Search results

  1. F

    Lost your identity?

    I was just wondering if anyone has felt like they lost their identity since their transplant. Before my transplant I was the super skinny one, the sick one, the one who has perservered and accomplished what I set my mind too despite having this horrible disease,  now I am just like everyone...
  2. F

    preventing DIOS

    Hey all, I am pretty prone to getting DIOS and I was wondering if anyone had any suggestions on preventing them. I have some adhesions from abdominal surgery I had when I was a baby so that doesnt help my situation. I already take miralax twice a day, colace twice a day and senna at night...
  3. F

    medication claim denied

    Hey everyone, I got a phone call from my transplant coordinator today saying that my insurance will not pay for my cellcept. She asked them why they would pay for it initially after my transplant but not now and they responded that as of 2010 they will not pay for it. My coordinator even...
  4. F

    swelling after surgery

    Hey everyone, I got my transplant a month ago today. Going into the operating room I was 98lbs and three days later I was almost 120lbs from fluid retention. I was started on lasix which helped with the swelling but it was stopped when I was discharged. I have had to call the doctor twice in...
  5. F

    weight gain after transplant

    Hey everybody, I was just wondering how much weight everyone put on after transplant. My docs are saying that immediately after surgery I am going to have a feeding tube, but that within a year they are going to be telling me to watch my weight. I have to confess, I am little anxious about...
  6. F

    high risk donor

    Hello all, I am new to this site and am hoping that you guys could help me with a tough decision I have to make. I am 27 and have recently been placed on the transplant list. Yesterday, I recieved a phone call from my center asking if I would consider a high risk donor (possible exposure to...
Top