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Another question about hypertonic saline
- Thread starter barbc888
- Start date
My doctor was prescribing it so that I had to use all doses in the 15 ml vials...saving it from one day to the next. This made me uncomfortable (((germs))). So I asked that they re-write the script for 15 ml per day (since I only neb saline once a day). I use it once and toss it. I only use 3%.
Before you start tossing the extra make sure you have enough to get you through the month.
Before you start tossing the extra make sure you have enough to get you through the month.
My doctor was prescribing it so that I had to use all doses in the 15 ml vials...saving it from one day to the next. This made me uncomfortable (((germs))). So I asked that they re-write the script for 15 ml per day (since I only neb saline once a day). I use it once and toss it. I only use 3%.
Before you start tossing the extra make sure you have enough to get you through the month.
Before you start tossing the extra make sure you have enough to get you through the month.
My doctor was prescribing it so that I had to use all doses in the 15 ml vials...saving it from one day to the next. This made me uncomfortable (((germs))). So I asked that they re-write the script for 15 ml per day (since I only neb saline once a day). I use it once and toss it. I only use 3%.
Before you start tossing the extra make sure you have enough to get you through the month.
Before you start tossing the extra make sure you have enough to get you through the month.
Lance2020x
New member
I usually mix a full 9ml (6 ml of the big vial, then a whole small vial [3ml]) according to the instructions I was given. I then put 4.5ml into my neb (I'm suppose to do 4ml, but I just figured heck I'll go halfway). I wasn't told anything about throwing out the leftovers. I dunno, I just figured heck, I store the vial where I store my neb and flutter valve, I'm not real worried about it. My brother throws the leftovers away. The deal is that I can ONLY fill this perscription where I have my CF appointments every three months, in Nashville two hours away. So I get a full 3 month supply and that's all I have to go off of.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
Lance2020x
New member
I usually mix a full 9ml (6 ml of the big vial, then a whole small vial [3ml]) according to the instructions I was given. I then put 4.5ml into my neb (I'm suppose to do 4ml, but I just figured heck I'll go halfway). I wasn't told anything about throwing out the leftovers. I dunno, I just figured heck, I store the vial where I store my neb and flutter valve, I'm not real worried about it. My brother throws the leftovers away. The deal is that I can ONLY fill this perscription where I have my CF appointments every three months, in Nashville two hours away. So I get a full 3 month supply and that's all I have to go off of.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
Lance2020x
New member
I usually mix a full 9ml (6 ml of the big vial, then a whole small vial [3ml]) according to the instructions I was given. I then put 4.5ml into my neb (I'm suppose to do 4ml, but I just figured heck I'll go halfway). I wasn't told anything about throwing out the leftovers. I dunno, I just figured heck, I store the vial where I store my neb and flutter valve, I'm not real worried about it. My brother throws the leftovers away. The deal is that I can ONLY fill this perscription where I have my CF appointments every three months, in Nashville two hours away. So I get a full 3 month supply and that's all I have to go off of.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
I've started mixing 3ml of the big vial and 1.5ml of the small, I figure it would be harder for germs to get into the vial than into the tube.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Another thought depending on current cost & insurance is to get it thru Foundation Care. They offer premixed HS with different % & size doses. Here is there link:</end quote></div>
Here is the info on Foundation Care:
Cost is $36 for 60 vials of 5ml of 7% Hypertonic Saline, that's a one month's supply and includes free shipping. Check them out at foundcare.com -- 314.291.1122 (St Louis Area) 877.291.1122 (Toll Free) They have excellent service.
With being on nebulized tobi and having them prepare it for me I now receive the prepared HS vials for free as well as the eflow. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks Jem. I looked into Foundation Care and they're not a pharmacy that my insurance will deal with. I don't mind the mixing -- my dr. got back to me and said mix 3 ml of one and 4 ml of the other -- I was concerned that he wanted me to nebulize 15 ml at a time -- no way! Turns out he wasn't clear in his instructions... I feel better now. You guys have been such a great help!!!! Sometimes I feel like I'm going nuts, and then I log on to this site and I feel so much better and know I'm not crazy after all!
Barbara
40 w/CF & CFRD
Barbara
40 w/CF & CFRD
Thanks Jem. I looked into Foundation Care and they're not a pharmacy that my insurance will deal with. I don't mind the mixing -- my dr. got back to me and said mix 3 ml of one and 4 ml of the other -- I was concerned that he wanted me to nebulize 15 ml at a time -- no way! Turns out he wasn't clear in his instructions... I feel better now. You guys have been such a great help!!!! Sometimes I feel like I'm going nuts, and then I log on to this site and I feel so much better and know I'm not crazy after all!
Barbara
40 w/CF & CFRD
Barbara
40 w/CF & CFRD
Thanks Jem. I looked into Foundation Care and they're not a pharmacy that my insurance will deal with. I don't mind the mixing -- my dr. got back to me and said mix 3 ml of one and 4 ml of the other -- I was concerned that he wanted me to nebulize 15 ml at a time -- no way! Turns out he wasn't clear in his instructions... I feel better now. You guys have been such a great help!!!! Sometimes I feel like I'm going nuts, and then I log on to this site and I feel so much better and know I'm not crazy after all!
Barbara
40 w/CF & CFRD
Barbara
40 w/CF & CFRD