Hi - I have a friend with a son in 9th grade who is getting a 504 together for him. I have one for my son who is 7. I was wondering if those of you with experience with 504 plans could share some of the accomodations that you have in place. Thanks! JoAnn - mom of Jason - 7 and Tom -10
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
504 ideas
- Thread starter anonymous
- Start date
debs2girls
New member
I have asked about having one and they didnt have any clue what I was talking about....if you have any suggestions let me know....and good luck to you...
Debbie
Debbie
Hi! My daughter is too young to need a 504 (she's only ten weeks <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) but I am a teacher and I was a for-profit educational consultant until recently. I can immagine that you'd want a 504 to allow for extra conferences with teachers at the start of the school year to educate them about cf, time "built into" the schedule at meal times for the enzymes to be given/taken (you don't want the kids to always miss a few minutes of class to go to the office to take them, but if they can be the first to use the bathroom then go to the office they don't miss as much...etc...). If there are frequent hospitalizations then the 504 should allow for tests to be given when the child is well and for coursework to be modified. Ask for lessons to be sent to the hospital in any way that makes sense. Some schools/ districts have health nurses that can speak to the whole class about cf so that the other kids understand what is going on when a cfer is absent or has to take meds. (I teach 2nd grade and have a student with severe allergies. The nurse and I worked together to make sure the kids new they couldn't catch anything. This helped alot, because the boy was being teased and basically shunned before our talk.) With the right teacher you won't need a 504, they'll just do what your child needs. But it's smart to push for one. And you will probably have to really push. If I think of any more ideas I'll add them to this thread. Good Luck!
Hi,
I was also a teacher and the previous poster gave you some great suggestions. Some things I would like to add: You might want to request for a later start time (i.e. starting second period) this allows you more time for morning treatments. Also, perhaps an extra study hall with a tutor if possible (in case illness or hospitalizations cause him to fall behind). Some students request elevator access if they are short of breath or ill (if this is available).
I think the best advice was given by the previous poster when she mentioned educating teachers, classmates and the staff. This will help everyone understand the frequent coughing, use of enzymes, need for the bathroom, etc. Good Luck!
Maria (Sami's mom)
I was also a teacher and the previous poster gave you some great suggestions. Some things I would like to add: You might want to request for a later start time (i.e. starting second period) this allows you more time for morning treatments. Also, perhaps an extra study hall with a tutor if possible (in case illness or hospitalizations cause him to fall behind). Some students request elevator access if they are short of breath or ill (if this is available).
I think the best advice was given by the previous poster when she mentioned educating teachers, classmates and the staff. This will help everyone understand the frequent coughing, use of enzymes, need for the bathroom, etc. Good Luck!
Maria (Sami's mom)
Its kind of like the disability act for employers except its for the schools. They have to make reasonable accomodations for a child with an illness/disability that has filed papers for 504 (the name of the plan which this works in the schools). This allows the child various things including home tutoring if necesary, leniancy on abscenses & other arrangements to assure the child doesnt fall behind in his/her work & in ways makes it easier for that work to be achieved.
With the different experiences I have had for my son, my suggestions for a 504 are(some can just be worked out with the teacher each year):
1. Ask for a second set of books to be kept at home. That way any sudden illness, absence or hospital visit, you have to books and the materials can easily be faxed.
2. Ask that the 10 day Tutor rule be waived. I had my son's set at 2 days. With a doctors note, it will be ongoing for the year. This will help them from falling behind. Any time your child is out for 2 days or more, the school will be responsilbe for a tutor.
3. I also had it listed, that I would be notified from the school nurse if the school was seeing a higher than usual number of absenses. This would allow me to decide if I wanted to keep him home
4. That bathroom privedleges are not to be denied. This always was an issue for us especially as we reached high school
5. Cory always hated being the last one in the lunch room. He would miss out on setting with certain friends or the lines would be longer. So we had it listed that he could leave a few minues early
6. Also if nutrition is an issue, scheduled "snack" time or the availability to go to the office(or any agreed place) to obtain a snack if needed. We provided a weeks worth of snacks each week. Things from crackers to ensure.
7. Physical education accomadations can be made. For Cory it was that he was except from the "presidentail testing". I have found that it is helpful if the PE teacher is at meetings so that can see what your child's ability is.
8. Accomadations during long illness allows it so your child can keep up. It might be take home tests, modified assignments. Just don't let them tell you "oh, she/he doesn't have to make up that work". Too many times we heard that one. Nice when they are younger but missing out on key parts of learning that assist with other parts of learning cause a hardship later on.
9. A later start time helps with the need of everything we/they need to do to prepare for the mornings.
10. I did work with a really good school who had the carpet replaced in the library when we moved there. I did ask that his room and desk be clean with an antibiotic cleaner every night.
11. We asked that Cory be allowed a water bottle at his desk and be able to slip out of the room without asking permission to work through a coughing spell.
Seems like a out. I would usally write someting up and make sure that the classroom teacher keep a copy of it with her sub notes. That way if she needs a sub, the sub is aware. Most teacher are very greatful to have details about how they can assist your child and to understand what they go through before they even get to school.
12. As far as educating the class. I agree it is important to do. Just make sure they person doing it is up to date with the facts. One of Cory's teachers decided to do it and told the class that you would only live to be 10 (he was 9 at the time)
1. Ask for a second set of books to be kept at home. That way any sudden illness, absence or hospital visit, you have to books and the materials can easily be faxed.
2. Ask that the 10 day Tutor rule be waived. I had my son's set at 2 days. With a doctors note, it will be ongoing for the year. This will help them from falling behind. Any time your child is out for 2 days or more, the school will be responsilbe for a tutor.
3. I also had it listed, that I would be notified from the school nurse if the school was seeing a higher than usual number of absenses. This would allow me to decide if I wanted to keep him home
4. That bathroom privedleges are not to be denied. This always was an issue for us especially as we reached high school
5. Cory always hated being the last one in the lunch room. He would miss out on setting with certain friends or the lines would be longer. So we had it listed that he could leave a few minues early
6. Also if nutrition is an issue, scheduled "snack" time or the availability to go to the office(or any agreed place) to obtain a snack if needed. We provided a weeks worth of snacks each week. Things from crackers to ensure.
7. Physical education accomadations can be made. For Cory it was that he was except from the "presidentail testing". I have found that it is helpful if the PE teacher is at meetings so that can see what your child's ability is.
8. Accomadations during long illness allows it so your child can keep up. It might be take home tests, modified assignments. Just don't let them tell you "oh, she/he doesn't have to make up that work". Too many times we heard that one. Nice when they are younger but missing out on key parts of learning that assist with other parts of learning cause a hardship later on.
9. A later start time helps with the need of everything we/they need to do to prepare for the mornings.
10. I did work with a really good school who had the carpet replaced in the library when we moved there. I did ask that his room and desk be clean with an antibiotic cleaner every night.
11. We asked that Cory be allowed a water bottle at his desk and be able to slip out of the room without asking permission to work through a coughing spell.
Seems like a out. I would usally write someting up and make sure that the classroom teacher keep a copy of it with her sub notes. That way if she needs a sub, the sub is aware. Most teacher are very greatful to have details about how they can assist your child and to understand what they go through before they even get to school.
12. As far as educating the class. I agree it is important to do. Just make sure they person doing it is up to date with the facts. One of Cory's teachers decided to do it and told the class that you would only live to be 10 (he was 9 at the time)
Great ideas, so much so I think I need to go have my daughter's modified to add things. She is only in kindergarten but misses a great deal of school if it is time for surgery and I can't have her around anyone so she doesn't catch bugs. Recovery from surgery, or just illness this time of year with cold weather.
Thanks for all the input, for us newbies who have just started doing IEP's or 504's it really helps.
Thanks for all the input, for us newbies who have just started doing IEP's or 504's it really helps.
DS is only three and I'm already worried about the enzyme issue. Current policy is that "medications" are kept in a locked cabinet in the office. I can already imagine DS getting some crab in the office making him feel bad. Right now at daycare they just run and get his enzyme container from the cupboard and they know he needs them before he can eat.
babyjaden2004
New member
UGH forgot to login that was me above.
Chrissy
Chrissy
The child has to actually be enrolled in school & I believe it has to be renewed every year. Possible not for something chronic, but am not sure. I am not 100% about private schools that it applies, but I would assume so since there is government funding involved even if not as much as a public school!
debs2girls
New member
Anekka, does the Alpha Thalassemia cause any problems for your daughter that you are aware of? My oldest daughter also has this disorder but her primary pediatrician said she wont exhibit any problems from it and I disagree..she is always complaining of her stomach hurting her and she is yellowish alot. Any suggestion?
Thanks, Debbie
Thanks, Debbie
Emily just finished with her 504 when she graduated from high school. Her 504 went into effect as soon as I realized it existed (in 9th grade). Up until then, the school system and teachers had been very cooperative about meeting her needs. It had been a long time since they had another child with CF, but they were very receptive to every request we made.
In 9th grade, when she started having more trouble, I went to the Special Ed Supervisor (I work at the Board of Ed in our town) and asked for help. He told me about the 504 and we set one up. Every year after that, we renewed it, made any changes that needed to be made for the following year and set her up. Any changes during the year were just written into the 504 as we went along. It's your legal right to ask for one for your child and make any request that is not "over demanding".
In 9th grade, when she started having more trouble, I went to the Special Ed Supervisor (I work at the Board of Ed in our town) and asked for help. He told me about the 504 and we set one up. Every year after that, we renewed it, made any changes that needed to be made for the following year and set her up. Any changes during the year were just written into the 504 as we went along. It's your legal right to ask for one for your child and make any request that is not "over demanding".
I had a 504 from my sophmore year on. I had changed schools to one that had a very strict attendance policy. Yah, I missed more than 10 days a semester. It also provided that I could eat or drink in class or that I could use the restroom whenever I needed to. I only had to raise the issue with a teacher once.
jasonterriallen
New member
I never knew of a 504. How do I get one for my son w/Cf? He has missed school for surgery and I got a letter in the mail, stating if he misses anymore days they will take legal proceedures. Even though I informed the school of his surgery months in advance. It would help me out if anyone can inform me about this and how to get it. My email is jason_terri_allen@yahoo.com. Thanks in advance.
a 504 is a plan set up with the schools that grants you or your child extra privilages. For example, my daughters 504 states that she is not to be held to any attendence requirements, she is to be given extra time to make up work and test as she feels necessary not the teachers. It allows her to leave class without permission (this is often needed when she needs to cough).. The 504 plan is very useful, just remember that you are your childs only advocate. Always speak loud enough to ensure that the plan is followed.
Good Luck
Jayne
Good Luck
Jayne