Search results

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    Kalydeco/lumacaftor for DDF508 results are in.

    Its stories like these that make me tear up out of joy. Please, keep the reports from the patients coming. I am more than curious to find out more about people's experiences. Good times are coming for us!
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    Not coughing enough blood for a bronchoscopy

    Hi everyone, I'll make it short: I've been coughin blood regularly for about 3 weeks now. It's not much, more like a 50/50 mix or even less. What concerns me is that its just been so regularly. This year I had like a 3 month break from coughing blood and now it started again. In the past few...
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    I cough blood when I drink alcohol

    Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...
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    I cough blood when I drink alcohol

    Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...
  5. A

    I cough blood when I drink alcohol

    Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...
  6. A

    I cough blood when I drink alcohol

    Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...
  7. A

    I cough blood when I drink alcohol

    Hey Guys, <br /> <br />I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. <br />Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff...
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    What will VX-809 do for me?

    Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...
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    What will VX-809 do for me?

    Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...
  10. A

    What will VX-809 do for me?

    Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...
  11. A

    What will VX-809 do for me?

    Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...
  12. A

    What will VX-809 do for me?

    Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^ <br...
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    What will VX-809 do for me?

    Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...
  14. A

    What will VX-809 do for me?

    Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...
  15. A

    What will VX-809 do for me?

    Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...
  16. A

    What will VX-809 do for me?

    Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...
  17. A

    What will VX-809 do for me?

    Hey Guys, <br /> <br />just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. <br /> <br />As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? <br /> <br />Will it...
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    FEV1 worse then it should be

    Hey guys, sorry I didnt write an answer for so long but I had to work all week and I was just too exhausted. Those Acidolpholus capsules I actually did take them for a while that one time. I will try to start taking them again. Sorry Jbenjamin152 I'm not familiar with the word PLUGS in...
  19. A

    FEV1 worse then it should be

    Hey guys, sorry I didnt write an answer for so long but I had to work all week and I was just too exhausted. Those Acidolpholus capsules I actually did take them for a while that one time. I will try to start taking them again. Sorry Jbenjamin152 I'm not familiar with the word PLUGS in...
  20. A

    FEV1 worse then it should be

    Hey guys, sorry I didnt write an answer for so long but I had to work all week and I was just too exhausted. Those Acidolpholus capsules I actually did take them for a while that one time. I will try to start taking them again. Sorry Jbenjamin152 I'm not familiar with the word PLUGS in...
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