W
welshwitch
Guest
FWIW I went to an elementary school with another CF kid in it (different grade) and we never had any problems.
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ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL
- Thread starter lexisangels05
- Start date
M
Mommafirst
Guest
Hmmm, statistically improbable, but we are dealing with this too. I feel very fortunate, as I have gotten to know the parents and we are going to work together, with our social worker, and the school's special services director and figure out the best plan. They all (twins with CF and Alyssa) start Kindergarten in the fall and our little neighborhood elementary only has one kindy classroom. Its likely that the school won't be able to accommodate this issue, so someone will have to use a different school, at least for Kindergarten. We'll deal with whatever it is, so long as we can maintain cross contamination procedures.
If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
M
Mommafirst
Guest
Hmmm, statistically improbable, but we are dealing with this too. I feel very fortunate, as I have gotten to know the parents and we are going to work together, with our social worker, and the school's special services director and figure out the best plan. They all (twins with CF and Alyssa) start Kindergarten in the fall and our little neighborhood elementary only has one kindy classroom. Its likely that the school won't be able to accommodate this issue, so someone will have to use a different school, at least for Kindergarten. We'll deal with whatever it is, so long as we can maintain cross contamination procedures.
If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
M
Mommafirst
Guest
Hmmm, statistically improbable, but we are dealing with this too. I feel very fortunate, as I have gotten to know the parents and we are going to work together, with our social worker, and the school's special services director and figure out the best plan. They all (twins with CF and Alyssa) start Kindergarten in the fall and our little neighborhood elementary only has one kindy classroom. Its likely that the school won't be able to accommodate this issue, so someone will have to use a different school, at least for Kindergarten. We'll deal with whatever it is, so long as we can maintain cross contamination procedures.
<br />
<br />If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
<br />
<br />If the other family is open to it, I suggest getting to know them. It has made me much more comfortable knowing them and knowing we will work together to find what is best for our kids. Its a challenge, without question, but there is no need to freak out...stay calm, know what you need and what you don't, and start talking to the appropriate folks. your CF center social worker may be very helpful, especially if you don't know the family.
Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one.
I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
Best of luck with your decision making.
I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
Best of luck with your decision making.
Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one.
I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
Best of luck with your decision making.
I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
Best of luck with your decision making.
Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one.
<br />
<br />I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
<br />
<br />I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
<br />
<br />At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
<br />Best of luck with your decision making.
<br />
<br />
<br />
<br />I think communication is the key here. I discussed the relevant issues with the nurse attached to our CF clinic, noted them down and then had a meeting with the relevant school staff and the other mother. The nurse was also available for education purposes if we needed her to come in. We were able to negotiate reasonable preventative measures to avoid cross infection. The children were introduced from a safe distance so that they could recognize each other and avoid contact. I think these issues are more easily dealt with in high school as the children can take some responsibility for themselves.
<br />
<br />I would not have expected to have to find another school or indeed for the other family to have to look elsewhere.
<br />
<br />At the end of the day I agree with others that have mentioned that there is far more likelihood of cross infection from hospital/clinic visits. I guess it comes down to your confidence in the measures that are put in place. I think we have to be sensible and realistic in these circumstances and try not to let fear cloud our judgment (from one who needs to take her own advice!)
<br />Best of luck with your decision making.
<br />
<br />
S
sdelorenzo
Guest
We have dealt with this situation as well. As it turned out the other child lived on our street. He was a few years older than my daughter, so it was quite a bit easier than being in the same grade. They were not in the nurses office at the same time. We became friends with the other family since we met through our younger sons who were good buddies. It helps to keep in contact. My younger son will be going to middle school and high school with a girl his age who has cf and lives close by. That will be more tricky to make sure that they are not in the same classes, etc.
My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
S
sdelorenzo
Guest
We have dealt with this situation as well. As it turned out the other child lived on our street. He was a few years older than my daughter, so it was quite a bit easier than being in the same grade. They were not in the nurses office at the same time. We became friends with the other family since we met through our younger sons who were good buddies. It helps to keep in contact. My younger son will be going to middle school and high school with a girl his age who has cf and lives close by. That will be more tricky to make sure that they are not in the same classes, etc.
My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
S
sdelorenzo
Guest
We have dealt with this situation as well. As it turned out the other child lived on our street. He was a few years older than my daughter, so it was quite a bit easier than being in the same grade. They were not in the nurses office at the same time. We became friends with the other family since we met through our younger sons who were good buddies. It helps to keep in contact. My younger son will be going to middle school and high school with a girl his age who has cf and lives close by. That will be more tricky to make sure that they are not in the same classes, etc.
<br />
<br />My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
<br />Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
<br />
<br />My son and daughter both have cf. It has taken years for them to end up culturing the same bacteria. For example, my son cultured pseudomonas off and on for the past six years. My daughter has just cultured it once three months ago. At least for my kids, it hasn't been that easy to pass the bacteria back and forth.
<br />Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige, 4 months both without cf
CountryGirl
New member
CHEESE AND RICE PEOPLE I MUST HAVE HIT THE JACKPOT!!!!!!!!! I HAVE TWO CFERS IN MY HOUSE AND WE ONLY HAVE FOUR PEOPLE IN IT!!!
SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
CountryGirl
New member
CHEESE AND RICE PEOPLE I MUST HAVE HIT THE JACKPOT!!!!!!!!! I HAVE TWO CFERS IN MY HOUSE AND WE ONLY HAVE FOUR PEOPLE IN IT!!!
SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
CountryGirl
New member
CHEESE AND RICE PEOPLE I MUST HAVE HIT THE JACKPOT!!!!!!!!! I HAVE TWO CFERS IN MY HOUSE AND WE ONLY HAVE FOUR PEOPLE IN IT!!!
<br />
<br />SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
<br />
<br />Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
<br />
<br />SERIOUSLY!? Do you think they clean every little thing at the hospital and clinic when you go, in between each child? NO! You and your child are going to get germs no matter how hard you try, unless you stick them in a bubble. Its not a big deal!
<br />
<br />Mommafirst did the right thing, you guys should be open about it between families and take a chill pill.
Anna, yeah genetically speaking ANY family that already has one child with CF in it has a 25% chance of another one ending up in it. You don't see the same odds in the community at large. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
Anna, yeah genetically speaking ANY family that already has one child with CF in it has a 25% chance of another one ending up in it. You don't see the same odds in the community at large. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
Anna, yeah genetically speaking ANY family that already has one child with CF in it has a 25% chance of another one ending up in it. You don't see the same odds in the community at large. <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
<br />
<br />Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
<br />
<br />I DO agree that freaking out is not necessary, but guidelines need to be put in place by the ADULTS in the school setting, since little kids don't yet fully understand the need for precautions and are less capable of following through on them, unlike adults (who can make their own choices about cross-contamination etc and who can also do what is needed to maintain a safe distance etc.)
<br />
<br />Kids are also at school day in and day out, unlike clinic visits which last a couple hours every couple months. With reasonable precautions, school is NOT going to pose a risk. However, with NO precautions and repeated contact, this CAN pose a risk in the school environment. Again- freaking out is not necessary, but parents new to this situation have a legitimate concern. It shouldn't just be disregarded.
I'm not freaking out, I'm trying to deal with this issue so it doesn't become an issue. Knowing this family and the clinic they go to, I am a bit nervous; however, being a grade separates them they most likely won't be in close contact with each other.
Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
I'm not freaking out, I'm trying to deal with this issue so it doesn't become an issue. Knowing this family and the clinic they go to, I am a bit nervous; however, being a grade separates them they most likely won't be in close contact with each other.
Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
I'm not freaking out, I'm trying to deal with this issue so it doesn't become an issue. Knowing this family and the clinic they go to, I am a bit nervous; however, being a grade separates them they most likely won't be in close contact with each other.
<br />
<br />Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
<br />
<br />One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
<br />
<br />Another thing I keep thinking about is how this younger child may be treated or perceived by school staff being that he has to follow DS. In kindergarten DS was fairly healthy -- didn't miss school. His teacher dispensed enzymes in the classroom. I feel bad that they may have a perception that CF is no big deal and may make comparisons to DS. Especially being that the younger child has had soooo many health issues early on.
<br />
<br />One of my friends asked me if DS gets overheated. Her daughter has a different mutation and is very suseptible to being overheated.
lissajane22
New member
Why is this such a big deal? Relax!
O-V-E-R-R-E-A-C-T-I-O-N!!!!!!
O-V-E-R-R-E-A-C-T-I-O-N!!!!!!