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  1. B

    Creon 24

    Hi, I'm the mom of a child with CF who is 9 years old. I'm also working on getting my certification as a nutrition therapist (but have been studying nutrition for over 20 years). Generally speaking, CF enzymes are prescribed based on several factors, but most importantly your weight, and so...
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    Trying to gain weight -- am I doing everything?

    Hi, mah, We all have our own experiences where food is concerned, and what works for one person can not necessarily be expected to work for another person. So, take all of these comments with a grain of salt (pun intended - be sure to consume lots of salt every day!) and come up with your own...
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    Flu after getting the vaccine

    4hats - feel confident in your choice to avoid the flu vaccine in the future. All I can say on this subject is that I am very happy to report that I have not allowed even one vaccine injection into my child - and certainly not the flu vaccine - and she is doing great because of it. And CFJeff73...
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    Need help feeding enzymes & food with spoons

    I was just typing a response to your post and then noticed that it was from a year ago! So, instead, I'll just say that I've got an infant now with CF (who still takes her enzymes with no issues). I was wondering if you are in the Denver area?
  5. B

    Need help feeding enzymes & food with spoons

    I was just typing a response to your post and then noticed that it was from a year ago! So, instead, I'll just say that I've got an infant now with CF (who still takes her enzymes with no issues). I was wondering if you are in the Denver area?
  6. B

    Need help feeding enzymes & food with spoons

    I was just typing a response to your post and then noticed that it was from a year ago! So, instead, I'll just say that I've got an infant now with CF (who still takes her enzymes with no issues). I was wondering if you are in the Denver area?
  7. B

    Need help feeding enzymes & food with spoons

    I was just typing a response to your post and then noticed that it was from a year ago! So, instead, I'll just say that I've got an infant now with CF (who still takes her enzymes with no issues). I was wondering if you are in the Denver area?
  8. B

    Need help feeding enzymes & food with spoons

    I was just typing a response to your post and then noticed that it was from a year ago! So, instead, I'll just say that I've got an infant now with CF (who still takes her enzymes with no issues). I was wondering if you are in the Denver area?
  9. B

    Alternative Medicine

    I'm giving Brigit Mucolyxir on my own - her doctor doesn't know yet, but I'll tell him at our next visit. I have found the following websites that have information about Mucolyxir (I looked these up a while ago for a friend): <a target=_blank class=ftalternatingbarlinklarge...
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    Alternative Medicine

    When it comes to inhaled substances, I'd agree that the hypertonic saline is probably about as good as it gets in the western realm and I would certainly use it if Brigit shows signs of developing any problems at all - if her doc will allow it (it seems they have a different set of rules for...
  11. B

    Alternative Medicine

    I also have an infant with CF. She's just over 6 months old - how old is yours? She has not developed any lung issues but is pancreatic insufficient - no function whatsoever. Are they actually trying to put your child on a nebulizer with no lung issues? Weird. I'm a just-say-no to western...
  12. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? Oh, I forgot the nutrition question - how does your husband tolerate grains? Have you ever tried amaranth or quinoa? Both of these are high in protein and so much better than consuming wheat...
  13. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? Oh, I forgot the nutrition question - how does your husband tolerate grains? Have you ever tried amaranth or quinoa? Both of these are high in protein and so much better than consuming wheat...
  14. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? Oh, I forgot the nutrition question - how does your husband tolerate grains? Have you ever tried amaranth or quinoa? Both of these are high in protein and so much better than consuming wheat...
  15. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? Oh, I forgot the nutrition question - how does your husband tolerate grains? Have you ever tried amaranth or quinoa? Both of these are high in protein and so much better than consuming wheat...
  16. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? Oh, I forgot the nutrition question - how does your husband tolerate grains? Have you ever tried amaranth or quinoa? Both of these are high in protein and so much better than consuming wheat...
  17. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? I hardly have the experience to comment as my infant is just 6 months old and so I'm at the beginning of my learning curve. HOWEVER, I've come upon a product called Mucolyxir (salmon DNA)...
  18. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? I hardly have the experience to comment as my infant is just 6 months old and so I'm at the beginning of my learning curve. HOWEVER, I've come upon a product called Mucolyxir (salmon DNA)...
  19. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? I hardly have the experience to comment as my infant is just 6 months old and so I'm at the beginning of my learning curve. HOWEVER, I've come upon a product called Mucolyxir (salmon DNA)...
  20. B

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this???

    what are the best foods to eat with CF, that won't aggrivate the GI issues that come along with this??? I hardly have the experience to comment as my infant is just 6 months old and so I'm at the beginning of my learning curve. HOWEVER, I've come upon a product called Mucolyxir (salmon DNA)...
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