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Hi there. Hoping someone can help me. Just arrived in Mexico and realizibg that I dont understand the new vest 105 from Hillrom with washable pink jacket. How do the tubes go in to the jacket? My previous jacket had little parts thst jetted out to hook the tubes on to. This jacket just has...

post nasal drip - i take an intranasal steroid as well as an anti-histamine. if it gets really bad, i like the strongest mints i can possibly find and/or really hot tea

Havoc - it seems that there are clear studies that show CFRD and lower lung function are often found together: "Decreased Lung Function in Female but not Male Subjects With Established Cystic Fibrosis - Related Diabetes" http://care.diabetesjournals.org/content/28/7/1581.short (who wants to...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> I can't find any concrete information that says that increased blood serum translates to increased airway surface liquid glucose. In fact, just the opposite. There is a facilitated diffusion mechanism that clears glucose...

HUGS! i just don't want someone to go through the lung damage i did as a result of undiagnosed cfrd. it's no fun.... take care

If your diary shows highs, then there are issues. As I recall, you have been keeping a diary the past week or so. There is nothing magical about the OGTT - in fact, it's less accurate than keeping a 2 week diary. Highs are highs. I passed my OGTT with flying colors 3 months in a row - yet I...

i don't care if someone has been working with CF patients for 500 years, you don't have a 50% chance of having a kid with CF unless one parent has CF and the other is a CF gene carrier. facts are facts. maybe you heard the counselor wrong

So sorry to hear this. Do you support him with money/food/shelter? As a parent with an adult child, you are not obligated to provide these things for him - and if he chooses to not live by your rules (aka not drinking alcohol, or maybe not going to doc appts, etc), you shouldn't be providing...

I am so so so thrilled for you. YEY! <img src="i/expressions/face-icon-small-smile.gif" border="0"> See, you NEVER know unless you try! FIGHT ON

what was your A1c, btw? the older your get, the higher the % of CFer's with CFRD

I am a strong believer that the ONLY accurate way to diagnose CFRD is doing a blood sugar diary, testing 4-5x/day, 2 hours after your 1st bite of a meal. A1C's can be artificially low if you are having low's as well as your high's (A1C's are an average of your blood sugars). Ask your doc to...

has your daughter had a full Ambry genetic test? Testing for all known CF mutations (1800+ genes)? Or just a basic panel?

there can be lung damage even if your FEV1 is 100+%. prevention is always better than treating something after it's occurred. My FEV1 was over 90% until just a year ago (I'm 30) and i KNOW that all the preventative treatment I did as achild and young adult has given me many more years of life.

Sorry to be OT, but Misty I just read on another thread your kid is 6 and not doing any breathing treatments? CF is all about prevention, and I'm shocked your kid isn't on any type of preventative treatments. Lungs can be damaged prior to FEV1 (lung function) going down, so doing treamtents...

See, like I've said a million times, you do'nt konw what your insurance will say UNLESS YOU TRY. This is such amazing news. You are one of MANY who have been able to get this drug off label. GOOD FOR YOU for just trying. I wish more parents were like you. HUGS!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allansarmy</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> If you don't have health insurance in the US, Vertex will give you the medication under their assistance program. If your co-pay...

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Each employer has their own contract with each insurance company. So if I have Humana, my employer's contract may be liberal and may let Kaly slide through - but if your employer has a less expensive plan, there may be more road blocks. Each contract is different. Instead of letting your doc...

I go to a church where holding hands or shaking hands several times during mass is common practice. I simply tell people that I'm sick and I don't want to get them sick. 9 times out of 10, people say "oh thank you! hope you feel better" and that's that. I sometimes have a few people who say "oh...