eFlow Update
I know it puts a lot of people in an insecure place to challenge their physicians. It's much more comfortable to go through life believing that your physician is 100% up to date on everything, and everything he/she tells you is 100% fact.
Amy, wow, u r so right, your physicians can never tell u 100%fact, just someproven medical data and many of educated guesses. Parnets u listen and ask for doctors input but u know your children better than any doctor can, and u know what works and doesn't work for your child. The problem with the EFLOW is that if u don't get some of your meds specifically doses for the eflow u could be overdosing and causing more problems in the long run. Tobi is a great example of this. We were given the green light to use the eflow because we were only going to pulmozyme and occasionaly Hypertonic Saline and our doctor said both of these are safe, even if u get a little extra of the drug.
The bottom line is this machine is more of a convience thing. It's quicker, more convienet and def quiter, so it's worth it for us, but as far as it being a God send for CF, NO, could get the same results from any nebulizer, so I think it is a personal choice if u want one or not, We have it and love it, but it's not doing anything better for the lungs than anyother nebulizer