after transplant

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Emily65Roses

New member
I have an understanding of considering the process. And do NOT tell me what I can or can't comment on. Having had a transplant doesn't make you so special that you own the transplant topic, or can decide who can or cannot reply to it.

And I didn't judge anyone's positivity regarding the situation. You HAVE to be positive to make it through that mess. I think it makes perfect sense. I told you what I have a problem with. If you can't read my words properly, do not respond.
 
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nicolaj

New member
WOW!! so much information to take in! i definately believe in positive thinking when your feeling sh*t. dont believe in giving up and just lying in your bed. Thank you every one for your comments

nicola xxx
 
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nicolaj

New member
WOW!! so much information to take in! i definately believe in positive thinking when your feeling sh*t. dont believe in giving up and just lying in your bed. Thank you every one for your comments

nicola xxx
 
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nicolaj

New member
WOW!! so much information to take in! i definately believe in positive thinking when your feeling sh*t. dont believe in giving up and just lying in your bed. Thank you every one for your comments

nicola xxx
 
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summer732

New member
Anytime Nicola!

Risa, I feel the same! We definitely do have s similar outlook on life and our situation!

Emily, listen, i'm not telling you not to comment on a topic. This is an open forum where everyone should share their opinions. I do not think I am special and own the topic of transplant, but yes i do have a deeper understanding of transplant then you do. That is just a fact since I went through the experience of it. And I will have that deeper understanding until you go through it yourself (and hopefully you will never have to go through it! I would love to see you survive for as long as possible with your own lungs being healthy). And I read your words, but did you read mine? Where in any of my posts did I say that someone who isn't as positive as me died because of their own failings. I don't believe I EVER said that. I simply said that being positive helps through the entire transplant experience before, during, after, and the ups and downs and realities of post-transplant That is what I am saying. I never commented on anything other than that.

What everyone also has to understand is that getting a transplant is a life changing experience, whether good or bad. I am not the same person that I was before my transplant. And there is no helping that. I have changed. I was given a gift and I will forever be positive and thankful for that, no matter what happens.
 
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summer732

New member
Anytime Nicola!

Risa, I feel the same! We definitely do have s similar outlook on life and our situation!

Emily, listen, i'm not telling you not to comment on a topic. This is an open forum where everyone should share their opinions. I do not think I am special and own the topic of transplant, but yes i do have a deeper understanding of transplant then you do. That is just a fact since I went through the experience of it. And I will have that deeper understanding until you go through it yourself (and hopefully you will never have to go through it! I would love to see you survive for as long as possible with your own lungs being healthy). And I read your words, but did you read mine? Where in any of my posts did I say that someone who isn't as positive as me died because of their own failings. I don't believe I EVER said that. I simply said that being positive helps through the entire transplant experience before, during, after, and the ups and downs and realities of post-transplant That is what I am saying. I never commented on anything other than that.

What everyone also has to understand is that getting a transplant is a life changing experience, whether good or bad. I am not the same person that I was before my transplant. And there is no helping that. I have changed. I was given a gift and I will forever be positive and thankful for that, no matter what happens.
 
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summer732

New member
Anytime Nicola!

Risa, I feel the same! We definitely do have s similar outlook on life and our situation!

Emily, listen, i'm not telling you not to comment on a topic. This is an open forum where everyone should share their opinions. I do not think I am special and own the topic of transplant, but yes i do have a deeper understanding of transplant then you do. That is just a fact since I went through the experience of it. And I will have that deeper understanding until you go through it yourself (and hopefully you will never have to go through it! I would love to see you survive for as long as possible with your own lungs being healthy). And I read your words, but did you read mine? Where in any of my posts did I say that someone who isn't as positive as me died because of their own failings. I don't believe I EVER said that. I simply said that being positive helps through the entire transplant experience before, during, after, and the ups and downs and realities of post-transplant That is what I am saying. I never commented on anything other than that.

What everyone also has to understand is that getting a transplant is a life changing experience, whether good or bad. I am not the same person that I was before my transplant. And there is no helping that. I have changed. I was given a gift and I will forever be positive and thankful for that, no matter what happens.
 
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Emily65Roses

New member
Margaret, I wasn't talking to you. Risa was telling me I haven't gone through a transplant and therefore my words weren't worth sharing. I know you didn't tell me not to share. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also know that you have a <b>better</b> understanding of the process than I do, by a long shot. I just know that I'm allowed to share my two cents, and that's why I said what I said (though again, it wasn't at you).

Also, I know you didn't say that anyone who dies did so of their own failings, but that's what that attitude tends to lean to, and I wanted to take two seconds and clarify. Saying that someone who is positive survived <i>because</i> of it logically deduces that someone who died was not, and it was their own fault. I know that's not specifically what people are saying, but it tends to lead to that thought process, and that bothers me.

Risa, I was not "having the last word," so take your condescending attitude elsewhere. I was clarifying what you didn't seem to understand. And I don't care if I haven't gone through a transplant yet, I'm allowed to talk about it. If you can't deal with it, that's YOUR problem.
 
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Emily65Roses

New member
Margaret, I wasn't talking to you. Risa was telling me I haven't gone through a transplant and therefore my words weren't worth sharing. I know you didn't tell me not to share. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also know that you have a <b>better</b> understanding of the process than I do, by a long shot. I just know that I'm allowed to share my two cents, and that's why I said what I said (though again, it wasn't at you).

Also, I know you didn't say that anyone who dies did so of their own failings, but that's what that attitude tends to lean to, and I wanted to take two seconds and clarify. Saying that someone who is positive survived <i>because</i> of it logically deduces that someone who died was not, and it was their own fault. I know that's not specifically what people are saying, but it tends to lead to that thought process, and that bothers me.

Risa, I was not "having the last word," so take your condescending attitude elsewhere. I was clarifying what you didn't seem to understand. And I don't care if I haven't gone through a transplant yet, I'm allowed to talk about it. If you can't deal with it, that's YOUR problem.
 
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Emily65Roses

New member
Margaret, I wasn't talking to you. Risa was telling me I haven't gone through a transplant and therefore my words weren't worth sharing. I know you didn't tell me not to share. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also know that you have a <b>better</b> understanding of the process than I do, by a long shot. I just know that I'm allowed to share my two cents, and that's why I said what I said (though again, it wasn't at you).

Also, I know you didn't say that anyone who dies did so of their own failings, but that's what that attitude tends to lean to, and I wanted to take two seconds and clarify. Saying that someone who is positive survived <i>because</i> of it logically deduces that someone who died was not, and it was their own fault. I know that's not specifically what people are saying, but it tends to lead to that thought process, and that bothers me.

Risa, I was not "having the last word," so take your condescending attitude elsewhere. I was clarifying what you didn't seem to understand. And I don't care if I haven't gone through a transplant yet, I'm allowed to talk about it. If you can't deal with it, that's YOUR problem.
 
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sue35

New member
I think what Emily was talking about (could be totally wrong but this is just judging from one of her blog entries) is the whole idea of "The Secret" that so many people are jumping up and down over. The idea is, is that if you think positively then it will happen. So, if you think your transplant will work then it will, no ifs ands or buts. In fact, that is basically all you have to do, is just think it will be fine and then it will.

I would think transplant people (and all people with CF) would not like this thought because I know you go through a LOT more than just thinking positively. You take medicine, take care of yourself, and that is just the begining. I think that Emily was just saying that thinking positively is not the only thing to do. Everyone should think positively but not only depend on that thinking.

It would be like if you thought positively and then the lungs didn't work and then you got so extremely upset because you felt that if you thought positively then everything would work. You need positive thinking AND realistic thinking AND fighting to get better.

Now I could be totally wrong in that this is what Emily thinks but this is what I thought when reading it.
 
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sue35

New member
I think what Emily was talking about (could be totally wrong but this is just judging from one of her blog entries) is the whole idea of "The Secret" that so many people are jumping up and down over. The idea is, is that if you think positively then it will happen. So, if you think your transplant will work then it will, no ifs ands or buts. In fact, that is basically all you have to do, is just think it will be fine and then it will.

I would think transplant people (and all people with CF) would not like this thought because I know you go through a LOT more than just thinking positively. You take medicine, take care of yourself, and that is just the begining. I think that Emily was just saying that thinking positively is not the only thing to do. Everyone should think positively but not only depend on that thinking.

It would be like if you thought positively and then the lungs didn't work and then you got so extremely upset because you felt that if you thought positively then everything would work. You need positive thinking AND realistic thinking AND fighting to get better.

Now I could be totally wrong in that this is what Emily thinks but this is what I thought when reading it.
 
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sue35

New member
I think what Emily was talking about (could be totally wrong but this is just judging from one of her blog entries) is the whole idea of "The Secret" that so many people are jumping up and down over. The idea is, is that if you think positively then it will happen. So, if you think your transplant will work then it will, no ifs ands or buts. In fact, that is basically all you have to do, is just think it will be fine and then it will.

I would think transplant people (and all people with CF) would not like this thought because I know you go through a LOT more than just thinking positively. You take medicine, take care of yourself, and that is just the begining. I think that Emily was just saying that thinking positively is not the only thing to do. Everyone should think positively but not only depend on that thinking.

It would be like if you thought positively and then the lungs didn't work and then you got so extremely upset because you felt that if you thought positively then everything would work. You need positive thinking AND realistic thinking AND fighting to get better.

Now I could be totally wrong in that this is what Emily thinks but this is what I thought when reading it.
 
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summer732

New member
Sue I would have to agree with you too. It is a concoction of very many different things. Fighting, attitude, compliancy. Everything. It's a package.
 
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summer732

New member
Sue I would have to agree with you too. It is a concoction of very many different things. Fighting, attitude, compliancy. Everything. It's a package.
 
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summer732

New member
Sue I would have to agree with you too. It is a concoction of very many different things. Fighting, attitude, compliancy. Everything. It's a package.
 
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LynnAngel

Guest
My sister has CF and she is having a hard time getting on the list for a lung transplant. Does anyone know of who to contact to question this? She is on oxygen all the time now.
 
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