a pretty old set, so I replaced it. Fast forward to now, a week later, and I'm seeing condensation in the tube again! I can't imagine that this is sanitary and can only believe that this may be...

Hey all! I was just curious to see if anyone here goes to Rainbow for their CF care. If any of you out there do, who's your doctor? Did/Does anyone have Dr. Robert Stern?   thanks!

Hey all! I know some of you are on large amounts of Ibuprofen for inflammation. I remember many, MANY years ago when there were still study trials of high doses of ibuprofen in CFers to see if it worked for inflammation (both in the lungs and sinuses/nasal polyps). I almost did a couple of those...

Hey all! I was just at clinic a couple days ago for a relatively uneventful visit (everything that was wrong a few months ago is still wrong). I recently just asked my doc for portable O2 and when I came to clinic, the respiratory therapist mentioned an insurance issue with the O2 company. They...

Hey guys! I got super excited to find out that Eva's story, 65_RedRoses, would finally be able to be aired in the US on the Oprah network. Since I found that out, I've been checking the OWN website and channel continuously looking for an actual air date. No luck. I've finally found that it's...

First of all, let me say thank you for all of your relpies! You guys are all so helpful! I'm only on O2 at night, but I'm thinking I'll be needing O2 all the time, or at least during activities like grocery shopping or going to the doc, etc. in the near future. I'm calling the doc on monday...

Hey all! I have just a couple questions about using O2... 1) Is there a way to tell if you're not on an adequate amount of O2 therapy, aside from just getting more out of breath? I'm currently only on 2L of O2 at night and don't really notice a difference in my days or nights. To tell the truth...

Hey guys!   So, my lung function is actually pretty crappy. My last pft was in the upper 30s and that was a long time ago. I'm on SSDI and only working part time while I go to school. Things have been getting really tough for me as of late. On days I work, I'm exhausted after a 6 hour shift. I...

hey all! I know some of you here culture m. abscessus or have kiddos that do. I remember reading that those of you that do, get fevers (or have in the past) like me. Well, I am currently doing IVs for this infection. I've been on these IVs since October of this passed year (and got my first...

Hey guys! I recently posted something asking about what those of you that have cfrd do when you're on prednisone. I'm having such bad sugar spikes that swallowing air seems to put my blood sugars into the 400s. I'm very insulin resistant while on prednisone. I've always been curious about the...

Hey guys! So, I've been on prednisone for the last couple weeks. I was weaning down from 60 mg and am now at a stable 30mg a day (not weaning any further yet). My blood sugars are OUTRAGEOUS. I've been in touch every couple of days with endocrine and every time it's the same thing; increase the...

Hey guys! *I also posted this in Exercise & Fitness just to see if I get some different responses* I've recently started working out. I've been doing Walk Off the Pounds DVDs (surprisingly GREAT cardio, for those wondering) and pilates. I started using oxygen at night before I started this...

Hey guys! I've recently started working out. I've been doing Walk Off the Pounds DVDs (surprisingly GREAT cardio, for those wondering) and pilates. I started using oxygen at night before I started this exercise regimen so I assumed I should use the O2 while exerting myself. Is this effective? I...