arche4life
New member
I have been having alot of problems lately with my digestive system. It constantly feels like there is air in my stomach that won't leave and it has made living life very uncomfortable. My stomach is constantly distended, the site of my feeding to is particularly painful, my stomach is always making really loud noises, louder then usual and it basically feels like if you were to stick a giant needle in me I would deflate like a balloon. It is particularly bad after I eat anything and it makes it even more difficult to breath.
I have been having the problem with air for about 2 years now but it has gotten much worse lately. I been telling my doctor and my nutritionist about this for probably a year now but I have come to realize they are completely useless. They perscribe random medications that don't work, don't follow up on problems and generally don't seem to care. Their answers usually consist of either "yeah that will happen" or "take tylenol" and I have kind of gotten to the point of not contacting my clinic about anything unless I am basically on my death bed.
Does anyone else get this? Do you know what it is called or caused by? Most importantly do you know how to stop it?
Please please please help.
Thanks
-Annie
23 F w/ CFRD, diagnosed at birth, on the top of the transplant list since mid November!!
I have been having the problem with air for about 2 years now but it has gotten much worse lately. I been telling my doctor and my nutritionist about this for probably a year now but I have come to realize they are completely useless. They perscribe random medications that don't work, don't follow up on problems and generally don't seem to care. Their answers usually consist of either "yeah that will happen" or "take tylenol" and I have kind of gotten to the point of not contacting my clinic about anything unless I am basically on my death bed.
Does anyone else get this? Do you know what it is called or caused by? Most importantly do you know how to stop it?
Please please please help.
Thanks
-Annie
23 F w/ CFRD, diagnosed at birth, on the top of the transplant list since mid November!!