4 month w/ CF no symptoms

[Ratatosk]

Being that DS was born with a bowel obstruction caused by meconium illeus -- thick sticky mucus poo, I guess my concerns were always if he was getting enough enzymes and fears that he might get another bowel obstruction. Sometimes they can get some irritation on their bottoms due to the enzymes.

As for adminstering them we'd put the enzyme beads on a spoonful of babyfood bananas, shove them in his mouth quickly followed by his bottle.

 

[Ratatosk]

Being that DS was born with a bowel obstruction caused by meconium illeus -- thick sticky mucus poo, I guess my concerns were always if he was getting enough enzymes and fears that he might get another bowel obstruction. Sometimes they can get some irritation on their bottoms due to the enzymes.

As for adminstering them we'd put the enzyme beads on a spoonful of babyfood bananas, shove them in his mouth quickly followed by his bottle.

 

[Ratatosk]

Being that DS was born with a bowel obstruction caused by meconium illeus -- thick sticky mucus poo, I guess my concerns were always if he was getting enough enzymes and fears that he might get another bowel obstruction. Sometimes they can get some irritation on their bottoms due to the enzymes.

As for adminstering them we'd put the enzyme beads on a spoonful of babyfood bananas, shove them in his mouth quickly followed by his bottle.

 

[Ratatosk]

Being that DS was born with a bowel obstruction caused by meconium illeus -- thick sticky mucus poo, I guess my concerns were always if he was getting enough enzymes and fears that he might get another bowel obstruction. Sometimes they can get some irritation on their bottoms due to the enzymes.

As for adminstering them we'd put the enzyme beads on a spoonful of babyfood bananas, shove them in his mouth quickly followed by his bottle.

 

[Ratatosk]

Being that DS was born with a bowel obstruction caused by meconium illeus -- thick sticky mucus poo, I guess my concerns were always if he was getting enough enzymes and fears that he might get another bowel obstruction. Sometimes they can get some irritation on their bottoms due to the enzymes.
<br />
<br />As for adminstering them we'd put the enzyme beads on a spoonful of babyfood bananas, shove them in his mouth quickly followed by his bottle.

 

[ashmomo]

Hi, my daughter was born with a bowel obstruction also. It took over a week to diagnose. As soon as she was diagnosed they put her on enzymes in the hospital. She was born small (5lbs, 6oz). She has been on enzymes since and has continued to slowly gain weight. She is now 4 and weighs just over 30lbs. They still want her to be bigger, above the 50th percentile, she is in the 25th. She has always been very good at taking her enzymes, even as a baby. We have always put them on a spoon of applesauce and she takes them very well. Good luck!

 

[ashmomo]

Hi, my daughter was born with a bowel obstruction also. It took over a week to diagnose. As soon as she was diagnosed they put her on enzymes in the hospital. She was born small (5lbs, 6oz). She has been on enzymes since and has continued to slowly gain weight. She is now 4 and weighs just over 30lbs. They still want her to be bigger, above the 50th percentile, she is in the 25th. She has always been very good at taking her enzymes, even as a baby. We have always put them on a spoon of applesauce and she takes them very well. Good luck!

 

[ashmomo]

Hi, my daughter was born with a bowel obstruction also. It took over a week to diagnose. As soon as she was diagnosed they put her on enzymes in the hospital. She was born small (5lbs, 6oz). She has been on enzymes since and has continued to slowly gain weight. She is now 4 and weighs just over 30lbs. They still want her to be bigger, above the 50th percentile, she is in the 25th. She has always been very good at taking her enzymes, even as a baby. We have always put them on a spoon of applesauce and she takes them very well. Good luck!

 

[ashmomo]

Hi, my daughter was born with a bowel obstruction also. It took over a week to diagnose. As soon as she was diagnosed they put her on enzymes in the hospital. She was born small (5lbs, 6oz). She has been on enzymes since and has continued to slowly gain weight. She is now 4 and weighs just over 30lbs. They still want her to be bigger, above the 50th percentile, she is in the 25th. She has always been very good at taking her enzymes, even as a baby. We have always put them on a spoon of applesauce and she takes them very well. Good luck!

 

[ashmomo]

Hi, my daughter was born with a bowel obstruction also. It took over a week to diagnose. As soon as she was diagnosed they put her on enzymes in the hospital. She was born small (5lbs, 6oz). She has been on enzymes since and has continued to slowly gain weight. She is now 4 and weighs just over 30lbs. They still want her to be bigger, above the 50th percentile, she is in the 25th. She has always been very good at taking her enzymes, even as a baby. We have always put them on a spoon of applesauce and she takes them very well. Good luck!

 

[SarahProcter]

We are in almost the same situation. Our Bridget is 6 months old, very long and lean (above 95th percentile for height, 50th percentile for weight, which means she's got a very low BMI). Pancreatic sufficient, borderline sweat test value, genetic diagnosis of CF. Our CF docs have decided to not put her on enzymes at this time, partly I think because I was very disinclined to do so early ON as I feared a negative impact on our breastfeeding relationship. We are about to do the 6 month retest for the sweat test (wish us luck!) and will re-evaluate her weight and growth at that visit. But since her fecal elastase was perfectly normal (>500) the doctors did not feel that giving her more enzymes was important. I'll let you know if they change their minds at our next appt next week! Now that we have started her on solids I would be less hesitant to start her on enzymes as well if they seem less pleased with her recent weight gains.

 

[SarahProcter]

We are in almost the same situation. Our Bridget is 6 months old, very long and lean (above 95th percentile for height, 50th percentile for weight, which means she's got a very low BMI). Pancreatic sufficient, borderline sweat test value, genetic diagnosis of CF. Our CF docs have decided to not put her on enzymes at this time, partly I think because I was very disinclined to do so early ON as I feared a negative impact on our breastfeeding relationship. We are about to do the 6 month retest for the sweat test (wish us luck!) and will re-evaluate her weight and growth at that visit. But since her fecal elastase was perfectly normal (>500) the doctors did not feel that giving her more enzymes was important. I'll let you know if they change their minds at our next appt next week! Now that we have started her on solids I would be less hesitant to start her on enzymes as well if they seem less pleased with her recent weight gains.

 

[SarahProcter]

We are in almost the same situation. Our Bridget is 6 months old, very long and lean (above 95th percentile for height, 50th percentile for weight, which means she's got a very low BMI). Pancreatic sufficient, borderline sweat test value, genetic diagnosis of CF. Our CF docs have decided to not put her on enzymes at this time, partly I think because I was very disinclined to do so early ON as I feared a negative impact on our breastfeeding relationship. We are about to do the 6 month retest for the sweat test (wish us luck!) and will re-evaluate her weight and growth at that visit. But since her fecal elastase was perfectly normal (>500) the doctors did not feel that giving her more enzymes was important. I'll let you know if they change their minds at our next appt next week! Now that we have started her on solids I would be less hesitant to start her on enzymes as well if they seem less pleased with her recent weight gains.

 

[SarahProcter]

We are in almost the same situation. Our Bridget is 6 months old, very long and lean (above 95th percentile for height, 50th percentile for weight, which means she's got a very low BMI). Pancreatic sufficient, borderline sweat test value, genetic diagnosis of CF. Our CF docs have decided to not put her on enzymes at this time, partly I think because I was very disinclined to do so early ON as I feared a negative impact on our breastfeeding relationship. We are about to do the 6 month retest for the sweat test (wish us luck!) and will re-evaluate her weight and growth at that visit. But since her fecal elastase was perfectly normal (>500) the doctors did not feel that giving her more enzymes was important. I'll let you know if they change their minds at our next appt next week! Now that we have started her on solids I would be less hesitant to start her on enzymes as well if they seem less pleased with her recent weight gains.

 

[SarahProcter]

We are in almost the same situation. Our Bridget is 6 months old, very long and lean (above 95th percentile for height, 50th percentile for weight, which means she's got a very low BMI). Pancreatic sufficient, borderline sweat test value, genetic diagnosis of CF. Our CF docs have decided to not put her on enzymes at this time, partly I think because I was very disinclined to do so early ON as I feared a negative impact on our breastfeeding relationship. We are about to do the 6 month retest for the sweat test (wish us luck!) and will re-evaluate her weight and growth at that visit. But since her fecal elastase was perfectly normal (>500) the doctors did not feel that giving her more enzymes was important. I'll let you know if they change their minds at our next appt next week! Now that we have started her on solids I would be less hesitant to start her on enzymes as well if they seem less pleased with her recent weight gains.

 

[sdelorenzo]

If it were me, I would start her on enzymes. Do you know her cf genes by chance? If they are commonly known to cause pancreatic insufficiently like delta 508, I would think enzymes should help. She is well below what is considered acceptable for a cf child (below 3%, right?)

My husband and I were also very thin as children and teenagers. I remember telling my childrens cf dr and GI dr this quite often when my daughter was a baby but they wouldn't listen. After years of struggling with my daughter's weight, I finally got it. I didn't matter what we weighed as kids it mattered that my daughter had a good weight. And yes she could gain weight and be above 50% even if we weren't. My daughter hung out around 20-25% bmi then dropped to -5% bmi when she turned 5. Then she got a feeding tube. I know that sounds scary to all you new moms but it really isn't...it is a huge blessing. She has been around 80% bmi for the past two years thankfully since receiving the night feedings. It is so hard to see them lose pounds when they get sick from virses when they are already too thin. The extra weight they have is important when they get sick.

Why not try the enzymes and see if it helps her gain weight. It is such a struggle to gain weight...why not use everything you can to see if that helps her?
Sharon, mom of Sophia, 7 and Jack, 5 both with cf,
Grant, three months no cf

 

[sdelorenzo]

If it were me, I would start her on enzymes. Do you know her cf genes by chance? If they are commonly known to cause pancreatic insufficiently like delta 508, I would think enzymes should help. She is well below what is considered acceptable for a cf child (below 3%, right?)

My husband and I were also very thin as children and teenagers. I remember telling my childrens cf dr and GI dr this quite often when my daughter was a baby but they wouldn't listen. After years of struggling with my daughter's weight, I finally got it. I didn't matter what we weighed as kids it mattered that my daughter had a good weight. And yes she could gain weight and be above 50% even if we weren't. My daughter hung out around 20-25% bmi then dropped to -5% bmi when she turned 5. Then she got a feeding tube. I know that sounds scary to all you new moms but it really isn't...it is a huge blessing. She has been around 80% bmi for the past two years thankfully since receiving the night feedings. It is so hard to see them lose pounds when they get sick from virses when they are already too thin. The extra weight they have is important when they get sick.

Why not try the enzymes and see if it helps her gain weight. It is such a struggle to gain weight...why not use everything you can to see if that helps her?
Sharon, mom of Sophia, 7 and Jack, 5 both with cf,
Grant, three months no cf

 

[sdelorenzo]

If it were me, I would start her on enzymes. Do you know her cf genes by chance? If they are commonly known to cause pancreatic insufficiently like delta 508, I would think enzymes should help. She is well below what is considered acceptable for a cf child (below 3%, right?)

My husband and I were also very thin as children and teenagers. I remember telling my childrens cf dr and GI dr this quite often when my daughter was a baby but they wouldn't listen. After years of struggling with my daughter's weight, I finally got it. I didn't matter what we weighed as kids it mattered that my daughter had a good weight. And yes she could gain weight and be above 50% even if we weren't. My daughter hung out around 20-25% bmi then dropped to -5% bmi when she turned 5. Then she got a feeding tube. I know that sounds scary to all you new moms but it really isn't...it is a huge blessing. She has been around 80% bmi for the past two years thankfully since receiving the night feedings. It is so hard to see them lose pounds when they get sick from virses when they are already too thin. The extra weight they have is important when they get sick.

Why not try the enzymes and see if it helps her gain weight. It is such a struggle to gain weight...why not use everything you can to see if that helps her?
Sharon, mom of Sophia, 7 and Jack, 5 both with cf,
Grant, three months no cf

 

[sdelorenzo]

If it were me, I would start her on enzymes. Do you know her cf genes by chance? If they are commonly known to cause pancreatic insufficiently like delta 508, I would think enzymes should help. She is well below what is considered acceptable for a cf child (below 3%, right?)

My husband and I were also very thin as children and teenagers. I remember telling my childrens cf dr and GI dr this quite often when my daughter was a baby but they wouldn't listen. After years of struggling with my daughter's weight, I finally got it. I didn't matter what we weighed as kids it mattered that my daughter had a good weight. And yes she could gain weight and be above 50% even if we weren't. My daughter hung out around 20-25% bmi then dropped to -5% bmi when she turned 5. Then she got a feeding tube. I know that sounds scary to all you new moms but it really isn't...it is a huge blessing. She has been around 80% bmi for the past two years thankfully since receiving the night feedings. It is so hard to see them lose pounds when they get sick from virses when they are already too thin. The extra weight they have is important when they get sick.

Why not try the enzymes and see if it helps her gain weight. It is such a struggle to gain weight...why not use everything you can to see if that helps her?
Sharon, mom of Sophia, 7 and Jack, 5 both with cf,
Grant, three months no cf

 

[sdelorenzo]

If it were me, I would start her on enzymes. Do you know her cf genes by chance? If they are commonly known to cause pancreatic insufficiently like delta 508, I would think enzymes should help. She is well below what is considered acceptable for a cf child (below 3%, right?)
<br />
<br />My husband and I were also very thin as children and teenagers. I remember telling my childrens cf dr and GI dr this quite often when my daughter was a baby but they wouldn't listen. After years of struggling with my daughter's weight, I finally got it. I didn't matter what we weighed as kids it mattered that my daughter had a good weight. And yes she could gain weight and be above 50% even if we weren't. My daughter hung out around 20-25% bmi then dropped to -5% bmi when she turned 5. Then she got a feeding tube. I know that sounds scary to all you new moms but it really isn't...it is a huge blessing. She has been around 80% bmi for the past two years thankfully since receiving the night feedings. It is so hard to see them lose pounds when they get sick from virses when they are already too thin. The extra weight they have is important when they get sick.
<br />
<br />Why not try the enzymes and see if it helps her gain weight. It is such a struggle to gain weight...why not use everything you can to see if that helps her?
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf,
<br />Grant, three months no cf