''a child against all odds''

eli

New member
Sorry to hijack your topic, Craig.

I just wanted to ask Megan, who just went through ivf/pgd to avoid CF. If she doesn't mind sharing her experience with me.

Megan, can you pm me if you don't mind sharing your story with me.

Although, i am interested i seing this program. Thanks for posting, Craig. I will need to do a search on it tonight.
 

eli

New member
Sorry to hijack your topic, Craig.

I just wanted to ask Megan, who just went through ivf/pgd to avoid CF. If she doesn't mind sharing her experience with me.

Megan, can you pm me if you don't mind sharing your story with me.

Although, i am interested i seing this program. Thanks for posting, Craig. I will need to do a search on it tonight.
 

eli

New member
Sorry to hijack your topic, Craig.

I just wanted to ask Megan, who just went through ivf/pgd to avoid CF. If she doesn't mind sharing her experience with me.

Megan, can you pm me if you don't mind sharing your story with me.

Although, i am interested i seing this program. Thanks for posting, Craig. I will need to do a search on it tonight.
 

anonymous

New member
Eli- How do I PM you? I would be happy to share my IVF story with you. Quickly we have a 2 year old with CF and are currently 9 weeks pregnant with hopefully a non CFer. Let me know how to reach you?

Megan
 

anonymous

New member
Eli- How do I PM you? I would be happy to share my IVF story with you. Quickly we have a 2 year old with CF and are currently 9 weeks pregnant with hopefully a non CFer. Let me know how to reach you?

Megan
 

anonymous

New member
Eli- How do I PM you? I would be happy to share my IVF story with you. Quickly we have a 2 year old with CF and are currently 9 weeks pregnant with hopefully a non CFer. Let me know how to reach you?

Megan
 

eli

New member
Hi Megan,

At the moment its best to just send me a PRIVATE MESSAGE via this forum. If you have a look in the right hand corner of the screen where there is a light bulb (to show on line/off line. There is also a person with a bubble, click there to pm me.

My email add is invalid at the moment, as i am trying to get a new one set up.

If this is too difficult for you and you don't mind posting it on the net, you can post it in off topic and just let me know its there.

Thanks again, and enjoy your pregnancy.

Keep us posted.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

eli

New member
Hi Megan,

At the moment its best to just send me a PRIVATE MESSAGE via this forum. If you have a look in the right hand corner of the screen where there is a light bulb (to show on line/off line. There is also a person with a bubble, click there to pm me.

My email add is invalid at the moment, as i am trying to get a new one set up.

If this is too difficult for you and you don't mind posting it on the net, you can post it in off topic and just let me know its there.

Thanks again, and enjoy your pregnancy.

Keep us posted.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

eli

New member
Hi Megan,

At the moment its best to just send me a PRIVATE MESSAGE via this forum. If you have a look in the right hand corner of the screen where there is a light bulb (to show on line/off line. There is also a person with a bubble, click there to pm me.

My email add is invalid at the moment, as i am trying to get a new one set up.

If this is too difficult for you and you don't mind posting it on the net, you can post it in off topic and just let me know its there.

Thanks again, and enjoy your pregnancy.

Keep us posted.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

julie

New member
Eli,

I'm in touch with another couple who have a child with CF and did IVF with PGD a few months ago and are a few months pregnant as well. I can ask them to talk to you as well. I know when I started my IVF journey I wanted to talk to as many people as I could. Let me know if you are interested.

and congrats Megan!!
 

julie

New member
Eli,

I'm in touch with another couple who have a child with CF and did IVF with PGD a few months ago and are a few months pregnant as well. I can ask them to talk to you as well. I know when I started my IVF journey I wanted to talk to as many people as I could. Let me know if you are interested.

and congrats Megan!!
 

julie

New member
Eli,

I'm in touch with another couple who have a child with CF and did IVF with PGD a few months ago and are a few months pregnant as well. I can ask them to talk to you as well. I know when I started my IVF journey I wanted to talk to as many people as I could. Let me know if you are interested.

and congrats Megan!!
 

eli

New member
Hey Julie,

Thanks alot, i would love to get in conact with the couple if they don't mind.

As you know hubby and i have gone back and forth on our decision. We finally decide to go natural and just except what god gives us, but this still plays on our mind daily. It has also held us up 6months in having our second child.

We are so stressed out and just cannot decide what to do. We don't want it to be a decsion that just suits us. I want it to the best decison for the whole family, so that it doesn't affect our children mentally and emotionaly when they ar e grown up.

Take care, honey and give those babies 3 BIG kisses from me.<img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0">
 

eli

New member
Hey Julie,

Thanks alot, i would love to get in conact with the couple if they don't mind.

As you know hubby and i have gone back and forth on our decision. We finally decide to go natural and just except what god gives us, but this still plays on our mind daily. It has also held us up 6months in having our second child.

We are so stressed out and just cannot decide what to do. We don't want it to be a decsion that just suits us. I want it to the best decison for the whole family, so that it doesn't affect our children mentally and emotionaly when they ar e grown up.

Take care, honey and give those babies 3 BIG kisses from me.<img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0">
 

eli

New member
Hey Julie,

Thanks alot, i would love to get in conact with the couple if they don't mind.

As you know hubby and i have gone back and forth on our decision. We finally decide to go natural and just except what god gives us, but this still plays on our mind daily. It has also held us up 6months in having our second child.

We are so stressed out and just cannot decide what to do. We don't want it to be a decsion that just suits us. I want it to the best decison for the whole family, so that it doesn't affect our children mentally and emotionaly when they ar e grown up.

Take care, honey and give those babies 3 BIG kisses from me.<img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0"><img src="i/expressions/lips.gif" border="0">
 

anonymous

New member
Eli

We struggled for months, even a year after the birth of our son to decide what to do about future children. We did not know we were carriers with Aidan so his diagnosis was a shock. My husband believes that now we know so it is only right to try to prevent another child from having this disease.

Women try to prevent things all the time when pregnant- not smoke, not drink ect...We felt that we had one added risk factor in which we should TRY to prevent a bad thing from happening. It was the only decision for us.

We take vigilant care of Aidan-3 nebs daily,sinus treatments daily, hour of the VEST daily, never miss a treatment, took him to Minnesota for consult- we will do anything and everything to keep him healthy. We also both work full time and my mom has quit her job to care for Aidan. The stress of trying to do this with another CFer would be too much- not good for Aidan or for our family. We want to preserve Aidan's health and think his best chance is if he is the only one with CF.

Maybe you could look into an IVF clinic and check out their programs and options. It can be draining at times but hopefully worth it in the end. PGD is not 100% either but it was the best decision for us. Megan
 

anonymous

New member
Eli

We struggled for months, even a year after the birth of our son to decide what to do about future children. We did not know we were carriers with Aidan so his diagnosis was a shock. My husband believes that now we know so it is only right to try to prevent another child from having this disease.

Women try to prevent things all the time when pregnant- not smoke, not drink ect...We felt that we had one added risk factor in which we should TRY to prevent a bad thing from happening. It was the only decision for us.

We take vigilant care of Aidan-3 nebs daily,sinus treatments daily, hour of the VEST daily, never miss a treatment, took him to Minnesota for consult- we will do anything and everything to keep him healthy. We also both work full time and my mom has quit her job to care for Aidan. The stress of trying to do this with another CFer would be too much- not good for Aidan or for our family. We want to preserve Aidan's health and think his best chance is if he is the only one with CF.

Maybe you could look into an IVF clinic and check out their programs and options. It can be draining at times but hopefully worth it in the end. PGD is not 100% either but it was the best decision for us. Megan
 

anonymous

New member
Eli

We struggled for months, even a year after the birth of our son to decide what to do about future children. We did not know we were carriers with Aidan so his diagnosis was a shock. My husband believes that now we know so it is only right to try to prevent another child from having this disease.

Women try to prevent things all the time when pregnant- not smoke, not drink ect...We felt that we had one added risk factor in which we should TRY to prevent a bad thing from happening. It was the only decision for us.

We take vigilant care of Aidan-3 nebs daily,sinus treatments daily, hour of the VEST daily, never miss a treatment, took him to Minnesota for consult- we will do anything and everything to keep him healthy. We also both work full time and my mom has quit her job to care for Aidan. The stress of trying to do this with another CFer would be too much- not good for Aidan or for our family. We want to preserve Aidan's health and think his best chance is if he is the only one with CF.

Maybe you could look into an IVF clinic and check out their programs and options. It can be draining at times but hopefully worth it in the end. PGD is not 100% either but it was the best decision for us. Megan
 

eli

New member
Hi Megan,

Thanks for sharing that with me. I now have a new email add
( jkrstevs@optusnet.com.au ). So if you want to contact me, you now can.

I would love to hear your story on the ivf/pgd procedure, and how it was for you, as this is still playing on our minds and we can't decide what to do.

Thanks
Eli
 
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