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I have heard that floating poop is common with people with cf. I have heard that it is the oil that is not being digested that makes it float. Do only people that are pancrease insuficent have problems with this? Any info about this would be helpful. TMI is not a problem. I think at this...

Needless to say we did not have a very good memorial day weekend. I took Maritza in to the walk in clinic on sunday and the doctor there told me she had a cold and that I was overmedicating her. I did not listen to him and I had her pediatrician paged when I got home. I finaly talked to her at...

1 Johns Hopkins Hospital, Baltimore 30 points in 15 specialties 2 Mayo Clinic, Rochester, Minn. 29 points in 15 specialties 3 UCLA Medical Center, Los Angeles 25 points in 15 specialties 4 Cleveland Clinic 25 points in 13 specialties 5 Massachusetts General Hospital, Boston 23...

1 Johns Hopkins Hospital, Baltimore 30 points in 15 specialties 2 Mayo Clinic, Rochester, Minn. 29 points in 15 specialties 3 UCLA Medical Center, Los Angeles 25 points in 15 specialties 4 Cleveland Clinic 25 points in 13 specialties 5 Massachusetts General Hospital, Boston...

Last week I called Ambry to get a test kit. I took it with me to the doctors today and she asked me what she had to fill out and she even put down it was for diagnostic reasons even thou it is for carrier testing so that my insurance will cover most of it. Now all I have to do is wait and see...

I have seen a lot of people asking about the cost of genetic testing, I being one of them. I just got a price for the ambry amplified and a statement showing how much my daughters sweat test was. I'm not sure if this is a problem or not but I thought I would share with everyone how much and...

I am going to my doctor on monday and I want to ask her for genetic testing for me. I dont realy think that I have cf but I do think that my daughter does and she does not have her apt with the pulm. until july so that would be the soonest that she would be able to get the testing and I dont...

My daughter is using flovent inhaler right now and she is sick again and is also doing albuteral in her neb. Should I do the albuteral first or do the flovent? She is getting the flovent 2xdaily right now and today I started her on the albuteral again. I have never been told in what order to do...

I have a few questions about vitamin k difficency. My daughter who just turned one is being tested for CF. By that I mean we have had a negative sweat test and we are now waiting for genetic testing to be ordered. Some days I am sure she has it despite a 10 on her sweat test and other days I...

I have a few questions about vitamin k difficency. My daughter who just turned one is being tested for CF. By that I mean we have had a negative sweat test and we are now waiting for genetic testing to be ordered. Some days I am sure she has it despite a 10 on her sweat test and other days I...

Maritza was just switched from pulmocort to flovent yesterday. I went to the pharmacy to get it and the price is just outragous. They want $60 for an airchamber which is just a plastic tube! That is on top of the $30 copay I will have every month (or untill they change her med's again)for the...

My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff? My daughters ped...

My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff? My daughters ped...

My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?

Cystic Fibrosis has just came up as a possible explination of why my 11 month old daughter is alway sick. I have been reading this forum for about 3hrs now and I have a lot of questions that I am hoping you guys can help me with. First let me give you a heath history of my daughter. When she...