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OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time...

Sorry if this is TMI but.... I recently got my stool elastase results and they show that I'm pancreatic sufficient, in the normal range. My entire life I've had digestive issues though. Irritable Bowel Syndrome, acid reflux, GERD, 3-4 BMs a day, occasional severe constipation (nothing...

I find it hard to kick my butt in gear and get things done that I should be doing. And then when you wake up at 3am and have a major panic attack about the undone stuff and can't get back to sleep, that should be enough to get you out of bed and doing the stuff you should be doing, but...

My neb hose gets moisture inside it. I think this is because it's down in the basement where it's pretty cool in the house. The compressor (Pari ProNeb Ultra - only a few months old) gets the hose air a bit warmed up after a few minutes into my neb session. So I'm thinking this is...

Anyone had one? I just had one today for both liquids and solids. Basically they feed you radioactive stuff and then 'watch' how it goes through your digestive system. The liquid one took about 1/2 hour. The stuff I drank had no taste. For the solid test they fed me eggs and toast w/ jelly...

Ever since I started going to the CF center my morning ritual is getting more involved. <img src=""> Tomorrow I start Hypertonic saline in addition to Xopenex and Pulmozyme and 20 mins on the exercise bike. Usually after all that, I grab B'Fast with my froo-froo AM coffee - ie Hit the...

I know lots of you have been in for "TuneUps" several times a year. I was wondering what in your specific history of CF has led your doctor to prescribe that kind of treatment. Having only been recently DXd with CF I've never been on IV antibiotics before. I'm curious why the doctors think it...

We're going to get my daughter tested for CF by Ambry. She has no symptoms of it at age 13. But for peace of mind I need to get the testing done, even if it means paying for it out of pocket. The CF clinic that I go to is going to take care of the testing paperwork etc... I was wondering how...

When jogging through the archives I saw a few posts that mentioned the Ph of CFers and the fact that we tend to have an acidic environment inside our bodies. There was references to studies in the 70s about sodium bicorbonate (baking soda??) for improved fat absorption. There are also several...

I'm a geek. I admit it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I plotted up my FEV1% from all the PFT's I've had over the years. My first one was back in 1980 when I was a teenager. Over the last 3 decades I've gone down about 10% per decade (rough estimate). When...

It seems like there are a lot of people with ATypical CF. Sort of makes me think it's a lot more typical than not. <img src="i/expressions/face-icon-small-smile.gif" border="0"> With a growing population of adult CFers DXd as adults it would seem that Atypical CF is becoming more prevalent...

Hi everyone, I was DX a few months ago with genetic testing by Ambry. I've had mild symptoms all my life. Chronic cough & frequent Bronchitis & lung infections (never enough to put me on IV Antibiotics) and some mild GI issues. As a kid they tested me for all sorts of things but never came...