Well, we go for another sweat test tomorrow. Cate's first test was 41. Her mutation panel (for 97 mutations) was negative. For those of you who haven't read my other post, here is a brief summary of Cate's symptoms: poor weight gain (at 5%-7% for age), 10 respiratory infections in one year (she's only 12 months old and doesn't attend daycare), one hospitalization for respiratory distress/infection, constipation with an occasional large foul-smelling stool, rectal prolapse, and positive newborn screen with IRT of 96.5. We're going to see a pulmonologist on Tuesday. He's supposed to be very good and has a lot of experience with CF kids. His nurse said he wasn't convinced Cate had CF. He also isn't convinced she doesn't have it. While I hope she doesn't have CF, it sure seems to me like she does. Anyway, I'll post when we get her results and when we talk to the pulmonologist. Please keep us in your thoughts and prayers. As you all know, this is very stressful and has me freaking out!
Barbara
Mom to Cate 04-10-07
Barbara
Mom to Cate 04-10-07