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Its been quite some time since i have been on here. but I know exactly where you are. Grayson was born with a twisted bowel (MI) and had 30cm cut from her small intestine. She was in the hospital for almost 7months before i could bring her home. when we came home she was on pectin. it helped...

Its been quite some time since i have been on here. but I know exactly where you are. Grayson was born with a twisted bowel (MI) and had 30cm cut from her small intestine. She was in the hospital for almost 7months before i could bring her home. when we came home she was on pectin. it helped...

thanks for posting mom! i am playing everything by ear for when its time to go to preschool. i have to sign her up now because they have a great program and there is a waiting list. at this time the therapist and early intervention come to my home 2 times a month to work with graycie. she is...

thanks for posting mom! i am playing everything by ear for when its time to go to preschool. i have to sign her up now because they have a great program and there is a waiting list. at this time the therapist and early intervention come to my home 2 times a month to work with graycie. she is...

thanks for posting mom! i am playing everything by ear for when its time to go to preschool. i have to sign her up now because they have a great program and there is a waiting list. at this time the therapist and early intervention come to my home 2 times a month to work with graycie. she is...

i agree. i have twin 6 yr olds (7 in june) and they weigh 52 lbs and 54 lbs and my step d just turned 6 and she is 43 lbs. All don't have CF. I think he is at a very healthy weight. I used to let the doc's get to me about grayson's(w/ cf) weight. We HAD to be 50% or above or i felt like a...

i agree. i have twin 6 yr olds (7 in june) and they weigh 52 lbs and 54 lbs and my step d just turned 6 and she is 43 lbs. All don't have CF. I think he is at a very healthy weight. I used to let the doc's get to me about grayson's(w/ cf) weight. We HAD to be 50% or above or i felt like a...

i agree. i have twin 6 yr olds (7 in june) and they weigh 52 lbs and 54 lbs and my step d just turned 6 and she is 43 lbs. All don't have CF. I think he is at a very healthy weight. I used to let the doc's get to me about grayson's(w/ cf) weight. We HAD to be 50% or above or i felt like a...

i agree. i have twin 6 yr olds (7 in june) and they weigh 52 lbs and 54 lbs and my step d just turned 6 and she is 43 lbs. All don't have CF. I think he is at a very healthy weight. I used to let the doc's get to me about grayson's(w/ cf) weight. We HAD to be 50% or above or i felt like a...

i agree. i have twin 6 yr olds (7 in june) and they weigh 52 lbs and 54 lbs and my step d just turned 6 and she is 43 lbs. All don't have CF. I think he is at a very healthy weight. I used to let the doc's get to me about grayson's(w/ cf) weight. We HAD to be 50% or above or i felt like a...

i use a 60ml syringe and use her adaptor. We layer each capsule of enzymes with apple sauce. Make sure you flush with water so the mickey don't clog. we just switched from Creon to pancrecarb and so far i like this way better. good luck. and if you have another way, let us know.

i use a 60ml syringe and use her adaptor. We layer each capsule of enzymes with apple sauce. Make sure you flush with water so the mickey don't clog. we just switched from Creon to pancrecarb and so far i like this way better. good luck. and if you have another way, let us know.

i use a 60ml syringe and use her adaptor. We layer each capsule of enzymes with apple sauce. Make sure you flush with water so the mickey don't clog. we just switched from Creon to pancrecarb and so far i like this way better. good luck. and if you have another way, let us know.

i use a 60ml syringe and use her adaptor. We layer each capsule of enzymes with apple sauce. Make sure you flush with water so the mickey don't clog. we just switched from Creon to pancrecarb and so far i like this way better. good luck. and if you have another way, let us know.

i use a 60ml syringe and use her adaptor. We layer each capsule of enzymes with apple sauce. Make sure you flush with water so the mickey don't clog. we just switched from Creon to pancrecarb and so far i like this way better. good luck. and if you have another way, let us know.

Thanks mom for all the updates on lil peanut. Grayson is doing much better today. They switched her enzymes to panc carb (not sure if thats correct). We can push them through her mic key. sore bottom is getting better. She ate a little ham and ranch this morning. Every 4 hrs we are doing CPT...

Thanks mom for all the updates on lil peanut. Grayson is doing much better today. They switched her enzymes to panc carb (not sure if thats correct). We can push them through her mic key. sore bottom is getting better. She ate a little ham and ranch this morning. Every 4 hrs we are doing CPT...

Thanks mom for all the updates on lil peanut. Grayson is doing much better today. They switched her enzymes to panc carb (not sure if thats correct). We can push them through her mic key. sore bottom is getting better. She ate a little ham and ranch this morning. Every 4 hrs we are doing CPT...

Thanks mom for all the updates on lil peanut. Grayson is doing much better today. They switched her enzymes to panc carb (not sure if thats correct). We can push them through her mic key. sore bottom is getting better. She ate a little ham and ranch this morning. Every 4 hrs we are doing CPT...

Thanks mom for all the updates on lil peanut. Grayson is doing much better today. They switched her enzymes to panc carb (not sure if thats correct). We can push them through her mic key. sore bottom is getting better. She ate a little ham and ranch this morning. Every 4 hrs we are doing CPT...