A little concerned about non-cf daughter

[TonyaH]

<P>I guess I just need a place to vent/ find some reassurance from a group who might have experience with this..</P>
<P>My nine year old daughter who is a carrier has been having stomach issues for almost a week now.  About 20 minutes after she eats anything, she is in the bathroom with stools that are identical to what my son had before he was diagnosed and went on enzymes.  She has no fever, feels fine aside from stomach pain right after she eats and uses the bathroom.</P>
<P> </P>
<P>I am sure this is a strange sudden-onset allergy or intolerance of some sort, and we are seeing the doctor tomorrow.  But I am beginning to realize I am a little more on-edge about this that I thought I was.  She has never shown any signs of a food allergy.  Isn't it strange to have such a sudden onset like this?  I find myself second-guessing her genotype results when we had her cord blood tested for Andrew's two mutations when he was born.  </P>
<P>Am I silly to worry?  Do any of you have non-cf kids who have had GI issues that resembled malabsorbtion in your cfer?</P>

 

[TonyaH]

<P>I guess I just need a place to vent/ find some reassurance from a group who might have experience with this..</P>
<P>My nine year old daughter who is a carrier has been having stomach issues for almost a week now. About 20 minutes after she eats anything, she is in the bathroom with stools that are identical to what my son had before he was diagnosed and went on enzymes. She has no fever, feels fine aside from stomach pain right after she eats and uses the bathroom.</P>
<P></P>
<P>I am sure this is a strange sudden-onset allergy or intolerance of some sort, and we are seeing the doctor tomorrow. But I am beginning to realize I am a little more on-edge about this that I thought I was. She has never shown any signs of a food allergy. Isn't it strange to have such a sudden onset like this? I find myself second-guessing her genotype results when we had her cord blood tested for Andrew's two mutations when he was born. </P>
<P>Am I silly to worry? Do any of you have non-cf kids who have had GI issues that resembled malabsorbtion in your cfer?</P>

 

[TonyaH]

<P>I guess I just need a place to vent/ find some reassurance from a group who might have experience with this..</P>
<P>My nine year old daughter who is a carrier has been having stomach issues for almost a week now. About 20 minutes after she eats anything, she is in the bathroom with stools that are identical to what my son had before he was diagnosed and went on enzymes. She has no fever, feels fine aside from stomach pain right after she eats and uses the bathroom.</P>
<P></P>
<P>I am sure this is a strange sudden-onset allergy or intolerance of some sort, and we are seeing the doctor tomorrow. But I am beginning to realize I am a little more on-edge about this that I thought I was. She has never shown any signs of a food allergy. Isn't it strange to have such a sudden onset like this? I find myself second-guessing her genotype results when we had her cord blood tested for Andrew's two mutations when he was born. </P>
<P>Am I silly to worry? Do any of you have non-cf kids who have had GI issues that resembled malabsorbtion in your cfer?<BR></P>

 

[Ratatosk]

I guess I'd be concerned as well, probably double check the test results from the cord blood. Is she a carrier? Could it be a symptomatic carrier issue?

 

[Ratatosk]

I guess I'd be concerned as well, probably double check the test results from the cord blood. Is she a carrier? Could it be a symptomatic carrier issue?

 

[Ratatosk]

I guess I'd be concerned as well, probably double check the test results from the cord blood. Is she a carrier? Could it be a symptomatic carrier issue?

 

[Rebjane]

Could it be a mild stomache bug? Is she anxious about anything at school, friends?

My non CF'er when he was 5-6 years old had episodes of throwing up after drinking chocolate milk. We realized if we only let him drink one chocolate milk once in a while he would not throw up. I was worried at the time he could have CF, though he had really no symptoms what so ever.

My daughter has 2 mutations that cause typical CF so logically thinking I knew my son did not Have CF but it bothered me alot. He had a negative sweat test. i could not lay my worrys to rest until I had carrier testing done on my son(fortunately our pediatrician ordered it for my sanity, ) Found out my son carries neither CF mutation me and my husband have.

Do you know what mutations your son has?

 

[Rebjane]

Could it be a mild stomache bug? Is she anxious about anything at school, friends?

My non CF'er when he was 5-6 years old had episodes of throwing up after drinking chocolate milk. We realized if we only let him drink one chocolate milk once in a while he would not throw up. I was worried at the time he could have CF, though he had really no symptoms what so ever.

My daughter has 2 mutations that cause typical CF so logically thinking I knew my son did not Have CF but it bothered me alot. He had a negative sweat test. i could not lay my worrys to rest until I had carrier testing done on my son(fortunately our pediatrician ordered it for my sanity, ) Found out my son carries neither CF mutation me and my husband have.

Do you know what mutations your son has?

 

[Rebjane]

Could it be a mild stomache bug? Is she anxious about anything at school, friends?
<br />
<br />My non CF'er when he was 5-6 years old had episodes of throwing up after drinking chocolate milk. We realized if we only let him drink one chocolate milk once in a while he would not throw up. I was worried at the time he could have CF, though he had really no symptoms what so ever.
<br />
<br />My daughter has 2 mutations that cause typical CF so logically thinking I knew my son did not Have CF but it bothered me alot. He had a negative sweat test. i could not lay my worrys to rest until I had carrier testing done on my son(fortunately our pediatrician ordered it for my sanity, ) Found out my son carries neither CF mutation me and my husband have.
<br />
<br />Do you know what mutations your son has?

 

[TonyaH]

Thanks girls,
Yes, Becca is a known carrier. Andrew's mutations are DF508 and 1138insG. I need to look up Becca's results. I'm pretty sure she is DF508. I've just heard of unique situations where a second sibling ends up with a third mutation unknown to the parents..where two mutations were found on the same alelle...so my mind is just wandering. It didn't help that our peds nurse told me over the phone that it is unlikely a food allergy, as usually you have small symptoms leading up to the gastro trouble Becca is having now.

We see the doctor at 1:00 tomorrow. I'm sure this is something very simple to fix. But, I can't help but listen to that little voice in the back of my mind. It has me a little nervous.

 

[TonyaH]

Thanks girls,
Yes, Becca is a known carrier. Andrew's mutations are DF508 and 1138insG. I need to look up Becca's results. I'm pretty sure she is DF508. I've just heard of unique situations where a second sibling ends up with a third mutation unknown to the parents..where two mutations were found on the same alelle...so my mind is just wandering. It didn't help that our peds nurse told me over the phone that it is unlikely a food allergy, as usually you have small symptoms leading up to the gastro trouble Becca is having now.

We see the doctor at 1:00 tomorrow. I'm sure this is something very simple to fix. But, I can't help but listen to that little voice in the back of my mind. It has me a little nervous.

 

[TonyaH]

Thanks girls,
<br />Yes, Becca is a known carrier. Andrew's mutations are DF508 and 1138insG. I need to look up Becca's results. I'm pretty sure she is DF508. I've just heard of unique situations where a second sibling ends up with a third mutation unknown to the parents..where two mutations were found on the same alelle...so my mind is just wandering. It didn't help that our peds nurse told me over the phone that it is unlikely a food allergy, as usually you have small symptoms leading up to the gastro trouble Becca is having now.
<br />
<br />We see the doctor at 1:00 tomorrow. I'm sure this is something very simple to fix. But, I can't help but listen to that little voice in the back of my mind. It has me a little nervous.

 

[imported_Momto2]

carriers can have symptoms and a lot of folks with CF seem to have GI stuff that turns off and on. The start of puberty (around 9-13) and the end of it, the hormonal stuff, can trigger the rest of the body to increase or decrease symptomology. I know if happened to me. As an aside, my mom and grandma, both carriers, have always had asthma, sensitive lungs, copd, stomach issues here and there, developed blood sugar issues. I would consider that mildly symptomatic even though it has not been severe enough to have effected their life span.

Please let us know what you find. I hope it is good news : )

 

[imported_Momto2]

carriers can have symptoms and a lot of folks with CF seem to have GI stuff that turns off and on. The start of puberty (around 9-13) and the end of it, the hormonal stuff, can trigger the rest of the body to increase or decrease symptomology. I know if happened to me. As an aside, my mom and grandma, both carriers, have always had asthma, sensitive lungs, copd, stomach issues here and there, developed blood sugar issues. I would consider that mildly symptomatic even though it has not been severe enough to have effected their life span.

Please let us know what you find. I hope it is good news : )

 

[imported_Momto2]

carriers can have symptoms and a lot of folks with CF seem to have GI stuff that turns off and on. The start of puberty (around 9-13) and the end of it, the hormonal stuff, can trigger the rest of the body to increase or decrease symptomology. I know if happened to me. As an aside, my mom and grandma, both carriers, have always had asthma, sensitive lungs, copd, stomach issues here and there, developed blood sugar issues. I would consider that mildly symptomatic even though it has not been severe enough to have effected their life span.
<br />
<br />Please let us know what you find. I hope it is good news : )

 

[Melissa75]

Because of the sudden onset, I think your pediatrician is more likely to suspect a virus or possibly a parasite.
She/he'll ask about fever (listeria, ecoli, food poisoning) and blood in stools. Then ask about travel or exposure to standing water on hikes/camping (giardia, etc).
Then either do stool tests right away or advise the BRAT diet followed by a call for the tests if it persists more than another week.
My youngest (6) had the longest stomach virus ever this October. The ped and I agreed that if round 4 of vomit and diarrhea came about, we'd do the stool tests. In his case, he was sick for a day, fine for a week, sick for a day, fine for a week, sick for a day. By sick I mean vomiting every 20 min for 6-12 hours and/or diarrhea on about the same schedule.
I think it was a new version of the 24 hr flu. My other son and husband had it for a day. My daughter not at all. Me, I had the runs like your daughter after meals (and after exercise and for weeks).
I hope you can resolve this soon. I realize the uncertainty of her being a carrier makes this much more worrisome than what I am describing.

 

[Melissa75]

Because of the sudden onset, I think your pediatrician is more likely to suspect a virus or possibly a parasite.
She/he'll ask about fever (listeria, ecoli, food poisoning) and blood in stools. Then ask about travel or exposure to standing water on hikes/camping (giardia, etc).
Then either do stool tests right away or advise the BRAT diet followed by a call for the tests if it persists more than another week.
My youngest (6) had the longest stomach virus ever this October. The ped and I agreed that if round 4 of vomit and diarrhea came about, we'd do the stool tests. In his case, he was sick for a day, fine for a week, sick for a day, fine for a week, sick for a day. By sick I mean vomiting every 20 min for 6-12 hours and/or diarrhea on about the same schedule.
I think it was a new version of the 24 hr flu. My other son and husband had it for a day. My daughter not at all. Me, I had the runs like your daughter after meals (and after exercise and for weeks).
I hope you can resolve this soon. I realize the uncertainty of her being a carrier makes this much more worrisome than what I am describing.

 

[Melissa75]

Because of the sudden onset, I think your pediatrician is more likely to suspect a virus or possibly a parasite.
<br />She/he'll ask about fever (listeria, ecoli, food poisoning) and blood in stools. Then ask about travel or exposure to standing water on hikes/camping (giardia, etc).
<br />Then either do stool tests right away or advise the BRAT diet followed by a call for the tests if it persists more than another week.
<br />My youngest (6) had the longest stomach virus ever this October. The ped and I agreed that if round 4 of vomit and diarrhea came about, we'd do the stool tests. In his case, he was sick for a day, fine for a week, sick for a day, fine for a week, sick for a day. By sick I mean vomiting every 20 min for 6-12 hours and/or diarrhea on about the same schedule.
<br />I think it was a new version of the 24 hr flu. My other son and husband had it for a day. My daughter not at all. Me, I had the runs like your daughter after meals (and after exercise and for weeks).
<br />I hope you can resolve this soon. I realize the uncertainty of her being a carrier makes this much more worrisome than what I am describing.

 

[Mommafirst]

ugh -- I'm sorry to hear this Tonya. Hopefully its a kid thing and not a CF thing. . .but its so hard not to "go there" when these things come up with our non-CF kids. My middle son is very very tiny, like send us to an endocrinologist tiny. I have been known to call my CF center many times asking them to recheck his bloodwork and assure me he doesn't have CF. He is a carrier of my husband's gene and in order for him to have a different mutation than mine that Alyssa has, I'd have to also have CF. . .which doesn't seem possible. But my mind goes there every time.

Hoping that Becca is feeling better soon and that you don't have anything chronic on your hands here.

 

[Mommafirst]

ugh -- I'm sorry to hear this Tonya. Hopefully its a kid thing and not a CF thing. . .but its so hard not to "go there" when these things come up with our non-CF kids. My middle son is very very tiny, like send us to an endocrinologist tiny. I have been known to call my CF center many times asking them to recheck his bloodwork and assure me he doesn't have CF. He is a carrier of my husband's gene and in order for him to have a different mutation than mine that Alyssa has, I'd have to also have CF. . .which doesn't seem possible. But my mind goes there every time.

Hoping that Becca is feeling better soon and that you don't have anything chronic on your hands here.