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Hi! I am the mom to a 6 yr. old son with CF... Anyway, I wanted to see if anyone has heard of how this new terrible respiratory virus that is going around the MidWest might affect CF Patients? I am trying not to freak out about it, but I am so concerned... I called my son's team today and they...

Hi! I was wondering if anyone has heard what is going on with the clinical trial for the combo of the Kalydeco/VX-809 for kids ages 6 and up. Our hospital was chosen as one of the sites and my son's doctor had mentioned it a few months ago... I followed up with her about it today and she said...

Hi, I wanted you to know that my little boy was in the hospital for two weeks when he was 10 weeks, right after he was diagnosed (we didn't have the screening in our state at that time). He cultured MRSA and was skin and bones. His doctor and nurses have now told us that he was one of the...

Hi, I wanted you to know that my little boy was in the hospital for two weeks when he was 10 weeks, right after he was diagnosed (we didn't have the screening in our state at that time). He cultured MRSA and was skin and bones. His doctor and nurses have now told us that he was one of the...

Hi, <br /> <br />I wanted you to know that my little boy was in the hospital for two weeks when he was 10 weeks, right after he was diagnosed (we didn't have the screening in our state at that time). He cultured MRSA and was skin and bones. <br /> <br />His doctor and nurses have now told us...

Hi! My son is only two, but I was just wondering how you get to do Make A WIsh.. Of course he won't be making a wish for a few more years, but I was just curious how it all works. Thanks!

Hi! My son is only two, but I was just wondering how you get to do Make A WIsh.. Of course he won't be making a wish for a few more years, but I was just curious how it all works. Thanks!

Hi! <br /> <br />My son is only two, but I was just wondering how you get to do Make A WIsh.. Of course he won't be making a wish for a few more years, but I was just curious how it all works. <br /> <br />Thanks!

Hi, I think it is awesome he is so young and participating in the trial for Denufesol! I have heard really good things about it from my son's doctor. Good luck and thank you!!!

Hi, I think it is awesome he is so young and participating in the trial for Denufesol! I have heard really good things about it from my son's doctor. Good luck and thank you!!!

Hi, <br /> <br />I think it is awesome he is so young and participating in the trial for Denufesol! I have heard really good things about it from my son's doctor. Good luck and thank you!!!

Hi, I felt the same as you when my son cultured pseudo for the first time about a year ago... I was devastated! <img src="i/expressions/face-icon-small-sad.gif" border="0"> I felt like we did everything possible to prevent it, and even that didn't work! Since then he has been doing just fine...

Hi, I felt the same as you when my son cultured pseudo for the first time about a year ago... I was devastated! <img src="i/expressions/face-icon-small-sad.gif" border="0"> I felt like we did everything possible to prevent it, and even that didn't work! Since then he has been doing just fine...

Hi, <br /> <br />I felt the same as you when my son cultured pseudo for the first time about a year ago... I was devastated! <img src="i/expressions/face-icon-small-sad.gif" border="0"> I felt like we did everything possible to prevent it, and even that didn't work! <br /> <br />Since then he...

I am so glad you asked this question... I am 13 weeks pregnant and also usually have my 2 year old sit on my lap during treatments. I am happy to know that it doesn't sound like there should be any effects from the vibrations. Thank you for asking, and good luck with the rest of your pregnancy!

I am so glad you asked this question... I am 13 weeks pregnant and also usually have my 2 year old sit on my lap during treatments. I am happy to know that it doesn't sound like there should be any effects from the vibrations. Thank you for asking, and good luck with the rest of your pregnancy!

I am so glad you asked this question... I am 13 weeks pregnant and also usually have my 2 year old sit on my lap during treatments. I am happy to know that it doesn't sound like there should be any effects from the vibrations. Thank you for asking, and good luck with the rest of your pregnancy!

We do overnight feeds and Logan has a Mickey button... We do 1 can of Ensure, and 1 1/2 cans of Pediasure... It comes out to be about 780 calories overnight. He has gained a lot since we started, and we are happy with the results!

We do overnight feeds and Logan has a Mickey button... We do 1 can of Ensure, and 1 1/2 cans of Pediasure... It comes out to be about 780 calories overnight. He has gained a lot since we started, and we are happy with the results!

We do overnight feeds and Logan has a Mickey button... We do 1 can of Ensure, and 1 1/2 cans of Pediasure... It comes out to be about 780 calories overnight. He has gained a lot since we started, and we are happy with the results! <br />