Amnio test said my baby is positive for CF

[sue35]

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

I understand where people are coming from but I just don't agree with us telling someone they don't belong here. Yes, there are other better places for her but that doesn't mean anyone of us have a right to tell her not to come here. The great thing about the internet is that it gives us the ability to pick and choose what we read.

 

[sue35]

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

I understand where people are coming from but I just don't agree with us telling someone they don't belong here. Yes, there are other better places for her but that doesn't mean anyone of us have a right to tell her not to come here. The great thing about the internet is that it gives us the ability to pick and choose what we read.

 

[sue35]

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

I understand where people are coming from but I just don't agree with us telling someone they don't belong here. Yes, there are other better places for her but that doesn't mean anyone of us have a right to tell her not to come here. The great thing about the internet is that it gives us the ability to pick and choose what we read.

 

[sue35]

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

I understand where people are coming from but I just don't agree with us telling someone they don't belong here. Yes, there are other better places for her but that doesn't mean anyone of us have a right to tell her not to come here. The great thing about the internet is that it gives us the ability to pick and choose what we read.

 

[sue35]

So parents whose children have died don't belong here? Or people whose SO's died or friend died?
<br />
<br />I understand where people are coming from but I just don't agree with us telling someone they don't belong here. Yes, there are other better places for her but that doesn't mean anyone of us have a right to tell her not to come here. The great thing about the internet is that it gives us the ability to pick and choose what we read.
<br />
<br />

 

[kmaried]

Sue,

While I agree with you that everyone has a right to their own opinion, I think we can all agree that this particular forum's first and foremost objective is to provide informative and emotional support to those with CF.

My fear is that at this point, this post may do more emotional harm than good to a emotionally vulnerable cf-er or cf caregiver/friend/family -- past or present.

I don't want any cf-er to stumble across this post and feel they are a burden or not worthy of everything beautiful this world has to offer. I just want to remind them of the question posed to a group of cf-ers... If you could re-live your life without CF and have to give up all of the experiences and all of the people you've met and all your life perspectives as a result of CF, would you? And suprisingly, most people said no.

Yes, our lives can be hard, and sometimes we have a bad day... but we also have an appreciation for life few others have at our age. We are able to meet amazing people, and see just how special the family, friends and even the CF community in our lives are!! And we can smile, laugh, and say we're okay when people look at us with sympathy, because we know just how strong WE are inside! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kmaried]

Sue,

While I agree with you that everyone has a right to their own opinion, I think we can all agree that this particular forum's first and foremost objective is to provide informative and emotional support to those with CF.

My fear is that at this point, this post may do more emotional harm than good to a emotionally vulnerable cf-er or cf caregiver/friend/family -- past or present.

I don't want any cf-er to stumble across this post and feel they are a burden or not worthy of everything beautiful this world has to offer. I just want to remind them of the question posed to a group of cf-ers... If you could re-live your life without CF and have to give up all of the experiences and all of the people you've met and all your life perspectives as a result of CF, would you? And suprisingly, most people said no.

Yes, our lives can be hard, and sometimes we have a bad day... but we also have an appreciation for life few others have at our age. We are able to meet amazing people, and see just how special the family, friends and even the CF community in our lives are!! And we can smile, laugh, and say we're okay when people look at us with sympathy, because we know just how strong WE are inside! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kmaried]

Sue,

While I agree with you that everyone has a right to their own opinion, I think we can all agree that this particular forum's first and foremost objective is to provide informative and emotional support to those with CF.

My fear is that at this point, this post may do more emotional harm than good to a emotionally vulnerable cf-er or cf caregiver/friend/family -- past or present.

I don't want any cf-er to stumble across this post and feel they are a burden or not worthy of everything beautiful this world has to offer. I just want to remind them of the question posed to a group of cf-ers... If you could re-live your life without CF and have to give up all of the experiences and all of the people you've met and all your life perspectives as a result of CF, would you? And suprisingly, most people said no.

Yes, our lives can be hard, and sometimes we have a bad day... but we also have an appreciation for life few others have at our age. We are able to meet amazing people, and see just how special the family, friends and even the CF community in our lives are!! And we can smile, laugh, and say we're okay when people look at us with sympathy, because we know just how strong WE are inside! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kmaried]

Sue,

While I agree with you that everyone has a right to their own opinion, I think we can all agree that this particular forum's first and foremost objective is to provide informative and emotional support to those with CF.

My fear is that at this point, this post may do more emotional harm than good to a emotionally vulnerable cf-er or cf caregiver/friend/family -- past or present.

I don't want any cf-er to stumble across this post and feel they are a burden or not worthy of everything beautiful this world has to offer. I just want to remind them of the question posed to a group of cf-ers... If you could re-live your life without CF and have to give up all of the experiences and all of the people you've met and all your life perspectives as a result of CF, would you? And suprisingly, most people said no.

Yes, our lives can be hard, and sometimes we have a bad day... but we also have an appreciation for life few others have at our age. We are able to meet amazing people, and see just how special the family, friends and even the CF community in our lives are!! And we can smile, laugh, and say we're okay when people look at us with sympathy, because we know just how strong WE are inside! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kmaried]

Sue,
<br />
<br />While I agree with you that everyone has a right to their own opinion, I think we can all agree that this particular forum's first and foremost objective is to provide informative and emotional support to those with CF.
<br />
<br />My fear is that at this point, this post may do more emotional harm than good to a emotionally vulnerable cf-er or cf caregiver/friend/family -- past or present.
<br />
<br />I don't want any cf-er to stumble across this post and feel they are a burden or not worthy of everything beautiful this world has to offer. I just want to remind them of the question posed to a group of cf-ers... If you could re-live your life without CF and have to give up all of the experiences and all of the people you've met and all your life perspectives as a result of CF, would you? And suprisingly, most people said no.
<br />
<br />Yes, our lives can be hard, and sometimes we have a bad day... but we also have an appreciation for life few others have at our age. We are able to meet amazing people, and see just how special the family, friends and even the CF community in our lives are!! And we can smile, laugh, and say we're okay when people look at us with sympathy, because we know just how strong WE are inside! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

</end quote></div>

Those people are very welcome here.

Peanut, however, did not die from CF. She was killed before she had that chance.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

</end quote></div>

Those people are very welcome here.

Peanut, however, did not die from CF. She was killed before she had that chance.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

</end quote></div>

Those people are very welcome here.

Peanut, however, did not die from CF. She was killed before she had that chance.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

So parents whose children have died don't belong here? Or people whose SO's died or friend died?

</end quote>

Those people are very welcome here.

Peanut, however, did not die from CF. She was killed before she had that chance.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>
<br />
<br />So parents whose children have died don't belong here? Or people whose SO's died or friend died?
<br />
<br /></end quote>
<br />
<br />Those people are very welcome here.
<br />
<br />Peanut, however, did not die from CF. She was killed before she had that chance.
<br />
<br />

 

[AnD]

Peanut2008, I apologize for the bluntness, but you have not been affected by CF- you have been affected by having your child diagnosed with a genetic disease at 18 weeks gestation, and the decision you made about what to do about it. It could have been <i>any</i> disease that made you fearful for your and your child's future that put you in this position, not just CF, and you would be dealing with the same issues that you are bringing up in this thread.

What you need is specific counciling to help you deal with what you are going through now.

I hope you realize that it hurts some people here (including myself) knowing that despite all we told you, you decided that the life of a CF patient was not worth being given a chance or worth fighting for.
It goes to the very core of who we are, and unfairly simplifies us to nothing but a disease of suffering, not the people we are, living life <i>with</i> this genetic condition.

I hope you find someone who can help you through this, I hope you can find peace after this, and I hope you come back if you need IVF advice, etc. But please, please, end this thread and find a board that is better suited to your needs regarding the emotional aftermath of your abortion. I'm sure there are sites dedicated to people who have been in your situation, and where you can get more help than you can here. Good luck and I will be praying for healing in your heart. <img src="i/expressions/heart.gif" border="0">

 

[AnD]

Peanut2008, I apologize for the bluntness, but you have not been affected by CF- you have been affected by having your child diagnosed with a genetic disease at 18 weeks gestation, and the decision you made about what to do about it. It could have been <i>any</i> disease that made you fearful for your and your child's future that put you in this position, not just CF, and you would be dealing with the same issues that you are bringing up in this thread.

What you need is specific counciling to help you deal with what you are going through now.

I hope you realize that it hurts some people here (including myself) knowing that despite all we told you, you decided that the life of a CF patient was not worth being given a chance or worth fighting for.
It goes to the very core of who we are, and unfairly simplifies us to nothing but a disease of suffering, not the people we are, living life <i>with</i> this genetic condition.

I hope you find someone who can help you through this, I hope you can find peace after this, and I hope you come back if you need IVF advice, etc. But please, please, end this thread and find a board that is better suited to your needs regarding the emotional aftermath of your abortion. I'm sure there are sites dedicated to people who have been in your situation, and where you can get more help than you can here. Good luck and I will be praying for healing in your heart. <img src="i/expressions/heart.gif" border="0">

 

[AnD]

Peanut2008, I apologize for the bluntness, but you have not been affected by CF- you have been affected by having your child diagnosed with a genetic disease at 18 weeks gestation, and the decision you made about what to do about it. It could have been <i>any</i> disease that made you fearful for your and your child's future that put you in this position, not just CF, and you would be dealing with the same issues that you are bringing up in this thread.

What you need is specific counciling to help you deal with what you are going through now.

I hope you realize that it hurts some people here (including myself) knowing that despite all we told you, you decided that the life of a CF patient was not worth being given a chance or worth fighting for.
It goes to the very core of who we are, and unfairly simplifies us to nothing but a disease of suffering, not the people we are, living life <i>with</i> this genetic condition.

I hope you find someone who can help you through this, I hope you can find peace after this, and I hope you come back if you need IVF advice, etc. But please, please, end this thread and find a board that is better suited to your needs regarding the emotional aftermath of your abortion. I'm sure there are sites dedicated to people who have been in your situation, and where you can get more help than you can here. Good luck and I will be praying for healing in your heart. <img src="i/expressions/heart.gif" border="0">

 

[AnD]

Peanut2008, I apologize for the bluntness, but you have not been affected by CF- you have been affected by having your child diagnosed with a genetic disease at 18 weeks gestation, and the decision you made about what to do about it. It could have been <i>any</i> disease that made you fearful for your and your child's future that put you in this position, not just CF, and you would be dealing with the same issues that you are bringing up in this thread.

What you need is specific counciling to help you deal with what you are going through now.

I hope you realize that it hurts some people here (including myself) knowing that despite all we told you, you decided that the life of a CF patient was not worth being given a chance or worth fighting for.
It goes to the very core of who we are, and unfairly simplifies us to nothing but a disease of suffering, not the people we are, living life <i>with</i> this genetic condition.

I hope you find someone who can help you through this, I hope you can find peace after this, and I hope you come back if you need IVF advice, etc. But please, please, end this thread and find a board that is better suited to your needs regarding the emotional aftermath of your abortion. I'm sure there are sites dedicated to people who have been in your situation, and where you can get more help than you can here. Good luck and I will be praying for healing in your heart. <img src="i/expressions/heart.gif" border="0">

 

[AnD]

Peanut2008, I apologize for the bluntness, but you have not been affected by CF- you have been affected by having your child diagnosed with a genetic disease at 18 weeks gestation, and the decision you made about what to do about it. It could have been <i>any</i> disease that made you fearful for your and your child's future that put you in this position, not just CF, and you would be dealing with the same issues that you are bringing up in this thread.
<br />
<br /> What you need is specific counciling to help you deal with what you are going through now.
<br />
<br />I hope you realize that it hurts some people here (including myself) knowing that despite all we told you, you decided that the life of a CF patient was not worth being given a chance or worth fighting for.
<br />It goes to the very core of who we are, and unfairly simplifies us to nothing but a disease of suffering, not the people we are, living life <i>with</i> this genetic condition.
<br />
<br />I hope you find someone who can help you through this, I hope you can find peace after this, and I hope you come back if you need IVF advice, etc. But please, please, end this thread and find a board that is better suited to your needs regarding the emotional aftermath of your abortion. I'm sure there are sites dedicated to people who have been in your situation, and where you can get more help than you can here. Good luck and I will be praying for healing in your heart. <img src="i/expressions/heart.gif" border="0">