My son has had treatments since he was 4weeks old. For some reason this past month he will not be still for them, he doesn't want to take his creon either. I assume it has something to do with him seeing mommys belly is bigger and something kicks him every now and then. <img src="i/expressions/face-icon-small-confused.gif" border="0"> He now kicks, hits, and cries when its time for a neb treatment. We've gotten a new neb that he picked out (its a penguin) new neb kit and mask. We have big brother sit with him during treatments, play games or with toys. He picks out his meals (from my preselected menu) he will eat just fine, its just hard to get him to take his pills first. I'm not sure what else to do. Does anyone have any ideas or suggestions?
15month old treatment troubles......
- Thread starter okiesgirl
- Start date
My son has had treatments since he was 4weeks old. For some reason this past month he will not be still for them, he doesn't want to take his creon either. I assume it has something to do with him seeing mommys belly is bigger and something kicks him every now and then. <img src="i/expressions/face-icon-small-confused.gif" border="0"> He now kicks, hits, and cries when its time for a neb treatment. We've gotten a new neb that he picked out (its a penguin) new neb kit and mask. We have big brother sit with him during treatments, play games or with toys. He picks out his meals (from my preselected menu) he will eat just fine, its just hard to get him to take his pills first. I'm not sure what else to do. Does anyone have any ideas or suggestions?
My son has had treatments since he was 4weeks old. For some reason this past month he will not be still for them, he doesn't want to take his creon either. I assume it has something to do with him seeing mommys belly is bigger and something kicks him every now and then. <img src="i/expressions/face-icon-small-confused.gif" border="0"> He now kicks, hits, and cries when its time for a neb treatment. We've gotten a new neb that he picked out (its a penguin) new neb kit and mask. We have big brother sit with him during treatments, play games or with toys. He picks out his meals (from my preselected menu) he will eat just fine, its just hard to get him to take his pills first. I'm not sure what else to do. Does anyone have any ideas or suggestions?
My son has had treatments since he was 4weeks old. For some reason this past month he will not be still for them, he doesn't want to take his creon either. I assume it has something to do with him seeing mommys belly is bigger and something kicks him every now and then. <img src="i/expressions/face-icon-small-confused.gif" border="0"> He now kicks, hits, and cries when its time for a neb treatment. We've gotten a new neb that he picked out (its a penguin) new neb kit and mask. We have big brother sit with him during treatments, play games or with toys. He picks out his meals (from my preselected menu) he will eat just fine, its just hard to get him to take his pills first. I'm not sure what else to do. Does anyone have any ideas or suggestions?
My son has had treatments since he was 4weeks old. For some reason this past month he will not be still for them, he doesn't want to take his creon either. I assume it has something to do with him seeing mommys belly is bigger and something kicks him every now and then. <img src="i/expressions/face-icon-small-confused.gif" border="0"> He now kicks, hits, and cries when its time for a neb treatment. We've gotten a new neb that he picked out (its a penguin) new neb kit and mask. We have big brother sit with him during treatments, play games or with toys. He picks out his meals (from my preselected menu) he will eat just fine, its just hard to get him to take his pills first. I'm not sure what else to do. Does anyone have any ideas or suggestions?
I think most kids go through this, at this age, and until they reach school age! LOL. Not, not really, but it is a common phase.
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
I think most kids go through this, at this age, and until they reach school age! LOL. Not, not really, but it is a common phase.
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
I think most kids go through this, at this age, and until they reach school age! LOL. Not, not really, but it is a common phase.
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
I think most kids go through this, at this age, and until they reach school age! LOL. Not, not really, but it is a common phase.
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
Good luck!
I think most kids go through this, at this age, and until they reach school age! LOL. Not, not really, but it is a common phase.
<br />
<br />You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
<br />
<br />As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
<br />
<br />This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
<br />
<br />Good luck!
<br />
<br />You are doing good things already. You might also try a basket of special and new toys that only comes out at treatment time. Or a new DVD or something. We had some hooked on phonics dvd's that arrived in the mail during out "tough" spell, and they did the trick for about 3 months! I can still hear those annyoing songs!
<br />
<br />As far as getting him to take the enzyme, we found that Emily had an aversion to the texture of the beads at around that age. There was something she didn't like about the feeling of the beads in her mouth (or the taste, maybe?) followed by food. We found that if she ate most of her meal first, THEN did the enzymne, she was fine. I know that we are always told enzyme first, but this has worked for her, and, in fact, seemed to BOOST the effectiveness of the enzyme. Otherwise, she was taking it, then not getting around to eating for half an hour becasue she was throwing a fit that we made her take her enzymes!
<br />
<br />This will pass. Then start up again around age 3. Then pass. Then start up around age 6...
<br />
<br />Good luck!
PedsNP2007
New member
Tami,
"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.
I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads )... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me.
I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads
)... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me. I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
PedsNP2007
New member
Tami,
"Until they reach school age"... make that "Until they reach adulthood" I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.
I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads )... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me.
I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads
)... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me. I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
PedsNP2007
New member
Tami,
"Until they reach school age"... make that "Until they reach adulthood" I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.
I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads )... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me.
I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads
)... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me. I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
PedsNP2007
New member
Tami,
"Until they reach school age"... make that "Until they reach adulthood" I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.
I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads )... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me.
I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
So keep up the good work MOMS (and dads
)... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me. I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
Jenn
31 yo cf
PedsNP2007
New member
Tami,
<br />"Until they reach school age"... make that "Until they reach adulthood" I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.
<br />I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
<br />
<br />So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
<br />
<br />So keep up the good work MOMS (and dads )... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me.
<br />
<br />I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
<br />
<br />Jenn
<br />31 yo cf
<br />"Until they reach school age"... make that "Until they reach adulthood"
I heard I was a challenging teenager myself, maybe even considered a challenging adult too, according to my parents haha.<br />I think the hard thing of being a teenager is the struggle for independence. Having a chronic illness is difficult to comprehend. CF is hard to grasp as a teenager especially if you are "healthy." Doing treatments to slow down the progression of CF is frustrating because skipping treatments sometimes doesn't cause immediate problems (the cause and effect situation is usually not there). All teenagers want to do is be normal and not bring attention to how different they are.
<br />
<br />So I am always grateful for my parents for not giving up on me and making me do my treatments. My mom did manual CPT until I was in highschool and finally the vest came along. Her dedication to us is amazing. I couldn't imagine doing 2-3 cpt sessions PER child (3 of us with CF). No wonder her wrists cause her trouble now.
<br />
<br />So keep up the good work MOMS (and dads
)... your kids may not understand now, but the understanding will come around. I now realize what prevention has done for me. <br />
<br />I was a lucky teenager in which oral abx helped me until my first hospitalization when I went away to college. I realize I am one of the lucky few who lasted until 18 yo.
<br />
<br />Jenn
<br />31 yo cf