W
welshwitch
Guest
hey. i TOTALLY get it!
about 6 months ago i finally "realized" the severity of CF and all that it entails and that I HAVE TO DEAL WITH THIS FOR THE REST OF MY LIFE...it was too overwhelming for me to deal with. i ventured onto this website and read horrible stories that people my age had been through, read books about transplant survivors and basically had a freakout. i was convinced, i mean, CONVINCED i was going to drop dead tomorrow! logical? not at all. but a normal fear for a CFer? yup.
after a complete breakdown at the dr's office (poor guy had no idea what to do with me...) i was referred to a counselor who did a really good job of helping me look at my condition REALISTICALLY. do i have CF? yes. am I doing to die tomorrow? no.
then she gave me some tools to start troubleshooting these negative thoughts. the best thing i did was to research CF and get a realistic and informed opinion of the progression of the disease and how i could understand the progression of my disease in relation to the horrible statistics. (ie that at 28 i was supposed to be on a ventilator--i somehow had that idea) this way i could see where i am and also learn some new ways to empower myself.
keeping up with meds, running, etc. are all ways that i feel better about my CF. i've really managed to keep the negative thought patterns under control and freak out about more normal things a 28 year old is supposed to freak out about at this age (how the hell am i going to make rent? my job is a joke! all my friends are getting married!) and enjoy life.
good luck and please be proactive about making yourself feel better...you've already taken a huge step by acknowledging it!
about 6 months ago i finally "realized" the severity of CF and all that it entails and that I HAVE TO DEAL WITH THIS FOR THE REST OF MY LIFE...it was too overwhelming for me to deal with. i ventured onto this website and read horrible stories that people my age had been through, read books about transplant survivors and basically had a freakout. i was convinced, i mean, CONVINCED i was going to drop dead tomorrow! logical? not at all. but a normal fear for a CFer? yup.
after a complete breakdown at the dr's office (poor guy had no idea what to do with me...) i was referred to a counselor who did a really good job of helping me look at my condition REALISTICALLY. do i have CF? yes. am I doing to die tomorrow? no.
then she gave me some tools to start troubleshooting these negative thoughts. the best thing i did was to research CF and get a realistic and informed opinion of the progression of the disease and how i could understand the progression of my disease in relation to the horrible statistics. (ie that at 28 i was supposed to be on a ventilator--i somehow had that idea) this way i could see where i am and also learn some new ways to empower myself.
keeping up with meds, running, etc. are all ways that i feel better about my CF. i've really managed to keep the negative thought patterns under control and freak out about more normal things a 28 year old is supposed to freak out about at this age (how the hell am i going to make rent? my job is a joke! all my friends are getting married!) and enjoy life.
good luck and please be proactive about making yourself feel better...you've already taken a huge step by acknowledging it!