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I am really sad to let you all know that Jamey "retired his gloves" on June 3, 2006. He was 29 years old and died at Barnes Jewish Hospital in St. Louis, Missouri. I will never forget him. We met last Feb. 2005 in this forum. Here is his analogy again. Not Your Ordinary Boxing Match...

Hi guys. My friend, Ginny, lost her daughter, Cody, on April 28, 2005 to CF. It has been a hard year for the family and I know it has helped when she's heard from the "CF Community". I've posted Cody's website in the past, but here it is again. <a target=_blank...

I know each person is different so the answers will vary..... but how old were you when you started doing your own treatments. Putting medicine in nebulizer and doing your vest all by yourself. Also, putting medicine (Tobi, Pulmozyne, Hypertonic) in neb and letting it sit in neb in...

Hayley, 11yrs, is on Tobi every other month. She does Tobi in nebulizer while doing her vest. My friend Jamey, 28yrs w/ CF, said his doctor told him to neb Tobi after Vest treatment. Vest opens things up and don't want to cough Tobi out. It does make sense. Wondering what you guys do. Angie

Hi All. Just wanted to post Cody's Website again. If you havent checked it out please do. Cody was a beautiful, smart young woman (23 yrs) who passed away April 2005 from CF. Her mother, Ginny, has been VERY touched by those of you that have sent messages to her. Ginny says, "it does her heart...

Hi All. Just wanted to post Cody's Website again. If you havent checked it out please do. Cody was a beautiful, smart young woman (23 yrs) who passed away April 2005 from CF. Her mother, Ginny, has been VERY touched by those of you that have sent messages to her. Ginny says, "it does her...

Hi all. Wanted to share this website with you all. It is a memorial to Cody, a beautiful young woman w/ CF (23 yrs) who passed away April 2005. Her goal was to graduate college and she passed away 11 days before. Her family is putting together a fundraising event in Bozeman, MT on 5/12/06 and...

Not Your Ordinary Boxing Match Having several fatalities under its belt Cystic Fibrosis remains the undefeated champion. Life with c.f. is like a boxing match. except the rounds last for months and the fight goes on for years, not just an hour or two. Like a boxer training before and after...

I just wanted to let you all know that Jamey ....jinxedn76.... is in the hospital (Barnes Jewish) and is not doing good. The CO2 in his body is really high and he has on a CPAP?? Mask that's sealed over your face. Jamey is the one who wrote the CF anology titled "Not Your Ordinary Boxing...

Hi. My 10 yr old step daughter is currently taking Cipro. We are going on a cruise next week and her CF doc wanted to put her on this before we go. She's on the 2nd week of taking it. 2 per day. Anyway, her eyes are really bloodshot. I know there can be side effects like sun sensitive skin...

Hi. This is my first year participating in the Great Strides Walk. (My 10 yr old step daughter has CF) I've been raising money via a letter campaign. I mailed letter to family, friends and clients. Also, I've gone to many of our local businesses and left them with the letter. I've mailed/given...

Hi. This is my first year participating in the Great Strides Walk. (My 10 yr old step daughter has CF) I've been raising money via a letter campaign. I mailed letter to family, friends and clients. Also, I've gone to many of our local businesses and left them with the letter. I've...

Is having an outtie bellybutton a common thing with CF ? Angie (stepmom to 10 yr w/ CF/CFRD)

Our family is planning a cruise to Alaska - June 05. I was wondering if there are any CF health concerns on a cruise? Do you bring your Vest with you when you travel? Do you insure it when flying or in our case on cruise? Thanks! Angie (Stepmom to 10 yr old CF/CFRD)

Anyone....We're online now if u want to join.... noone is ever in here<img src="i/expressions/face-icon-small-frown.gif" border="0">

Does anyone take acidophilus? I would think that with always being on an antibiotic this would help. Acidophilius is a type of friendly bacteria that assists in the digestion of proteins and has antifungal properties, aids digestion and enhances the absorbtion of nutients. Cant antibiotics give...

Has anyone out there had any experiences with autogenic breathing or healing through guided imagery? If so could you tell me about it? Thanks.