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  1. J

    vitamin dosages in aquadek/sourceCF softgels

    Hello everyone, it's been a while... I'm still waiting for lungs (18 months now, and counting!) Anyway, I was hoping someone had a bottle of ADEKs handy and could list how much of each vitamin one tablet contains... specifically I'm looking for the amount of K, but might as well know them all...
  2. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  3. J

    Marinol

    I know Marinol (THC) has been discussed in the forum before, I just wanted to add my two cents! I have had a lot of trouble dealing with nausea and decreased appetite. I have a g-tube, but had a hard time keeping down my full feed. The ID team I saw at my last transplant clinic appointment...
  4. J

    for anyone on bi-pap

    This past admission, my doctor thought it would be a good idea to start me on bi-pap at night. I normally sleep with oxygen and my CO2 levels were getting too high. Anyway- there is no doubt that I sleep much better with bi-pap than without, and I don't have any CO2 headaches in the morning...
  5. J

    pneumomediastinum

    Has anyone else had any experience having a pneumomediastinum? I had never heard of it until I got one. I was coughing (of course) and it felt like I pulled a throat muscle. I had a clinic appointment scheduled so I went in early and over the hour drive there the pain in my neck kept getting...
  6. J

    Four pounds under the weight requirement

    I had another appointment at my tx hospital and was hoping to have them say "ok, all your tests look great, we can discuss your case and put you on the list" Instead, I got, "all your tests look great, but you only weigh 101 and we need you to be AT LEAST 105 but preferably more, so we can't...
  7. J

    Advanced Directive, health-care proxy, etc..

    Hi everyone! My father has recently mentioned that I should probably have an advanced directive or some other form of legal paperwork in place naming someone to take over my health-care decisions if I am unable. I was just wondering if any of you have something similar, and maybe any advice or...
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