A few questions.

[nocode]

<i>Hello all,

I am 25 and was diagnosed at the age of 15.
I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes:

- Is it possible that the medicines we take can actually improve the condition of our lungs? I have always thought that our lungs can only get worse and never better, because it's a degenerative illness or can it actually get better?

- Do you agree that taking antibiotics is really the best way to go when it comes to keeping this illness under control, even when you're not getting worse, as opposed to saving that measure to a later time in our lives when we actually need them more, so to not make the bacteria resitent to the medicines much too early? I only take antibiotics when really necessary (and never IVs, only oral) so that they will be more effective when i really need them.

- A while ago i remember there was a lot of talking about the oregano oil and how good some people felt when nebulizing it. I tried to talk about it with my doc at the time but she didn't take it seriously. Does any of you actually use it and has it been proven to work?

I don't want to make this too long and boring so i will stop here. I will ask more questions at a later time.. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks to you all, feel free to just answer 1 of the questions if you feel like it, any feedback will be much appreciated!

Vera
Portuguese, living in Amsterdam - Holland</i>

 

[nocode]

<i>Hello all,

I am 25 and was diagnosed at the age of 15.
I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes:

- Is it possible that the medicines we take can actually improve the condition of our lungs? I have always thought that our lungs can only get worse and never better, because it's a degenerative illness or can it actually get better?

- Do you agree that taking antibiotics is really the best way to go when it comes to keeping this illness under control, even when you're not getting worse, as opposed to saving that measure to a later time in our lives when we actually need them more, so to not make the bacteria resitent to the medicines much too early? I only take antibiotics when really necessary (and never IVs, only oral) so that they will be more effective when i really need them.

- A while ago i remember there was a lot of talking about the oregano oil and how good some people felt when nebulizing it. I tried to talk about it with my doc at the time but she didn't take it seriously. Does any of you actually use it and has it been proven to work?

I don't want to make this too long and boring so i will stop here. I will ask more questions at a later time.. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks to you all, feel free to just answer 1 of the questions if you feel like it, any feedback will be much appreciated!

Vera
Portuguese, living in Amsterdam - Holland</i>

 

[nocode]

<i>Hello all,

I am 25 and was diagnosed at the age of 15.
I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes:

- Is it possible that the medicines we take can actually improve the condition of our lungs? I have always thought that our lungs can only get worse and never better, because it's a degenerative illness or can it actually get better?

- Do you agree that taking antibiotics is really the best way to go when it comes to keeping this illness under control, even when you're not getting worse, as opposed to saving that measure to a later time in our lives when we actually need them more, so to not make the bacteria resitent to the medicines much too early? I only take antibiotics when really necessary (and never IVs, only oral) so that they will be more effective when i really need them.

- A while ago i remember there was a lot of talking about the oregano oil and how good some people felt when nebulizing it. I tried to talk about it with my doc at the time but she didn't take it seriously. Does any of you actually use it and has it been proven to work?

I don't want to make this too long and boring so i will stop here. I will ask more questions at a later time.. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks to you all, feel free to just answer 1 of the questions if you feel like it, any feedback will be much appreciated!

Vera
Portuguese, living in Amsterdam - Holland</i>

 

[nocode]

<i>Hello all,

I am 25 and was diagnosed at the age of 15.
I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes:

- Is it possible that the medicines we take can actually improve the condition of our lungs? I have always thought that our lungs can only get worse and never better, because it's a degenerative illness or can it actually get better?

- Do you agree that taking antibiotics is really the best way to go when it comes to keeping this illness under control, even when you're not getting worse, as opposed to saving that measure to a later time in our lives when we actually need them more, so to not make the bacteria resitent to the medicines much too early? I only take antibiotics when really necessary (and never IVs, only oral) so that they will be more effective when i really need them.

- A while ago i remember there was a lot of talking about the oregano oil and how good some people felt when nebulizing it. I tried to talk about it with my doc at the time but she didn't take it seriously. Does any of you actually use it and has it been proven to work?

I don't want to make this too long and boring so i will stop here. I will ask more questions at a later time.. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks to you all, feel free to just answer 1 of the questions if you feel like it, any feedback will be much appreciated!

Vera
Portuguese, living in Amsterdam - Holland</i>

 

[nocode]

<i>Hello all,
<br />
<br />I am 25 and was diagnosed at the age of 15.
<br />I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes:
<br />
<br />- Is it possible that the medicines we take can actually improve the condition of our lungs? I have always thought that our lungs can only get worse and never better, because it's a degenerative illness or can it actually get better?
<br />
<br />- Do you agree that taking antibiotics is really the best way to go when it comes to keeping this illness under control, even when you're not getting worse, as opposed to saving that measure to a later time in our lives when we actually need them more, so to not make the bacteria resitent to the medicines much too early? I only take antibiotics when really necessary (and never IVs, only oral) so that they will be more effective when i really need them.
<br />
<br />- A while ago i remember there was a lot of talking about the oregano oil and how good some people felt when nebulizing it. I tried to talk about it with my doc at the time but she didn't take it seriously. Does any of you actually use it and has it been proven to work?
<br />
<br />I don't want to make this too long and boring so i will stop here. I will ask more questions at a later time.. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Thanks to you all, feel free to just answer 1 of the questions if you feel like it, any feedback will be much appreciated!
<br />
<br />Vera
<br />Portuguese, living in Amsterdam - Holland</i>

 

[Diane]

Hi Vera,
I am not sure if antibiotics are the best route to go for keeping cf under control. Some of us need them 24/7 for prophilactic reasons and some do not. I myself having cepacia need them 24/7 no matter how well i am feeling or doing.
The question of not doing antibiotics to "save" their use for when you absolutely need them is good, but it doesnt mean that the bacterial infection you have will be suscepible to all of the antibiotics just because you havent used them. I am resistant to a lot of antibiotics i have never used., and susceptible to ones here and there that i've used over and over for years.
AS for Oreganol Oil i have never tried that so i am hoping someone that has will have an answer for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Vera,
I am not sure if antibiotics are the best route to go for keeping cf under control. Some of us need them 24/7 for prophilactic reasons and some do not. I myself having cepacia need them 24/7 no matter how well i am feeling or doing.
The question of not doing antibiotics to "save" their use for when you absolutely need them is good, but it doesnt mean that the bacterial infection you have will be suscepible to all of the antibiotics just because you havent used them. I am resistant to a lot of antibiotics i have never used., and susceptible to ones here and there that i've used over and over for years.
AS for Oreganol Oil i have never tried that so i am hoping someone that has will have an answer for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Vera,
I am not sure if antibiotics are the best route to go for keeping cf under control. Some of us need them 24/7 for prophilactic reasons and some do not. I myself having cepacia need them 24/7 no matter how well i am feeling or doing.
The question of not doing antibiotics to "save" their use for when you absolutely need them is good, but it doesnt mean that the bacterial infection you have will be suscepible to all of the antibiotics just because you havent used them. I am resistant to a lot of antibiotics i have never used., and susceptible to ones here and there that i've used over and over for years.
AS for Oreganol Oil i have never tried that so i am hoping someone that has will have an answer for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Vera,
I am not sure if antibiotics are the best route to go for keeping cf under control. Some of us need them 24/7 for prophilactic reasons and some do not. I myself having cepacia need them 24/7 no matter how well i am feeling or doing.
The question of not doing antibiotics to "save" their use for when you absolutely need them is good, but it doesnt mean that the bacterial infection you have will be suscepible to all of the antibiotics just because you havent used them. I am resistant to a lot of antibiotics i have never used., and susceptible to ones here and there that i've used over and over for years.
AS for Oreganol Oil i have never tried that so i am hoping someone that has will have an answer for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Vera,
<br /> I am not sure if antibiotics are the best route to go for keeping cf under control. Some of us need them 24/7 for prophilactic reasons and some do not. I myself having cepacia need them 24/7 no matter how well i am feeling or doing.
<br />The question of not doing antibiotics to "save" their use for when you absolutely need them is good, but it doesnt mean that the bacterial infection you have will be suscepible to all of the antibiotics just because you havent used them. I am resistant to a lot of antibiotics i have never used., and susceptible to ones here and there that i've used over and over for years.
<br />AS for Oreganol Oil i have never tried that so i am hoping someone that has will have an answer for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">