A little concerned about non-cf daughter

T

TonyaH

Guest
Lauren, you have an amazing memory! My mom was never officially diagnosed with CF because she always had negative sweat tests and at the time that was the only tool her doc used to rule out CF. But she was always treated as a cf patient with the same iv meds, therapies, etc. When Andrew was diagnosed all of the pieces of the puzzle came together.

I'm not thinking this is CF either....it's just on the back burner as something to think about. But at this point I also don't think it's a virus. I hope I am proven wrong.
 
T

TonyaH

Guest
Lauren, you have an amazing memory! My mom was never officially diagnosed with CF because she always had negative sweat tests and at the time that was the only tool her doc used to rule out CF. But she was always treated as a cf patient with the same iv meds, therapies, etc. When Andrew was diagnosed all of the pieces of the puzzle came together.
<br />
<br />I'm not thinking this is CF either....it's just on the back burner as something to think about. But at this point I also don't think it's a virus. I hope I am proven wrong.
<br />
 
T

TonyaH

Guest
Hi Everyone,

I had tried to update this thread many times back in November, but was having issues getting my responses to save. I believe many were having trouble at that time. Anyway, I did not want to leave this hanging for others who are searching through the forums for like information.

My daughter did end up getting better. It took a few more weeks, but she is better. I am noticing small changes in her digestive habits, but nothing that has us back to the pediatrician. I have been watching her closely to see if I can pinpoint what she is eating before she has a problem. I'm having a little trouble narrowing anything down.

Anyway, I just wanted to clarify for those searching in the future that her symptoms have greatly resolved themselves and I am pretty sure what we are dealing with here is a very mild food allergy or intolerance.

Thanks for all of the responses!
 
T

TonyaH

Guest
Hi Everyone,

I had tried to update this thread many times back in November, but was having issues getting my responses to save. I believe many were having trouble at that time. Anyway, I did not want to leave this hanging for others who are searching through the forums for like information.

My daughter did end up getting better. It took a few more weeks, but she is better. I am noticing small changes in her digestive habits, but nothing that has us back to the pediatrician. I have been watching her closely to see if I can pinpoint what she is eating before she has a problem. I'm having a little trouble narrowing anything down.

Anyway, I just wanted to clarify for those searching in the future that her symptoms have greatly resolved themselves and I am pretty sure what we are dealing with here is a very mild food allergy or intolerance.

Thanks for all of the responses!
 
P

Printer

Active member
Additional mutations have been discovered in the past nine years. I would do another Full CF Sequencing just to be on the safe side.

Bill
 
P

Printer

Active member
Additional mutations have been discovered in the past nine years. I would do another Full CF Sequencing just to be on the safe side.

Bill
 
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