AMEN and all that jazz!! Food choices are the single greatest thing we can do for our health or that of our children. It is also so sad to me that physicians know little to nothing about this area...even nutritionists who supposedly study food and it's affects on the body, provide little to no help in CF clinics (although you can consult with others). It is so confusing as a parent new to this disease and a true disservice to the CF community that they are still making recommendations which include sugar and hydrogenated fats as the mainstay of weight gain. Can they not use their smarts and imagination to provide real whole food based solutions? Thank you all for sharing your discoveries as adults, because it speaks louder to me as a parent than much of what I hear at clinic. It really encourages me to stick to my intuition.
We need a CFF equivalent which studies nutrtion, supplements and complimentary care. An organization which could bridge the gap and get it into the clinic setting. Wouldn't that be something to have a naturopath, accupuncturist, chiropractor and massage therapist (plus others) available at every clinic in America? How much could this change CF and disease progression?
Just dreaming...but maybe...
We need a CFF equivalent which studies nutrtion, supplements and complimentary care. An organization which could bridge the gap and get it into the clinic setting. Wouldn't that be something to have a naturopath, accupuncturist, chiropractor and massage therapist (plus others) available at every clinic in America? How much could this change CF and disease progression?
Just dreaming...but maybe...