Any CF runners?

CowTown

New member
Oh I'm so so happy to have found this post! I posted a similar question but it looks like I put it in the wrong place on this site. I've been extremely inspired by a friend of mine to start running but never have gotten my butt out there. My friend doesn't have CF, but she wasn't exactly an athlete either so I felt, hey, if she can run marathons then I can too. It's just that she actually did it and I haven't even tried yet! It's been 2 years and I'm still *thinking* about it. I felt a jolt of adrenaline reading these posts, so hopefully I'll stop being so lazy and make a difference in my health too! The last I checked when I ran on the treadmill, I could only jog for about 2 minutes and that was it! How retarded is that? And my history is that I've always been very very athletic, which just tells me I need to get off my rear ASAP.
 

CowTown

New member
Oh I'm so so happy to have found this post! I posted a similar question but it looks like I put it in the wrong place on this site. I've been extremely inspired by a friend of mine to start running but never have gotten my butt out there. My friend doesn't have CF, but she wasn't exactly an athlete either so I felt, hey, if she can run marathons then I can too. It's just that she actually did it and I haven't even tried yet! It's been 2 years and I'm still *thinking* about it. I felt a jolt of adrenaline reading these posts, so hopefully I'll stop being so lazy and make a difference in my health too! The last I checked when I ran on the treadmill, I could only jog for about 2 minutes and that was it! How retarded is that? And my history is that I've always been very very athletic, which just tells me I need to get off my rear ASAP.
 

anonymous

New member
Kelly,
Glad this post helped you! I usually find that if others are doing something, I am inspired to do it too!

I have a question that I'm going to post here and see if anyone sees it/responds.... It has to do with the running topic.

Well, I'm wondering if you runners ever have "bad" days for no apparent reason? I ask cause usually I can run about 10 minutes, then walk, then run another 6-7. Well, yesterday, I was running for about 9 minutes and absolutely felt like my lungs were going to explode! So, I walked, and then was only able to put on another 2 minutes of run. I felt nauseous and short of breath and just crummy.

Does anyone else have days where, for no apparent reason, they just can't go as far, fast, long, etc. with their run/workout? What do you think this means? Should I be worried? I've had this before, but usually I just decrease my run by a couple minutes... I don't usually feel so crummy afterward and barely able to do anything.

Sonia
 

anonymous

New member
Kelly,
Glad this post helped you! I usually find that if others are doing something, I am inspired to do it too!

I have a question that I'm going to post here and see if anyone sees it/responds.... It has to do with the running topic.

Well, I'm wondering if you runners ever have "bad" days for no apparent reason? I ask cause usually I can run about 10 minutes, then walk, then run another 6-7. Well, yesterday, I was running for about 9 minutes and absolutely felt like my lungs were going to explode! So, I walked, and then was only able to put on another 2 minutes of run. I felt nauseous and short of breath and just crummy.

Does anyone else have days where, for no apparent reason, they just can't go as far, fast, long, etc. with their run/workout? What do you think this means? Should I be worried? I've had this before, but usually I just decrease my run by a couple minutes... I don't usually feel so crummy afterward and barely able to do anything.

Sonia
 

CowTown

New member
Sonia, thanks for your words of encouragement. I feel encouraged to know that other CFers are running and successfully fighting that way. That's what I want to do because I've always been very athletic until the last 2 years. It's terrible. Everyone who has posted here has truly motivated me. My husband tells me all the time, Oh here's what you need to do, run this, run that, etc and I know he's trying to help, but he really doesn't understand completely how it feels and what a struggle it is. He is super supportive though I have to say.

I have a question for Jennifer, when you say just walking doesn't do anything at all for you, why do you think? Walking is suppose to be better than nothing, and I'm wondering if you're right. My husband thinks just walking isn't enough for me to bring my PFTs back up, because we used to do such strenuous activities like rock climbing, skiing, hiking etc. I wonder if walking is a waste of time. I want to get back to where I was 2 years ago and I certaintly don't want to waste my time by walking if I have to always be running. What do you think?
 

CowTown

New member
Sonia, thanks for your words of encouragement. I feel encouraged to know that other CFers are running and successfully fighting that way. That's what I want to do because I've always been very athletic until the last 2 years. It's terrible. Everyone who has posted here has truly motivated me. My husband tells me all the time, Oh here's what you need to do, run this, run that, etc and I know he's trying to help, but he really doesn't understand completely how it feels and what a struggle it is. He is super supportive though I have to say.

I have a question for Jennifer, when you say just walking doesn't do anything at all for you, why do you think? Walking is suppose to be better than nothing, and I'm wondering if you're right. My husband thinks just walking isn't enough for me to bring my PFTs back up, because we used to do such strenuous activities like rock climbing, skiing, hiking etc. I wonder if walking is a waste of time. I want to get back to where I was 2 years ago and I certaintly don't want to waste my time by walking if I have to always be running. What do you think?
 

anonymous

New member
Hi

I came late to the CF party (!) I was 24 years old before I was properly diagnosed (Don't ask, it's a long story). Anyway, I never really excersised as a young man because of my 'cronic asthma' so as i turned into my 20's I was fit enough but nothing spectacular. As I got to 25 I realised that I had to do something to balance out all the meds by up-ing my excersise levels. I had played 5-a-side soccer every week for a few years but I decided to add some running.

First thing I did was join a gym so I could get some professional advise and not run myself into the ground. Of course, as soon as I mentined cf the guy suggested I try for 10 minutes a week and take it easy! I wasn't impressed. So I just started off slowly and built up. The first week, half a kilometer was a huge effort but slowly-but-surely I built up and up. The secret is not to push yourself too much. If your tired, take a day off. I started going to the gym twice a week combining strength training and some running on the mill.

Then I added in a day of running on the road. If your goal is to complete 10k races or more, you'll have to get off the mill at some stage. For any body ('normal' people included!), the pounding your hips and feet get off the road can only be helped by getting your body used to the punishment. I got a friend to run with me and thankfully she was at the same if not slightly better pace so she dragged me around. One thing I could never do was run all the way, I would run/walk, NEVER STOP OR YOU'LL SEIZE UP! I read a book once, I think it was called 'marathon running for the complete idiot' and it described the many different people who run races, runners, walkers, run-walkers and walk-runners. I'm a run/walker!

Gradually the time in between having to walk and catch your breath will shorten as you get stronger. It's a great feeling when you start to cover longer distances and feel less fecked.

So I got it into my head to run the Dublin city marathon. My friend took up the challenge too so we started training upto 4 times per week. Doing 5-6 miles at a time. There was never a mention of speed just getting around was our goal. I finished the marathon in 5hrs 7mins in 2004 and I went back again in 2005 and took 15mins off my time(That was in the top 50% would you believe!) It's a great feeling to finish but I think I'll do it one more time and then hang up my trainers. I'm nearly 30 you know!

The thing is, I know my doctors would flip their lids if they knew I ran the races 'cos they never want anyone to over exert themselves but I just had to do something. Watching too much tv wasn't really 'enjoying life as best I could'. I am grateful for the fact I could achieve my goal but it was an achievement for myself and I told very few people about it. It gave me focus and a goal and even though I have cf, it doesn't control or restrict me all of the time :)

Best of luck & enjoy

p.s. buy good shoes, nikes are crap. try Asics, they worked for me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Hi

I came late to the CF party (!) I was 24 years old before I was properly diagnosed (Don't ask, it's a long story). Anyway, I never really excersised as a young man because of my 'cronic asthma' so as i turned into my 20's I was fit enough but nothing spectacular. As I got to 25 I realised that I had to do something to balance out all the meds by up-ing my excersise levels. I had played 5-a-side soccer every week for a few years but I decided to add some running.

First thing I did was join a gym so I could get some professional advise and not run myself into the ground. Of course, as soon as I mentined cf the guy suggested I try for 10 minutes a week and take it easy! I wasn't impressed. So I just started off slowly and built up. The first week, half a kilometer was a huge effort but slowly-but-surely I built up and up. The secret is not to push yourself too much. If your tired, take a day off. I started going to the gym twice a week combining strength training and some running on the mill.

Then I added in a day of running on the road. If your goal is to complete 10k races or more, you'll have to get off the mill at some stage. For any body ('normal' people included!), the pounding your hips and feet get off the road can only be helped by getting your body used to the punishment. I got a friend to run with me and thankfully she was at the same if not slightly better pace so she dragged me around. One thing I could never do was run all the way, I would run/walk, NEVER STOP OR YOU'LL SEIZE UP! I read a book once, I think it was called 'marathon running for the complete idiot' and it described the many different people who run races, runners, walkers, run-walkers and walk-runners. I'm a run/walker!

Gradually the time in between having to walk and catch your breath will shorten as you get stronger. It's a great feeling when you start to cover longer distances and feel less fecked.

So I got it into my head to run the Dublin city marathon. My friend took up the challenge too so we started training upto 4 times per week. Doing 5-6 miles at a time. There was never a mention of speed just getting around was our goal. I finished the marathon in 5hrs 7mins in 2004 and I went back again in 2005 and took 15mins off my time(That was in the top 50% would you believe!) It's a great feeling to finish but I think I'll do it one more time and then hang up my trainers. I'm nearly 30 you know!

The thing is, I know my doctors would flip their lids if they knew I ran the races 'cos they never want anyone to over exert themselves but I just had to do something. Watching too much tv wasn't really 'enjoying life as best I could'. I am grateful for the fact I could achieve my goal but it was an achievement for myself and I told very few people about it. It gave me focus and a goal and even though I have cf, it doesn't control or restrict me all of the time :)

Best of luck & enjoy

p.s. buy good shoes, nikes are crap. try Asics, they worked for me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Hi

I came late to the CF party (!) I was 24 years old before I was properly diagnosed (Don't ask, it's a long story). Anyway, I never really excersised as a young man because of my 'cronic asthma' so as i turned into my 20's I was fit enough but nothing spectacular. As I got to 25 I realised that I had to do something to balance out all the meds by up-ing my excersise levels. I had played 5-a-side soccer every week for a few years but I decided to add some running.

First thing I did was join a gym so I could get some professional advise and not run myself into the ground. Of course, as soon as I mentined cf the guy suggested I try for 10 minutes a week and take it easy! I wasn't impressed. So I just started off slowly and built up. The first week, half a kilometer was a huge effort but slowly-but-surely I built up and up. The secret is not to push yourself too much. If your tired, take a day off. I started going to the gym twice a week combining strength training and some running on the mill.

Then I added in a day of running on the road. If your goal is to complete 10k races or more, you'll have to get off the mill at some stage. For any body ('normal' people included!), the pounding your hips and feet get off the road can only be helped by getting your body used to the punishment. I got a friend to run with me and thankfully she was at the same if not slightly better pace so she dragged me around. One thing I could never do was run all the way, I would run/walk, NEVER STOP OR YOU'LL SEIZE UP! I read a book once, I think it was called 'marathon running for the complete idiot' and it described the many different people who run races, runners, walkers, run-walkers and walk-runners. I'm a run/walker!

Gradually the time in between having to walk and catch your breath will shorten as you get stronger. It's a great feeling when you start to cover longer distances and feel less fecked.

So I got it into my head to run the Dublin city marathon. My friend took up the challenge too so we started training upto 4 times per week. Doing 5-6 miles at a time. There was never a mention of speed just getting around was our goal. I finished the marathon in 5hrs 7mins in 2004 and I went back again in 2005 and took 15mins off my time(That was in the top 50% would you believe!) It's a great feeling to finish but I think I'll do it one more time and then hang up my trainers. I'm nearly 30 you know!

The thing is, I know my doctors would flip their lids if they knew I ran the races 'cos they never want anyone to over exert themselves but I just had to do something. Watching too much tv wasn't really 'enjoying life as best I could'. I am grateful for the fact I could achieve my goal but it was an achievement for myself and I told very few people about it. It gave me focus and a goal and even though I have cf, it doesn't control or restrict me all of the time :)

Best of luck & enjoy

p.s. buy good shoes, nikes are crap. try Asics, they worked for me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Hi

I came late to the CF party (!) I was 24 years old before I was properly diagnosed (Don't ask, it's a long story). Anyway, I never really excersised as a young man because of my 'cronic asthma' so as i turned into my 20's I was fit enough but nothing spectacular. As I got to 25 I realised that I had to do something to balance out all the meds by up-ing my excersise levels. I had played 5-a-side soccer every week for a few years but I decided to add some running.

First thing I did was join a gym so I could get some professional advise and not run myself into the ground. Of course, as soon as I mentined cf the guy suggested I try for 10 minutes a week and take it easy! I wasn't impressed. So I just started off slowly and built up. The first week, half a kilometer was a huge effort but slowly-but-surely I built up and up. The secret is not to push yourself too much. If your tired, take a day off. I started going to the gym twice a week combining strength training and some running on the mill.

Then I added in a day of running on the road. If your goal is to complete 10k races or more, you'll have to get off the mill at some stage. For any body ('normal' people included!), the pounding your hips and feet get off the road can only be helped by getting your body used to the punishment. I got a friend to run with me and thankfully she was at the same if not slightly better pace so she dragged me around. One thing I could never do was run all the way, I would run/walk, NEVER STOP OR YOU'LL SEIZE UP! I read a book once, I think it was called 'marathon running for the complete idiot' and it described the many different people who run races, runners, walkers, run-walkers and walk-runners. I'm a run/walker!

Gradually the time in between having to walk and catch your breath will shorten as you get stronger. It's a great feeling when you start to cover longer distances and feel less fecked.

So I got it into my head to run the Dublin city marathon. My friend took up the challenge too so we started training upto 4 times per week. Doing 5-6 miles at a time. There was never a mention of speed just getting around was our goal. I finished the marathon in 5hrs 7mins in 2004 and I went back again in 2005 and took 15mins off my time(That was in the top 50% would you believe!) It's a great feeling to finish but I think I'll do it one more time and then hang up my trainers. I'm nearly 30 you know!

The thing is, I know my doctors would flip their lids if they knew I ran the races 'cos they never want anyone to over exert themselves but I just had to do something. Watching too much tv wasn't really 'enjoying life as best I could'. I am grateful for the fact I could achieve my goal but it was an achievement for myself and I told very few people about it. It gave me focus and a goal and even though I have cf, it doesn't control or restrict me all of the time :)

Best of luck & enjoy

p.s. buy good shoes, nikes are crap. try Asics, they worked for me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Jennifer1981

New member
Hi Kelly,

Sorry, I haven't responded earlier to your question. I posted my message and never really checked back until now. I agree that walking is better than nothing but think about this for a minute. Your married like me. You get up, help your husband off to work, cook, clean, maybe take care of the dog. Maybe even work yourself??? You are active. Sure you may not get your heartrate up to cardio activity, but you are active. I think walking benefits people who are less fortunate. CF'ers that can't work or even get up in the morning without needing oxygen. Those people would really benefit from just walking a block or a few feet everyday. Anything that they can do would be so beneficial to them.

However when you are active to the extent that we are on a daily basis, you could walk for miles, but your heartrate more than likely won't reach a cardio level like it needs to to benefit. I'm not saying that we need to run all the time, but by running for about 4 minutes than walking 2 gives you a chance to raise your heartrate and take a breather without losing your target heartrate. That way you get the workout without over doing it. Now if you walk for 1 minute and your heartrate comes down to much, run. I'm not sure what your target heartrate is. It's based on age and height. I'll check for you.

I think your husband is right, though. If you could rock climb and ski, congrats!!!!! Those are really hard activities. I don't ski, but rock climbing gives me a workout with my running. You ARE capable of doing MUCH MORE. You can do it!!!

Jennifer 24 w/CF
 

Jennifer1981

New member
Hi Kelly,

Sorry, I haven't responded earlier to your question. I posted my message and never really checked back until now. I agree that walking is better than nothing but think about this for a minute. Your married like me. You get up, help your husband off to work, cook, clean, maybe take care of the dog. Maybe even work yourself??? You are active. Sure you may not get your heartrate up to cardio activity, but you are active. I think walking benefits people who are less fortunate. CF'ers that can't work or even get up in the morning without needing oxygen. Those people would really benefit from just walking a block or a few feet everyday. Anything that they can do would be so beneficial to them.

However when you are active to the extent that we are on a daily basis, you could walk for miles, but your heartrate more than likely won't reach a cardio level like it needs to to benefit. I'm not saying that we need to run all the time, but by running for about 4 minutes than walking 2 gives you a chance to raise your heartrate and take a breather without losing your target heartrate. That way you get the workout without over doing it. Now if you walk for 1 minute and your heartrate comes down to much, run. I'm not sure what your target heartrate is. It's based on age and height. I'll check for you.

I think your husband is right, though. If you could rock climb and ski, congrats!!!!! Those are really hard activities. I don't ski, but rock climbing gives me a workout with my running. You ARE capable of doing MUCH MORE. You can do it!!!

Jennifer 24 w/CF
 

Jennifer1981

New member
Oh and Kelly,

You don't just have to run. Hike again. Rock climb again. Mix it up a bit. Mixing it up will keep you going even on the worst days.

Jennifer 24 w/CF
 

Jennifer1981

New member
Oh and Kelly,

You don't just have to run. Hike again. Rock climb again. Mix it up a bit. Mixing it up will keep you going even on the worst days.

Jennifer 24 w/CF
 

CowTown

New member
I started the treadmill again this past week, finally. I am going to work up to a little jog here and there, with the goal to jog up to 5 minutes straight! That's the first step. Also, I am starting horse back riding lessons next week! So excited. I'm going to do that at least 1x week and if I'm feeling extra special, maybe 2x week. Thanks again for all of your encouraging words.

You go get em too!
 

CowTown

New member
I started the treadmill again this past week, finally. I am going to work up to a little jog here and there, with the goal to jog up to 5 minutes straight! That's the first step. Also, I am starting horse back riding lessons next week! So excited. I'm going to do that at least 1x week and if I'm feeling extra special, maybe 2x week. Thanks again for all of your encouraging words.

You go get em too!
 

icefisherman

New member
I can't run to save my life, but I can out walk almost anyone. I love to hike. I live near the Adirondak's, and I try to hike as often as I can. It's amazing how far you can walk in a day. when i'm driving to the trail-head, and i see the mountain off in the distance, i think there's no way I can make it up and back in one day. When I do it's the greatest feeling in the wold. i've tried to post pics, but it seems to be that you have to have pics online, which i don't. I have many on my desktop, and if anyone wants to see, I could figue out how to get them to you. I think we should all be as active as we can, and to me the outdoors is the way to do it. Best of health and happiness to all of you!
Ben 23/cf
 

tiregrl19

New member
I have never had the urge to run--- or ability really!!! I danced
for over 15 years and that kept my pfts in the 80's then I had to
quit for other health reasons and they crashed unfortunately.
Although they are in the low 60's I am trying to get my pfts up so
I can dance again. I am working all this summer in the gym, about 6
days a week, so I can dance in the Fall. Hopefully I will be able
to.   <img src="i/expressions/face-icon-small-smile.gif" border="0">  I never realized how much physical
activity made a difference, I know it sounds stupid but it is the
difference between sick or healthy I have realized as I get older.
  
 

anonymous

New member
To the poster who runs (ran) marathons....

Thank you for sharing! Your words of encouragement AND words that you don't have to run the whole time, really inspire me! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sonia
 
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