44/43 sweat test results.......lots of questions???????

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clawson5104

New member
hi, didn't get too many answers...............

just wondering about the vitamin problems with cf. i know it's typical. but do very many of cf'ers have issues with just some vitamins or all of the usual fat soluble vitamins. my wade isn't digesting vitamin A. the others were okay. so is this just a start of more symptoms , or is it possible for him to just have problems with this one? so that's why i was wondering if any of u had this too, or mainly all of the vitamins A,D,K .....etc. were a problem? thanks
 
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clawson5104

New member
hi, didn't get too many answers...............

just wondering about the vitamin problems with cf. i know it's typical. but do very many of cf'ers have issues with just some vitamins or all of the usual fat soluble vitamins. my wade isn't digesting vitamin A. the others were okay. so is this just a start of more symptoms , or is it possible for him to just have problems with this one? so that's why i was wondering if any of u had this too, or mainly all of the vitamins A,D,K .....etc. were a problem? thanks
 
C

clawson5104

New member
hi, didn't get too many answers...............

just wondering about the vitamin problems with cf. i know it's typical. but do very many of cf'ers have issues with just some vitamins or all of the usual fat soluble vitamins. my wade isn't digesting vitamin A. the others were okay. so is this just a start of more symptoms , or is it possible for him to just have problems with this one? so that's why i was wondering if any of u had this too, or mainly all of the vitamins A,D,K .....etc. were a problem? thanks
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>clawson5104</b></i>

yes, i am aware CF is progressive, wade is having mild symptoms now, and yes will probably be worse in some or all ways as he gets older. I know there are issues with fat soluble vitamins, but was wondering if any of you had issues with ONLY one, or do most of you have issues with all of them? thanks again</end quote></div>

In general I think we usually have problems with all of them, but there are a few of us that seem to struggle with some more then others. Myself, Jennifer and a few others have very low Vitamin D levels. I am not sure what causes the fluctuation in different vitamins except maybe our lifestyle & diets, but some can definitely have more issues with one than the others.
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>clawson5104</b></i>

yes, i am aware CF is progressive, wade is having mild symptoms now, and yes will probably be worse in some or all ways as he gets older. I know there are issues with fat soluble vitamins, but was wondering if any of you had issues with ONLY one, or do most of you have issues with all of them? thanks again</end quote></div>

In general I think we usually have problems with all of them, but there are a few of us that seem to struggle with some more then others. Myself, Jennifer and a few others have very low Vitamin D levels. I am not sure what causes the fluctuation in different vitamins except maybe our lifestyle & diets, but some can definitely have more issues with one than the others.
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>clawson5104</b></i>

yes, i am aware CF is progressive, wade is having mild symptoms now, and yes will probably be worse in some or all ways as he gets older. I know there are issues with fat soluble vitamins, but was wondering if any of you had issues with ONLY one, or do most of you have issues with all of them? thanks again</end quote></div>

In general I think we usually have problems with all of them, but there are a few of us that seem to struggle with some more then others. Myself, Jennifer and a few others have very low Vitamin D levels. I am not sure what causes the fluctuation in different vitamins except maybe our lifestyle & diets, but some can definitely have more issues with one than the others.
 
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BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
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BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
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BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
B

BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
B

BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
B

BlessedbymyGirl36

New member
Carrie,
Erin has ever had low levels of vitamin A, and even that wasn't really ever a concern...It was just this time in the hospital actually that her levels of K and D were also down. The doc's said with her body changing and her being closer to puberty she could now have problems with more of them i.e. progressive. As you know everyone is different, and as your probably finding, C.F. effects so many areas small and not so small in their bodies/system. Good Luck and God bless in finding out more sweetie. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Nichole
 
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clawson5104

New member
Thanks for the replies Nichole and Melissa,

I know everybody is different, I was just curious. I've learned so much here, and still have alot to learn I'm sure. Wade goes to pediatric gastroenterologist tomorrow. I'm looking forward to it in a way, answer questions, get the treatment he needs, but dreading it too, seems like no matter how much good news we get, there's always a catch.......which I guess is what we have to look forward to now. Still thankful though.

Thanks for the compliment Nichole, I shave the little ones heads during the summer, I cant talk the two older ones into it. Cant bribe them either!!!! I like short headed boys, and they're in the long hair phase. my oldest has agreed to get his cut a LITTLE shorter if I get his highlighted....better than nothing. the 2nd one wont budge, I refuse to color his hair in a wild color, so he refuses to get his cut...lol. I keep telling him I didn't want girls, and God gave me the boys I asked for, so what's he trying to do ruin it? He just laughs at me. He's crazy. They both say the girls think their hair is HOT....lol. they haven't even started puberty. although i wonder sometimes...lol.

so thanks again, i'll post more tomorrow after gastro appointment. keep us in your prayers!
 
C

clawson5104

New member
Thanks for the replies Nichole and Melissa,

I know everybody is different, I was just curious. I've learned so much here, and still have alot to learn I'm sure. Wade goes to pediatric gastroenterologist tomorrow. I'm looking forward to it in a way, answer questions, get the treatment he needs, but dreading it too, seems like no matter how much good news we get, there's always a catch.......which I guess is what we have to look forward to now. Still thankful though.

Thanks for the compliment Nichole, I shave the little ones heads during the summer, I cant talk the two older ones into it. Cant bribe them either!!!! I like short headed boys, and they're in the long hair phase. my oldest has agreed to get his cut a LITTLE shorter if I get his highlighted....better than nothing. the 2nd one wont budge, I refuse to color his hair in a wild color, so he refuses to get his cut...lol. I keep telling him I didn't want girls, and God gave me the boys I asked for, so what's he trying to do ruin it? He just laughs at me. He's crazy. They both say the girls think their hair is HOT....lol. they haven't even started puberty. although i wonder sometimes...lol.

so thanks again, i'll post more tomorrow after gastro appointment. keep us in your prayers!
 
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