Another damaging misdiagnosis...

R

Rebjane

Super Moderator
Renee,

Just wanted to offer my support. I hope your daughter gets on the mend soon. Definately, the nurses should be medicating your daughter prior to CPT so she is comfortable as possible. I did want to mention that codeine suppresses cough(not what we want for our CF'ers). When maggie had surgery, the surgeon ordered Tylenol with codeine and our pediatrician switched her to a different pain med without codeine(can't remember what). Also, Kacie drinking lots of fluids will keep her mucous less thick. Moving around as much as she can tolerate will help as well. Narcotics also can cause constipation, so making sure she gets fiber, like prune juice or a stool softener to prevent that as well. Those are some of the tricks in my bag<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
R

Rebjane

Super Moderator
Renee,

Just wanted to offer my support. I hope your daughter gets on the mend soon. Definately, the nurses should be medicating your daughter prior to CPT so she is comfortable as possible. I did want to mention that codeine suppresses cough(not what we want for our CF'ers). When maggie had surgery, the surgeon ordered Tylenol with codeine and our pediatrician switched her to a different pain med without codeine(can't remember what). Also, Kacie drinking lots of fluids will keep her mucous less thick. Moving around as much as she can tolerate will help as well. Narcotics also can cause constipation, so making sure she gets fiber, like prune juice or a stool softener to prevent that as well. Those are some of the tricks in my bag<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
R

Rebjane

Super Moderator
Renee,

Just wanted to offer my support. I hope your daughter gets on the mend soon. Definately, the nurses should be medicating your daughter prior to CPT so she is comfortable as possible. I did want to mention that codeine suppresses cough(not what we want for our CF'ers). When maggie had surgery, the surgeon ordered Tylenol with codeine and our pediatrician switched her to a different pain med without codeine(can't remember what). Also, Kacie drinking lots of fluids will keep her mucous less thick. Moving around as much as she can tolerate will help as well. Narcotics also can cause constipation, so making sure she gets fiber, like prune juice or a stool softener to prevent that as well. Those are some of the tricks in my bag<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
R

Rebjane

Super Moderator
Renee,

Just wanted to offer my support. I hope your daughter gets on the mend soon. Definately, the nurses should be medicating your daughter prior to CPT so she is comfortable as possible. I did want to mention that codeine suppresses cough(not what we want for our CF'ers). When maggie had surgery, the surgeon ordered Tylenol with codeine and our pediatrician switched her to a different pain med without codeine(can't remember what). Also, Kacie drinking lots of fluids will keep her mucous less thick. Moving around as much as she can tolerate will help as well. Narcotics also can cause constipation, so making sure she gets fiber, like prune juice or a stool softener to prevent that as well. Those are some of the tricks in my bag<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
R

Rebjane

Super Moderator
Renee,

Just wanted to offer my support. I hope your daughter gets on the mend soon. Definately, the nurses should be medicating your daughter prior to CPT so she is comfortable as possible. I did want to mention that codeine suppresses cough(not what we want for our CF'ers). When maggie had surgery, the surgeon ordered Tylenol with codeine and our pediatrician switched her to a different pain med without codeine(can't remember what). Also, Kacie drinking lots of fluids will keep her mucous less thick. Moving around as much as she can tolerate will help as well. Narcotics also can cause constipation, so making sure she gets fiber, like prune juice or a stool softener to prevent that as well. Those are some of the tricks in my bag<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

JORDYSMOM

New member
I'm glad she's improving some. When Jordan was in for his spine surgery, I set my phone alarm to make sure they didn't miss his pain meds at night. I started reminding them about 20 minutes before he was due, so that they weren't late. You are right, there is no reason to make your child start back at square one with pain like that.

I hope things continue to improve. Thanks for keeping us posted.

Stacey
 
J

JORDYSMOM

New member
I'm glad she's improving some. When Jordan was in for his spine surgery, I set my phone alarm to make sure they didn't miss his pain meds at night. I started reminding them about 20 minutes before he was due, so that they weren't late. You are right, there is no reason to make your child start back at square one with pain like that.

I hope things continue to improve. Thanks for keeping us posted.

Stacey
 
J

JORDYSMOM

New member
I'm glad she's improving some. When Jordan was in for his spine surgery, I set my phone alarm to make sure they didn't miss his pain meds at night. I started reminding them about 20 minutes before he was due, so that they weren't late. You are right, there is no reason to make your child start back at square one with pain like that.

I hope things continue to improve. Thanks for keeping us posted.

Stacey
 
J

JORDYSMOM

New member
I'm glad she's improving some. When Jordan was in for his spine surgery, I set my phone alarm to make sure they didn't miss his pain meds at night. I started reminding them about 20 minutes before he was due, so that they weren't late. You are right, there is no reason to make your child start back at square one with pain like that.

I hope things continue to improve. Thanks for keeping us posted.

Stacey
 
J

JORDYSMOM

New member
I'm glad she's improving some. When Jordan was in for his spine surgery, I set my phone alarm to make sure they didn't miss his pain meds at night. I started reminding them about 20 minutes before he was due, so that they weren't late. You are right, there is no reason to make your child start back at square one with pain like that.
<br />
<br />I hope things continue to improve. Thanks for keeping us posted.
<br />
<br />Stacey
 
K

Kenziesmom

New member
I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
 
K

Kenziesmom

New member
I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
 
K

Kenziesmom

New member
I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
 
K

Kenziesmom

New member
I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
 
K

Kenziesmom

New member
I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
 
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