A great sterilizer!!

[grassisgreener]

I use the the sanicycle in the dishwasher for the mask and have put the nebs in there a few times too. I feel best about the nebs boing boiled but not concerned about the mask in the dishwasher. The sanicyc;e gets so hot that it would kill anything on food particles, not that I have ever seen food particles on any of those parts.

You know, I have to agree with double checking clinic advice, especially when it comes from a nurse. We love our clinic, the doctor is great but there is one nurse that I would never take what she says as gold, I have heard some scary stories about her "information" from other patients. It is too bad bc the nurse she replaced was great, very educated on CF. I think it is smart to ALWAYS investigate and if you find out that you are doing something wrong, then thankfully now you know and can make a change.

This has been an intersting discussion! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[grassisgreener]

I use the the sanicycle in the dishwasher for the mask and have put the nebs in there a few times too. I feel best about the nebs boing boiled but not concerned about the mask in the dishwasher. The sanicyc;e gets so hot that it would kill anything on food particles, not that I have ever seen food particles on any of those parts.

You know, I have to agree with double checking clinic advice, especially when it comes from a nurse. We love our clinic, the doctor is great but there is one nurse that I would never take what she says as gold, I have heard some scary stories about her "information" from other patients. It is too bad bc the nurse she replaced was great, very educated on CF. I think it is smart to ALWAYS investigate and if you find out that you are doing something wrong, then thankfully now you know and can make a change.

This has been an intersting discussion! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[grassisgreener]

I use the the sanicycle in the dishwasher for the mask and have put the nebs in there a few times too. I feel best about the nebs boing boiled but not concerned about the mask in the dishwasher. The sanicyc;e gets so hot that it would kill anything on food particles, not that I have ever seen food particles on any of those parts.

You know, I have to agree with double checking clinic advice, especially when it comes from a nurse. We love our clinic, the doctor is great but there is one nurse that I would never take what she says as gold, I have heard some scary stories about her "information" from other patients. It is too bad bc the nurse she replaced was great, very educated on CF. I think it is smart to ALWAYS investigate and if you find out that you are doing something wrong, then thankfully now you know and can make a change.

This has been an intersting discussion! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[grassisgreener]

I use the the sanicycle in the dishwasher for the mask and have put the nebs in there a few times too. I feel best about the nebs boing boiled but not concerned about the mask in the dishwasher. The sanicyc;e gets so hot that it would kill anything on food particles, not that I have ever seen food particles on any of those parts.

You know, I have to agree with double checking clinic advice, especially when it comes from a nurse. We love our clinic, the doctor is great but there is one nurse that I would never take what she says as gold, I have heard some scary stories about her "information" from other patients. It is too bad bc the nurse she replaced was great, very educated on CF. I think it is smart to ALWAYS investigate and if you find out that you are doing something wrong, then thankfully now you know and can make a change.

This has been an intersting discussion! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[grassisgreener]

I use the the sanicycle in the dishwasher for the mask and have put the nebs in there a few times too. I feel best about the nebs boing boiled but not concerned about the mask in the dishwasher. The sanicyc;e gets so hot that it would kill anything on food particles, not that I have ever seen food particles on any of those parts.
<br />
<br />You know, I have to agree with double checking clinic advice, especially when it comes from a nurse. We love our clinic, the doctor is great but there is one nurse that I would never take what she says as gold, I have heard some scary stories about her "information" from other patients. It is too bad bc the nurse she replaced was great, very educated on CF. I think it is smart to ALWAYS investigate and if you find out that you are doing something wrong, then thankfully now you know and can make a change.
<br />
<br />This has been an intersting discussion! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Alyssa]

We might be causing more misunderstanding by the use of the wording "sterilize", "sanitize" & "disinfect" interchangeably.

I'm not sure what the difference is or if there really is one - but here is my two cents worth.

The germ guardian and other devises like this are "sanitizers" not "sterilizers"

If you go to the CFF website and read their pamphlet on staying healthy, they recommend we are to <b>"clean and disinfect"</b> the neb cups

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf
">http://www.cff.org/UploadedFil...SpreadGerms.pdf
</a>

If you take the steps that they recommend, and <b>then choose to put them into something like the germ guardian to dry them,</b> it seems to me that one has merely taken one additional step to ensure the cups are dry.

I personally "feel" better, using the germ guardian to make sure the cups are really dry.... they may be somewhat damp when I put them in the germ guardian but they are not dripping wet, so I don't think I'm interfering with how the machine operates at all.

I was originally told by our clinic to wash and dry nebs for use throughout the week, then once a week <b>disinfect</b> by choosing one of the methods approved by the CFF. (boiling, alcohol, hydrogen peroxide, bleach, dishwasher, or microwave)

When we first started using the germ guardian, we mentioned it to the clinic and they thought it sounded like a good idea, but still recommended boiling once a week, if for no other reason than to make sure that no medicine was left in the cups, stuck inside the tiny little openings. But I'm sure, if pressed for an official answer they cannot recommend relying on the germ guardian only for disinfecting according to the guidelines put out by the CFF.

So, what we do is wash, rinse, shake dry with paper towels, put into the germ guardian for final drying. Boil once a week for disinfecting.

 

[Alyssa]

We might be causing more misunderstanding by the use of the wording "sterilize", "sanitize" & "disinfect" interchangeably.

I'm not sure what the difference is or if there really is one - but here is my two cents worth.

The germ guardian and other devises like this are "sanitizers" not "sterilizers"

If you go to the CFF website and read their pamphlet on staying healthy, they recommend we are to <b>"clean and disinfect"</b> the neb cups

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf
">http://www.cff.org/UploadedFil...SpreadGerms.pdf
</a>

If you take the steps that they recommend, and <b>then choose to put them into something like the germ guardian to dry them,</b> it seems to me that one has merely taken one additional step to ensure the cups are dry.

I personally "feel" better, using the germ guardian to make sure the cups are really dry.... they may be somewhat damp when I put them in the germ guardian but they are not dripping wet, so I don't think I'm interfering with how the machine operates at all.

I was originally told by our clinic to wash and dry nebs for use throughout the week, then once a week <b>disinfect</b> by choosing one of the methods approved by the CFF. (boiling, alcohol, hydrogen peroxide, bleach, dishwasher, or microwave)

When we first started using the germ guardian, we mentioned it to the clinic and they thought it sounded like a good idea, but still recommended boiling once a week, if for no other reason than to make sure that no medicine was left in the cups, stuck inside the tiny little openings. But I'm sure, if pressed for an official answer they cannot recommend relying on the germ guardian only for disinfecting according to the guidelines put out by the CFF.

So, what we do is wash, rinse, shake dry with paper towels, put into the germ guardian for final drying. Boil once a week for disinfecting.

 

[Alyssa]

We might be causing more misunderstanding by the use of the wording "sterilize", "sanitize" & "disinfect" interchangeably.

I'm not sure what the difference is or if there really is one - but here is my two cents worth.

The germ guardian and other devises like this are "sanitizers" not "sterilizers"

If you go to the CFF website and read their pamphlet on staying healthy, they recommend we are to <b>"clean and disinfect"</b> the neb cups

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf
">http://www.cff.org/UploadedFil...SpreadGerms.pdf
</a>

If you take the steps that they recommend, and <b>then choose to put them into something like the germ guardian to dry them,</b> it seems to me that one has merely taken one additional step to ensure the cups are dry.

I personally "feel" better, using the germ guardian to make sure the cups are really dry.... they may be somewhat damp when I put them in the germ guardian but they are not dripping wet, so I don't think I'm interfering with how the machine operates at all.

I was originally told by our clinic to wash and dry nebs for use throughout the week, then once a week <b>disinfect</b> by choosing one of the methods approved by the CFF. (boiling, alcohol, hydrogen peroxide, bleach, dishwasher, or microwave)

When we first started using the germ guardian, we mentioned it to the clinic and they thought it sounded like a good idea, but still recommended boiling once a week, if for no other reason than to make sure that no medicine was left in the cups, stuck inside the tiny little openings. But I'm sure, if pressed for an official answer they cannot recommend relying on the germ guardian only for disinfecting according to the guidelines put out by the CFF.

So, what we do is wash, rinse, shake dry with paper towels, put into the germ guardian for final drying. Boil once a week for disinfecting.

 

[Alyssa]

We might be causing more misunderstanding by the use of the wording "sterilize", "sanitize" & "disinfect" interchangeably.

I'm not sure what the difference is or if there really is one - but here is my two cents worth.

The germ guardian and other devises like this are "sanitizers" not "sterilizers"

If you go to the CFF website and read their pamphlet on staying healthy, they recommend we are to <b>"clean and disinfect"</b> the neb cups

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf
">http://www.cff.org/UploadedFil...SpreadGerms.pdf
</a>

If you take the steps that they recommend, and <b>then choose to put them into something like the germ guardian to dry them,</b> it seems to me that one has merely taken one additional step to ensure the cups are dry.

I personally "feel" better, using the germ guardian to make sure the cups are really dry.... they may be somewhat damp when I put them in the germ guardian but they are not dripping wet, so I don't think I'm interfering with how the machine operates at all.

I was originally told by our clinic to wash and dry nebs for use throughout the week, then once a week <b>disinfect</b> by choosing one of the methods approved by the CFF. (boiling, alcohol, hydrogen peroxide, bleach, dishwasher, or microwave)

When we first started using the germ guardian, we mentioned it to the clinic and they thought it sounded like a good idea, but still recommended boiling once a week, if for no other reason than to make sure that no medicine was left in the cups, stuck inside the tiny little openings. But I'm sure, if pressed for an official answer they cannot recommend relying on the germ guardian only for disinfecting according to the guidelines put out by the CFF.

So, what we do is wash, rinse, shake dry with paper towels, put into the germ guardian for final drying. Boil once a week for disinfecting.

 

[Alyssa]

We might be causing more misunderstanding by the use of the wording "sterilize", "sanitize" & "disinfect" interchangeably.
<br />
<br />I'm not sure what the difference is or if there really is one - but here is my two cents worth.
<br />
<br />The germ guardian and other devises like this are "sanitizers" not "sterilizers"
<br />
<br />If you go to the CFF website and read their pamphlet on staying healthy, they recommend we are to <b>"clean and disinfect"</b> the neb cups
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf
<br />">http://www.cff.org/UploadedFil...SpreadGerms.pdf
<br /></a>
<br />
<br />If you take the steps that they recommend, and <b>then choose to put them into something like the germ guardian to dry them,</b> it seems to me that one has merely taken one additional step to ensure the cups are dry.
<br />
<br />I personally "feel" better, using the germ guardian to make sure the cups are really dry.... they may be somewhat damp when I put them in the germ guardian but they are not dripping wet, so I don't think I'm interfering with how the machine operates at all.
<br />
<br />I was originally told by our clinic to wash and dry nebs for use throughout the week, then once a week <b>disinfect</b> by choosing one of the methods approved by the CFF. (boiling, alcohol, hydrogen peroxide, bleach, dishwasher, or microwave)
<br />
<br />When we first started using the germ guardian, we mentioned it to the clinic and they thought it sounded like a good idea, but still recommended boiling once a week, if for no other reason than to make sure that no medicine was left in the cups, stuck inside the tiny little openings. But I'm sure, if pressed for an official answer they cannot recommend relying on the germ guardian only for disinfecting according to the guidelines put out by the CFF.
<br />
<br />So, what we do is wash, rinse, shake dry with paper towels, put into the germ guardian for final drying. Boil once a week for disinfecting.
<br />
<br />
<br />

 

[ginandbrea]

Hi everyone!,

I see everyone has different approaches to cleaning their nebs.

Our clinic recommended rinsing in hot soapy water and rinsing with sterile water then air drying. Also to boil for 10 minutes weekly. I was doing this for about 1 month and thought "how gross". The Pari site recommends something a little more than the clinic with a vinegar solution every other day, still not enough for me.

We do 3-4 treatments per day and my personal regime which I found pleasing is:
Soak nebs in vinegar/water solution after each treatment, brush all parts with Dentek brush and boil all nebs at the end of every night (usually midnight or 1:00 a.m.), let air dry on paper towels and cover with paper towels overnight, next a.m. (usually 6:00 a.m.)place all nebs
in air tight container.

As far as the Aero Chamber, I clean the mouth piece with an alcohol pad after each use and soak this in the vinegar/water solution each night and let air dry with the nebs.

I am so excited to hear about the GG (for a dryer only)!

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Take care!
Gina

 

[ginandbrea]

Hi everyone!,

I see everyone has different approaches to cleaning their nebs.

Our clinic recommended rinsing in hot soapy water and rinsing with sterile water then air drying. Also to boil for 10 minutes weekly. I was doing this for about 1 month and thought "how gross". The Pari site recommends something a little more than the clinic with a vinegar solution every other day, still not enough for me.

We do 3-4 treatments per day and my personal regime which I found pleasing is:
Soak nebs in vinegar/water solution after each treatment, brush all parts with Dentek brush and boil all nebs at the end of every night (usually midnight or 1:00 a.m.), let air dry on paper towels and cover with paper towels overnight, next a.m. (usually 6:00 a.m.)place all nebs
in air tight container.

As far as the Aero Chamber, I clean the mouth piece with an alcohol pad after each use and soak this in the vinegar/water solution each night and let air dry with the nebs.

I am so excited to hear about the GG (for a dryer only)!

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Take care!
Gina

 

[ginandbrea]

Hi everyone!,

I see everyone has different approaches to cleaning their nebs.

Our clinic recommended rinsing in hot soapy water and rinsing with sterile water then air drying. Also to boil for 10 minutes weekly. I was doing this for about 1 month and thought "how gross". The Pari site recommends something a little more than the clinic with a vinegar solution every other day, still not enough for me.

We do 3-4 treatments per day and my personal regime which I found pleasing is:
Soak nebs in vinegar/water solution after each treatment, brush all parts with Dentek brush and boil all nebs at the end of every night (usually midnight or 1:00 a.m.), let air dry on paper towels and cover with paper towels overnight, next a.m. (usually 6:00 a.m.)place all nebs
in air tight container.

As far as the Aero Chamber, I clean the mouth piece with an alcohol pad after each use and soak this in the vinegar/water solution each night and let air dry with the nebs.

I am so excited to hear about the GG (for a dryer only)!

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Take care!
Gina

 

[ginandbrea]

Hi everyone!,

I see everyone has different approaches to cleaning their nebs.

Our clinic recommended rinsing in hot soapy water and rinsing with sterile water then air drying. Also to boil for 10 minutes weekly. I was doing this for about 1 month and thought "how gross". The Pari site recommends something a little more than the clinic with a vinegar solution every other day, still not enough for me.

We do 3-4 treatments per day and my personal regime which I found pleasing is:
Soak nebs in vinegar/water solution after each treatment, brush all parts with Dentek brush and boil all nebs at the end of every night (usually midnight or 1:00 a.m.), let air dry on paper towels and cover with paper towels overnight, next a.m. (usually 6:00 a.m.)place all nebs
in air tight container.

As far as the Aero Chamber, I clean the mouth piece with an alcohol pad after each use and soak this in the vinegar/water solution each night and let air dry with the nebs.

I am so excited to hear about the GG (for a dryer only)!

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Take care!
Gina

 

[ginandbrea]

Hi everyone!,
<br />
<br />I see everyone has different approaches to cleaning their nebs.
<br />
<br />Our clinic recommended rinsing in hot soapy water and rinsing with sterile water then air drying. Also to boil for 10 minutes weekly. I was doing this for about 1 month and thought "how gross". The Pari site recommends something a little more than the clinic with a vinegar solution every other day, still not enough for me.
<br />
<br />We do 3-4 treatments per day and my personal regime which I found pleasing is:
<br />Soak nebs in vinegar/water solution after each treatment, brush all parts with Dentek brush and boil all nebs at the end of every night (usually midnight or 1:00 a.m.), let air dry on paper towels and cover with paper towels overnight, next a.m. (usually 6:00 a.m.)place all nebs
<br />in air tight container.
<br />
<br />As far as the Aero Chamber, I clean the mouth piece with an alcohol pad after each use and soak this in the vinegar/water solution each night and let air dry with the nebs.
<br />
<br />I am so excited to hear about the GG (for a dryer only)!
<br />
<br />How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???
<br />
<br />Take care!
<br />Gina

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ginandbrea</b></i>

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Gina</end quote></div>

We replace the tubing whenever it seems like we need it. My sons very often get condensation and forget to blow it out after the treatments. It seems gross to use it after the water has been sitting around. They also carelessly let the hose fall on the floor when they take the cup off GROSS<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> We usually change it about once a month. We make sure we get extra tubing from the hospital when we're in for backup.

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ginandbrea</b></i>

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Gina</end quote></div>

We replace the tubing whenever it seems like we need it. My sons very often get condensation and forget to blow it out after the treatments. It seems gross to use it after the water has been sitting around. They also carelessly let the hose fall on the floor when they take the cup off GROSS<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> We usually change it about once a month. We make sure we get extra tubing from the hospital when we're in for backup.

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ginandbrea</b></i>

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Gina</end quote></div>

We replace the tubing whenever it seems like we need it. My sons very often get condensation and forget to blow it out after the treatments. It seems gross to use it after the water has been sitting around. They also carelessly let the hose fall on the floor when they take the cup off GROSS<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> We usually change it about once a month. We make sure we get extra tubing from the hospital when we're in for backup.

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ginandbrea</b></i>

How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???

Gina</end quote>

We replace the tubing whenever it seems like we need it. My sons very often get condensation and forget to blow it out after the treatments. It seems gross to use it after the water has been sitting around. They also carelessly let the hose fall on the floor when they take the cup off GROSS<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> We usually change it about once a month. We make sure we get extra tubing from the hospital when we're in for backup.

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ginandbrea</b></i>
<br />
<br />How often do you guys replace the tubing ??? I usually replace monthly, is this too often, not often enough ???
<br />
<br />Gina</end quote>
<br />
<br />We replace the tubing whenever it seems like we need it. My sons very often get condensation and forget to blow it out after the treatments. It seems gross to use it after the water has been sitting around. They also carelessly let the hose fall on the floor when they take the cup off GROSS<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> We usually change it about once a month. We make sure we get extra tubing from the hospital when we're in for backup.