Adults, tell me about your health as a child

[LouLou]

I had pneumonia and constant "colds" before the age of 2.5 years when I was diagnosed. The diagnosis was delayed that long because I was so healthy looking (chubby). Even with a positive sweat test doctors said it wasn't possible. I had bowel movement issues - messy, messy diapers. My mom tells me a story when she just had to get out of the house, took me to the mall which was a bit of a drive. She went to get me out of the car seat and I was covered in poop all the way to my armpits. So I pretty much had it all - digestive and lung involvement from a young age.

I had a small pneumonia again at age 5 but wasn't hospitalized - oral antibiotics and extra pt. Then no hospitalizations until age 19 and since then....none other than getting my gallbladder out in '04 for which I didn't even stay overnight (I have bad hospital-phobia).

Preventative care is why I'm so healthy today.

 

[LouLou]

I had pneumonia and constant "colds" before the age of 2.5 years when I was diagnosed. The diagnosis was delayed that long because I was so healthy looking (chubby). Even with a positive sweat test doctors said it wasn't possible. I had bowel movement issues - messy, messy diapers. My mom tells me a story when she just had to get out of the house, took me to the mall which was a bit of a drive. She went to get me out of the car seat and I was covered in poop all the way to my armpits. So I pretty much had it all - digestive and lung involvement from a young age.

I had a small pneumonia again at age 5 but wasn't hospitalized - oral antibiotics and extra pt. Then no hospitalizations until age 19 and since then....none other than getting my gallbladder out in '04 for which I didn't even stay overnight (I have bad hospital-phobia).

Preventative care is why I'm so healthy today.

 

[LouLou]

I had pneumonia and constant "colds" before the age of 2.5 years when I was diagnosed. The diagnosis was delayed that long because I was so healthy looking (chubby). Even with a positive sweat test doctors said it wasn't possible. I had bowel movement issues - messy, messy diapers. My mom tells me a story when she just had to get out of the house, took me to the mall which was a bit of a drive. She went to get me out of the car seat and I was covered in poop all the way to my armpits. So I pretty much had it all - digestive and lung involvement from a young age.

I had a small pneumonia again at age 5 but wasn't hospitalized - oral antibiotics and extra pt. Then no hospitalizations until age 19 and since then....none other than getting my gallbladder out in '04 for which I didn't even stay overnight (I have bad hospital-phobia).

Preventative care is why I'm so healthy today.

 

[LouLou]

I had pneumonia and constant "colds" before the age of 2.5 years when I was diagnosed. The diagnosis was delayed that long because I was so healthy looking (chubby). Even with a positive sweat test doctors said it wasn't possible. I had bowel movement issues - messy, messy diapers. My mom tells me a story when she just had to get out of the house, took me to the mall which was a bit of a drive. She went to get me out of the car seat and I was covered in poop all the way to my armpits. So I pretty much had it all - digestive and lung involvement from a young age.

I had a small pneumonia again at age 5 but wasn't hospitalized - oral antibiotics and extra pt. Then no hospitalizations until age 19 and since then....none other than getting my gallbladder out in '04 for which I didn't even stay overnight (I have bad hospital-phobia).

Preventative care is why I'm so healthy today.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[Chaggie]

I had no issues other than weight until i was 18. Iplayed all sports, focusing on hockey. Was never hospitalized, cultured anything or had sinus issues. My 1st PA culture was at 17, I was hospitalized for viral pneumonia at 18 while in college, then again at 25.

I was lucky.

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[dbtoo]

I hate the concept of median age. Really, they (CFF) can only report on those individuals who have agreed to permit their data to be entered into the CFF systems. Many adult CF's choose to be followed through pulmanary specialists rather than through a 'child's clinic', since most clinic's are still run by children's hospitals and are only 'adult' in that they schedule those 21 and older on particular days of the week/month. They have strict rules about what/how/when they can record the data. I believe that you have to attend clinic once every three months in order to be included into their data. I attempt to get to clinic once every three years. Since the numbers are not reliable they should not be taken literal! Same thing with this board - who's to say that most of the members had it hard, but that doesn't mean there aren't 1000's not on this board, who didn't!

Most importantly, the uniqueness of the disease is what will dictate what your child will go through, not what others here went through. Her life experience will in no way reflect the experiences of others on this board. Do not attempt to draw hope from what others here have to say. Draw hope from the fact that <u>you will </u>steel your will against the disease and do all in your power to provide a quality of life for your daughter, regardless of its quantity! Becky - <b>YOU ARE</b> Hayley's hope!

 

[rcq925]

Thanks Emily, Babara, Lauren and Chris!! I really appreciate your replies. I am staying on top of everything preventative that I can and we (her doctor and I) are very aggressive with her treatments, so maybe this is why she seems to be sick all the time to me. I want to stay right on top of everything as to prevent any lung damage that we can because I know once the damage is there we cannot reverse it!

Right now she is on her 2nd oral antibiotic in the past week, the first one Clyndamycin, we did for 5 days and it did nothing for the cough she has, just started Ceftin on Tuesday and she seems slightly better!

Anyway, thanks so much for taking the time to reply and the rest of you keep the replies coming!!

 

[rcq925]

Thanks Emily, Babara, Lauren and Chris!! I really appreciate your replies. I am staying on top of everything preventative that I can and we (her doctor and I) are very aggressive with her treatments, so maybe this is why she seems to be sick all the time to me. I want to stay right on top of everything as to prevent any lung damage that we can because I know once the damage is there we cannot reverse it!

Right now she is on her 2nd oral antibiotic in the past week, the first one Clyndamycin, we did for 5 days and it did nothing for the cough she has, just started Ceftin on Tuesday and she seems slightly better!

Anyway, thanks so much for taking the time to reply and the rest of you keep the replies coming!!

 

[rcq925]

Thanks Emily, Babara, Lauren and Chris!! I really appreciate your replies. I am staying on top of everything preventative that I can and we (her doctor and I) are very aggressive with her treatments, so maybe this is why she seems to be sick all the time to me. I want to stay right on top of everything as to prevent any lung damage that we can because I know once the damage is there we cannot reverse it!

Right now she is on her 2nd oral antibiotic in the past week, the first one Clyndamycin, we did for 5 days and it did nothing for the cough she has, just started Ceftin on Tuesday and she seems slightly better!

Anyway, thanks so much for taking the time to reply and the rest of you keep the replies coming!!

 

[rcq925]

Thanks Emily, Babara, Lauren and Chris!! I really appreciate your replies. I am staying on top of everything preventative that I can and we (her doctor and I) are very aggressive with her treatments, so maybe this is why she seems to be sick all the time to me. I want to stay right on top of everything as to prevent any lung damage that we can because I know once the damage is there we cannot reverse it!

Right now she is on her 2nd oral antibiotic in the past week, the first one Clyndamycin, we did for 5 days and it did nothing for the cough she has, just started Ceftin on Tuesday and she seems slightly better!

Anyway, thanks so much for taking the time to reply and the rest of you keep the replies coming!!